Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Texture Change?


sillycinder

Recommended Posts

sillycinder Newbie

Hey everyone!

I've been gluten free for the past month and a half, and so far that's going well! However, my hair texture has drastically changed, even though I haven't changed any of my hair products. I've always had straight hair with a little bit of wave, and all of a sudden about a week ago my hair switched to being curly. Has this happened to anyone else? It's freaking me out a little bit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I didn't have that happen as a result of being gluten free but it did happen as a result of taking a prescribed drug that was being given to me at toxic levels.

This sometimes happens to folks that have gone through chemo or have lost a lot of hair and had it grow back. Mine eventually went back to being wavy instead of curly but I can't say whether yours will or not.

Takala Enthusiast

I started out life as a curly with thick hair. And I mean, strawberry dark blonde mixed fuzzola. Jr high and high school was a series of giant rollers and hair dryers trying to smooth it out. High school, every body else it seemed, had straight, slick hair, but mine always tangled at the slightest excuse even after blow drying it. I could not figure out how other people could go to the beach or drive with the windows down, without creating a birds nest and yet leave their hair just hanging. I always had to braid it or pin it back.

By my late thirties, it had stopped growing very much in front, and gotten thinner and just wavy. Layered haircuts came into style. Now I don't have enough oomph to get that curled look. What luck. :huh:

I ended up cutting it shorter, finally, because the ponytail or braid was just getting thinner on the bottom end, and the front bangs and sides hardly grow.

Fast forward to years of gluten free. It changed ! Now it's still shorter because it's back to its original unruly curly self and a lot thicker in my 50's than it was in my 30's. :rolleyes: Who would have ever thought this would happen ? I let it grow out, out of curiosity, during the winter of 2008 - 09 to see what I had, and I could now wear it shoulder length if I wanted to, but the original color is now moused out. So back to highlighting and a shorter cut.

It's wash, rinse or spray with cider vinegar water so it doesn't tangle, and put a tiny dab of shea butter or coconut oil on it and let it air dry, and it looks styled. Sometimes I do what is called co - rinsing, where you just rinse it and condition, without the soap, because it is older hair now and not as oily a scalp as before, and that's all it needs. There is a hair care forum called the long hair forum, which has a lot of hair care threads that talk about natural hair care stuff. Some shampoos and most commercial conditioners really make me itch miserably, I have sensitive skin and don't want to use a lot of chemical junk on it, nor do I want gluten in the conditioner as I tend to finger my hair a lot without thinking.

I still drive with the windows down, but at least a baseball cap now keeps it out of my eyes.

MelindaLee Contributor

My texture hasn't changed, but it is the healthiest it has been in years!

YoloGx Rookie

So what is wrong with a little curly? It means your body is healing and taking in more of the minerals it needs due to your improved diet without the gluten toxins it can't handle. Your nails, teeth, tendons and bones are probably getting a little stronger too.

I have always had a lot of very fine hair. It was always straight and a lot would fall into the sink when I would comb or brush it. I thought that was normal!

After I became completely gluten free my hair has become wavy and has actual body. I no longer get tons of strands coming out when I comb and brush my hair. If my hair is cut short its a lot curlier. To me it seems a minor, unexpected and very appreciated miracle.

Bea

AZGirl Rookie

I have actually been going through a traumatic event with my hair just lately. I have always had very thick, fine hair, but recently it has been falling out, dramatically. I was cleaning the drain after every shower and then cleaning the sink. At first, it didn't really bother me, but then I noticed it was getting thinner around my face. When I pull it back in a pony tail you can see my head!!! The texture has also changed dramatically. I went to my stylist for a cut and told her about it falling out. She didn't really react until she put her hands in my hair. She told me that I had lost 1/3 to 1/2 of my hair and the texture was very dry. I definitely feel it is dry and very frizzy. She started me using a special shampoo with specific direction to not wash my hair everyday.

It stopped falling out almost as dramatically as it started and I have no answer as to why. My theories are: hypothyroidism, I stopped taking birth control pills and I have read that sometimes after a few months going gluten free you can shed some hair for a period.

I recently saw my endocrinologist and he assured me that it is growing back in. He is testing me for hypothyroidism, vitamin deficiency and hormone levels. I don't know what else, but that is where we're starting.

I did start taking Biotin immediately when hair started falling out and that may have made a significant impact on my hair growing back in so fast.

I hope my experience helps you a little. I should mention there were a few others new symptoms at the same time as my hair falling out, so it is likely related to something other than gluten. We'll see.

Good luck, I hope you're hair texture turns into something you can manage and enjoy. :)

Best Wishes.

lynnelise Apprentice

My hair has been awful for years! It's always been very fine but a few years ago it started shedding and breaking off really bad. It was so bad I was starting to seriously thing about what I would do if I went bald!

I stopped eating gluten in November of 2009 and I am cautiously optimistic that it may (fingers crossed) be growing back in properly! I notice that when I pull it back in a ponytail I don't have to carefully arrange it so little peeks of my scalp aren't showing. Also the ponytail part feels a bit thicker. There are some short hairs around my hairline where I think breakage is growing back. I've never seen that happen before so I'm hopeful.

As to the curly hair, I have a friend with spina bifida. As kids we both had straight hair. She had back surgery when she was in her teens and her hair grew in so curly it was literally unmanageable! Two years ago she had another back surgery and now her hair is straight again! The human body is a really funny thing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Loey Rising Star

I have actually been going through a traumatic event with my hair just lately. I have always had very thick, fine hair, but recently it has been falling out, dramatically. I was cleaning the drain after every shower and then cleaning the sink. At first, it didn't really bother me, but then I noticed it was getting thinner around my face. When I pull it back in a pony tail you can see my head!!! The texture has also changed dramatically. I went to my stylist for a cut and told her about it falling out. She didn't really react until she put her hands in my hair. She told me that I had lost 1/3 to 1/2 of my hair and the texture was very dry. I definitely feel it is dry and very frizzy. She started me using a special shampoo with specific direction to not wash my hair everyday.

It stopped falling out almost as dramatically as it started and I have no answer as to why. My theories are: hypothyroidism, I stopped taking birth control pills and I have read that sometimes after a few months going gluten free you can shed some hair for a period.

I recently saw my endocrinologist and he assured me that it is growing back in. He is testing me for hypothyroidism, vitamin deficiency and hormone levels. I don't know what else, but that is where we're starting.

I did start taking Biotin immediately when hair started falling out and that may have made a significant impact on my hair growing back in so fast.

I hope my experience helps you a little. I should mention there were a few others new symptoms at the same time as my hair falling out, so it is likely related to something other than gluten. We'll see.

Good luck, I hope you're hair texture turns into something you can manage and enjoy. :)

Best Wishes.

I've had thin hair since I was 18 but it is falling out a lot more now. I don't wash it every day and use gluten-free hair products. I remember when I was growing up my mother would go to the beauty parlor once a week and not wash her hair. She'd just pin curl it at night until the next appointment. I think al of the years of blow drying and curling my hair haven't helped plus one of the auto immune illnesses related to celiac is hair loss. I've actually been considering a wig for when we go to a party. I'm having my thyroid tested in a few weeks.

God luck to everyone. I've always wanted thick hair.

Loey smile.gif

MariaOfColumbia Rookie

I've had slightly wavy light brown hair all my life. After 5 months off gluten (except for accidental exposures) the new hairs on the top of my head are coming in dark, thick and twisty like cork screws! They won't smooth down to meld with the rest of the long wavy hair. The rest of my hair is very long, so I'm kind of worried that I'll have to cut it and let the short twisty stuff be the new texture of my hair.

I like having hair past my waist. I don't want to cut it just because the new hairs are so different, but as more and more wirey stuff comes in, I may have to. Or put up with looking like a clown with a cloud of wirey dark hair on the top of my head and long wavy light brown stuff hanging down beneath.

I've been using anti frizz shampoo for several months now, but the new hairs seem to be immune to anti-frizz technology. Sproing! Like corkscrews.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748

    Gabs
    Newest Member
    Gabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.