Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Of You With Soy Allergy...

Free-CountryGirl

Recommended Posts

Free-CountryGirl Apprentice
Free-CountryGirl
Posted

does soy lecithin and soybean oil bother you? I was pretty sure I had read somewhere that soybean oil and lecithin are NOT suppose to bother people with soy allergy, but I am sure both bothers me. Maybe I am wrong, and that soybean oil is also bad?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kwylee Apprentice
kwylee
Posted

Soybean oil absolutely makes me dizzy within 10 minutes of ingestion. I do not have an allergy to soy, just intolerant because of the gluten/casein/soy connection.

mushroom Proficient
mushroom
Posted

I can now handle the soy lecithin (in chocolate - maybe that's why :P ) but not the soy bean oil.

Free-CountryGirl Apprentice
Free-CountryGirl
Posted
  • Author

huh, interesting. You know I think the thing I'v learned the most is: nothing is absolute. What works for one person doesn't always work with the next.

jerseyangel Proficient
jerseyangel
Posted

Lecithin doesn't bother me, I can tolerate the oil once in a while but not too many times in a row.

kayo Explorer
kayo
Posted

I can have the oil once in a while and not too much. I do my best to avoid it. I'm not sure if lecithin bothers me or not because I avoid it too. Chocolate gives me major heartburn and that's the only thing that I see soy lecithin in alone that I could try for an experiment.

eatmeat4good Enthusiast
eatmeat4good
Posted

Soy oil bothers me and I avoid it like the plague, but I refuse to give up chocolate...so I say that I can tolerate lecithin!

I don't know for sure, but that's my story for now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Soy oil bothers me and I avoid it like the plague, but I refuse to give up chocolate...so I say that I can tolerate lecithin!

I don't know for sure, but that's my story for now.

HaHa!!!! You sound like me; wouldn't touch the oil but walk through fire for chocolate! :lol:

bridgetm Enthusiast
bridgetm
Posted

I absolutely avoid the oil. Just a few Tostitos will give me that stabbing pain. I will occasionally allow small amounts of the lecithin, usually only for the sake of convenience. I drank those Boost protein shakes every day when I first went gluten-free but had to drop them because of the soy lecithin.

As for chocolate... Enjoy Life make allergen free bars called Boom Choca Boom. They make milk and dark. The dark tastes more like real chocolate... the milk tastes like a really cheap hollow Easter bunny :(

Ghiradelli is also an option: the higher the cocoa percentage, the lower the amount of other ingredients. I stick to 80+%.

mushroom Proficient
mushroom
Posted

Ghiradelli is also an option: the higher the cocoa percentage, the lower the amount of other ingredients. I stick to 80+%.

I don't get Boom Choca Boom here but I do eat Lindt 70% which has no soy lecithin. Never eat anything under 70% because those are the ones that require the emulsifiers. But even some of the higher cocoa percentages do have soy lecithin and I have been known to indulge. However, there was a hug box of chocolates passed around several times at our opening night of bridge for the year last night, and I resisted!! ( :( cosI didn't know about the gluten, mainly). Looking forward to trying Boom Choca Boom in June, and getting back to Ghiradelli which I used to eat long before gluten free :D

eatmeat4good Enthusiast
eatmeat4good
Posted

Mushroom, I love it when you like my jokes.

You laughed at My Grain Headaches :rolleyes:

and now about Chocolate! :D

That makes me happy cause like...um...I been in bed with this disease for 7 years and haven't made anybody smile, and I certainly wasn't smiling either. <_<

Thanks for making me smile.

And thanks everyone for the chocolate information!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748
    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.