Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sore Throat As A First Sign Of Glutening


Marz

Recommended Posts

Marz Enthusiast

So a few times in the last couple of weeks I've been getting adventurous with my food - trying new brands etc. When something didn't agree with me, the first sign I've noticed is a sore throat, like a mild burning sensation. This happened with :

* Gino Ginelli ice cream both times I had it ( Unilever brand, no wheat listed, no gluten warnings, only "modified starches" which should be non-wheat, and "glucose syrup")

* Nestle ice cream (Again no gluten mentioned, no warnings)

* Orgran gluten-free biscuits

After the sore throat is a sore stomach, and then d a few hours later, anxiety etc etc. Note I don't get this for other types of ice-cream, like store-bought no-name-brand chocolate ice-cream, or my own home-made biscuits so it's not lactose upsetting my stomach.

What I really hate is that these are supposedly "gluten free" items, no warnings listed. I can only guess there's some cross contamination with the product or in the original ingredients.

I thought the sore throat is interesting though, makes an early warning system for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

So a few times in the last couple of weeks I've been getting adventurous with my food - trying new brands etc. When something didn't agree with me, the first sign I've noticed is a sore throat, like a mild burning sensation. This happened with :

* Gino Ginelli ice cream both times I had it ( Unilever brand, no wheat listed, no gluten warnings, only "modified starches" which should be non-wheat, and "glucose syrup")

* Nestle ice cream (Again no gluten mentioned, no warnings)

* Orgran gluten-free biscuits

After the sore throat is a sore stomach, and then d a few hours later, anxiety etc etc. Note I don't get this for other types of ice-cream, like store-bought no-name-brand chocolate ice-cream, or my own home-made biscuits so it's not lactose upsetting my stomach.

What I really hate is that these are supposedly "gluten free" items, no warnings listed. I can only guess there's some cross contamination with the product or in the original ingredients.

I thought the sore throat is interesting though, makes an early warning system for me.

Hi Marz!!

I have had a sore, scratchy throat and "burny" mouth/tongue for almost 2 years. Like all my other symptoms, no one could explain it to me :angry:

I definitely tie it to the gluten.Even drinking club soda hurt going down. :blink: At times, I felt like it would close right up.

It had started to subside, along with the D and anxiety, etc... (I am gluten-free 5 weeks) and then, last week, I was glutened somehow and until I read your post this morning I could not, for the life of me, figure it out as I am very careful.

I ate ORGRAN animal crackers!!

I have wondered if anyone else had this burny throat symptom. Sorry you get it, because it is uncomfortable, but glad to know I am not alone and that someday, it will subside for good as I remain gluten-free.

Thanks a million for posting this! It was a mystery that had me sick for several days and completely discouraged and baffled.

And, the Orgran crackers are in the trash.... ;) they weren't that tasty anyway. :P

Looking for answers Contributor

Yes, I get this too. I also get it with dairy items though. Have you considered a secondary intolerance or food allergy?

Marlie Apprentice

We're eating gluten free for our teen, and last night my husband ordered veal piccata. He hasn't eaten any wheat for two months and his throat became very sore and his nose completely congested. Anyway he won't be doing that again.

cassP Contributor

i never had the burning- but wheat & gluten & SUGAR always make me feel like im about to be getting a sore throat. wheat always gave me post nasal drip... (always congested me more than dairy)... and sugar always gave me that "im getting sick" feeling... many times i would be like: am i REALLY getting sick? or is it just too much sugar?

Mama Melissa Enthusiast

Yes i also get a dry feeling in my nose and throat,lower back pain and tirednesss.I myself am strict gluten free but venturing out trying other brands as long as it dosen't have any gluten ingridients its safe to eat.At first i was worried about eating this n that and if it didnt say gluten free right on the package i wouldnt eat it. But i now am just following the diet guidlines if gluten isnt in the ingriedients you can have it, i also follow sanitary guidlines to try to prevent cc.But i def dont worry about cc as much as i used to im trying to enjoy life as much as possible and almost all of my stomach troubles have went totally away which is a GREAT THING!

adab8ca Enthusiast

ohmygosh!

i had a sore throat for months and a burning tongue and just realized right now that my tongue feels normal and my throat doesn't hurt!

i am just over 5 months gluten-free...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marz Enthusiast

Yes, I get this too. I also get it with dairy items though. Have you considered a secondary intolerance or food allergy?

I know I'm sensitive to dairy - in that if I eat a lot I'm going to feel a bit ill :P But if I eat small amounts of no-name brand ice cream I feel fine. It might also be the combination of lots of sugar + dairy, the Gino Ginelli was *very* rich.

Marz Enthusiast

I definitely tie it to the gluten.Even drinking club soda hurt going down. :blink: At times, I felt like it would close right up.

Yup, have had that feeling before :P

I ate ORGRAN animal crackers!!

I'm glad I helped solve the mystery for you! :D The biscuits for me was definitely not pleasant. Times like these I wish I had gluten test strips, so I could check it, and send to them with a big angry letter of complaint. As it is, I'm just guessing, but my gut tells me I'm right ;)

And, the Orgran crackers are in the trash.... ;) they weren't that tasty anyway. :P

Hehe, they aren't that great and they cost a fortune! :P Strangely enough, the Orgran gluten-free flour (white flour) seems to be ok - I've made biscuits from them before and I was fine. What ingredients do those crackers have - does it include Sorghum or pea flour? I think their plain rice/corn/potato starch flour mix is OK, but the other flours might have small amounts of CC from when it's originally harvested/milled.

Marz Enthusiast

wheat always gave me post nasal drip... (always congested me more than dairy)...

Both my dad and I suffer from post nasal drip. It's become a *lot* better gluten-free. I also used to get that "I'm getting sick" feeling from eating lots of chocolate, but it might have been gluten-containing chocolate, so maybe the dairy + gluten combination was killing me. I used to think the post nasal drip was worse after eating dairy, but now it seems to be fine after 6 months gluten-free :)

ohmygosh!

i had a sore throat for months and a burning tongue and just realized right now that my tongue feels normal and my throat doesn't hurt!

Nice!! I used to get frequent "throat infections", sinus infections, mild sore throats with no explanation. I also didn't realise they were gone until now when I noticed the sudden sore throat.

Thanks for all the responses! :)

T.H. Community Regular

Times like these I wish I had gluten test strips, so I could check it, and send to them with a big angry letter of complaint. As it is, I'm just guessing, but my gut tells me I'm right ;)

I keep meaning to buy them now, too.

Open Original Shared Link

Wish they were cheaper!

IrishHeart Veteran

Yes, I get this too. I also get it with dairy items though. Have you considered a secondary intolerance or food allergy?

Yes! I had the IgG food panel done last year. Showed SOY as "severe". That was the only food that registered as a problem. I do not eat any dairy either as my doctor suggested I remove it when I went gluten-free.

If something else is bothering me, I'll be darned if I can figure it out. Some have suggested I wait a while as I am only gluten-free 5 weeks and see what resolves in time. I don't know. I am tired of feeling sick and in a "histamine"- type response all the time. I had ELISA testing and environmental allergy testing...NEGATIVE for everything! so, I am very confused by this continued ill feeling.

Any thoughts appreciated! Thanks!

IrishHeart Veteran

ohmygosh!

i had a sore throat for months and a burning tongue and just realized right now that my tongue feels normal and my throat doesn't hurt!

i am just over 5 months gluten-free...

WOW!! that's great!!THIS GIVES ME enormous HOPE!! Thank you for sharing this. mY mouth, tongue and throat have been burning since July '09 and it makes me cry.

Every time I read a post by someone on here who had my symptoms and they WENT AWAY, I am encouraged more and more...!! :)

IrishHeart Veteran

What ingredients do those ORGRAN crackers have - does it include Sorghum or pea flour?

I don't know. I got so mad, I threw out the package :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748

    cbattiato
    Newest Member
    cbattiato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.