Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yay, Doc Didn' Think I Was A Nut Job!


norahsmommy

Recommended Posts

norahsmommy Enthusiast

We have had trouble with our youngest daughters tummy and intestines since we started solids basically. I did an elimination diet 3 times when she was 9-10 months old and we discovered when we eliminated gluten products she got better. She has been gluten free since then and things have been better but not perfect. We discovered other foods also cause her problems. Soy, dairy, anything with dha in it and possibly corn. She is 16 months old now and we just had her 15 month well check. She had been to the doc a month before because she was so very constipated she was going 10 days without a poop. She got put on stool softeners and I was told to increase her fluids by a doc. Even with the stool softeners she was only going once every 5 days and that was WITH a suppository to make her go. Anyway at her well check I was talking about her diet and problems we were having and have had with her pedi. I haven't seen this doc since she was 9 months old, always the other docs in the practice. The first thing he said was "you know, celiac disease is alot more common than people realize. She is gluten free now so you can't do the antibody test yet, but call me when you want to get her tested and we will keep track of how she does on the gluten diet and I will order the test for you so you can get results as fast as possible when she is done preparing." I just about kissed him! The other doc just kept telling me to increase her fluids and give her larger doses of the stool softener and to give her a suppository every 2 days. Right. I did discover that her poop problems lately (that sent us to the doc a month ago) were due to corn chex. Either it was contaminated with gluten or she has a problem with corn. I am not sure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MacieMay Explorer

Congratulations! It's a good feeling when you know you have someone on your side. I've been there! Here's hoping all your questions get answered!! Good luck! :)

kareng Grand Master

:P

I just about kissed him!

Good thing you didn't. He might have eaten a whole wheat bread sandwich and glutened you! :P

Great to find a doc that seems to know what he's doing.

Cypressmyst Explorer

:lol: Norahsmommy the title made me laugh. Sometimes it's the little things in this battle. :P

Glad you have an understanding Doc. Now you just have to be sure they are up on all the latest research. :) There is no need to gluten your child when you know gluten is the problem. She has responded positively to a gluten-free diet and that is proof positive, far more accurate than any other test we have currently.

Check out Dr. Vikki's recent post on the subject for the latest research to that effect:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,115
    • Most Online (within 30 mins)
      7,748

    izzy721067
    Newest Member
    izzy721067
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.