Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kidney Problems?

scuzy

Recommended Posts

scuzy Rookie
scuzy
Posted

Hello,

I have self diagnosed myself with Celiac Disease back in August. I have been feeling sooooo much better since I have been gluten free. It took me about two years to figure out that I had Celiac Disease and am wondering what kind of damage could I have done to my body within those two years of horrible symptoms.

Before I went gluten free I would get these really sharp pains in my lower right back (the doc says the kidneys). I noticed that when I went gluten free they almost went away. I also noticed if I were to get one of those painful episodes it was always around if I got glutened by something. So since I don't have health insurance I never went to the doctor for it. I finally went the other day because I had a really really really ext... painful episode for about 5 hours. The doctor felt around and said that he felt a mass on my right kidney and he also found blood in my urine. I had a CT scan today and the doctor called me to tell me he was stumped. Everything came back fine, there was nothing abnormal about the scan, he has no idea what is wrong with me. I mentioned to him I believe I have Celiac Disease so he said that it could be causing pain and that when my insurance starts next month to go to a Gastroenterologist. So my question to everyone is... Does anyone know if Celiac can cause kidney problems? And how would the doctor figure it out if I am gluten free? I would hope he wouldn't have to gluten me to figure it out...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to be gluten free.

scuzy Rookie
scuzy
Posted
  • Author

I have the same issues with the kidneys that you describe. As long as I stay away from gluten I am pain and bleeding free. Can't say it will be the same for you. If you want a diagnosis of celiac from the GI you need to go back on gluten for a couple of months. If you just can't stand the pain of that then keep in mind we don't need a doctors permission to be gluten free.

True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

True. But is it possible that the gluten has damaged them somehow? And that it could have caused some other medical condition that we should know about? I mean kidneys are very important. :)

If you are continueing to have pain and blood in your urine and possible problems with your kidney that are concerning you then it might be a good idea to see a nephrologist. They specialize in kidney issues. If your symptoms have been relieved with the diet then IMHO it would be counterproductive to gluten yourself for the 2 or 3 months it would take to see a GI and possibly end up still with a false negative on celiac testing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...