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Has Anyone Here Been Diagnosed With Microscopic Colitis?

Bis-quit

By Bis-quit
in Related Issues & Disorders

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Bis-quit Rookie
Bis-quit
Posted

Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment.

I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?

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cyberprof Enthusiast
cyberprof
Posted

Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment.

I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?

Yes, there are a few around. Jerseygirl is one that I remember. Hopefully, they'll show up to answer the question. Or you could do a search and then send members Personal Messages with questions.

willabec Contributor
willabec
Posted

Yes, there are a few around. Jerseygirl is one that I remember. Hopefully, they'll show up to answer the question. Or you could do a search and then send members Personal Messages with questions.

what are your symptoms? i have both celiac and mc.....was on prednisone for a brief period (15 days) that helped a little, then tried entocort, things were ok but not as i had hoped, now on entocort and asacol at the same time...things possibly a little better...just started the new treatment about 2 weeks ago, so it may be too early to tell....some meds take a while to work, if they are going to.....

Dixiebell Contributor
Dixiebell
Posted

Does Microscopic Colitis heal or go away? I am asking because my G-mom says she had this years ago and said it was awful.

willabec Contributor
willabec
Posted

Does Microscopic Colitis heal or go away? I am asking because my G-mom says she had this years ago and said it was awful.

it does not go away it can go into remission though...can be days, weeks, months or even years but it can come back in the blink of an eye....i still have not had remission, although i just got diagnosed with it in november......

newgfcali Rookie
newgfcali
Posted

Yep, I have gluten intolerance and had it under control with diet for many months. Then I started having symptoms again and my gastro found that I also had microscopic colitis. Went on a regimen of Asacol for one month and that cleared it up. No recurrences since then, and it's been nearly a year. However, mc means no more NSAID's or aspirin products EVER again. So if you're in pain, Tylenol is your only option.

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      Terrible Neurological Symptoms

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      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
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