Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Has Anyone Here Been Diagnosed With Microscopic Colitis?

Bis-quit

By Bis-quit
in Related Issues & Disorders

Recommended Posts

Bis-quit Rookie
Bis-quit
Posted

Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment.

I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

Hello everyone, I'm brand new to the board, I just now signed up. My name is Lori, I am married with 3 grown kids. I was diagnosed this past August with Microscopic Colitis, it can mimic Celiacs so they did test me for that as well. Fortunately I don't have celiac, but I still had to give up gluten as part of the treatment.

I'm just curious if anyone else here has been diagnosed with Microscopic Colitis, and if so, how is your treatment working? Were you able to get your symptoms under control?

Yes, there are a few around. Jerseygirl is one that I remember. Hopefully, they'll show up to answer the question. Or you could do a search and then send members Personal Messages with questions.

willabec Contributor
willabec
Posted

Yes, there are a few around. Jerseygirl is one that I remember. Hopefully, they'll show up to answer the question. Or you could do a search and then send members Personal Messages with questions.

what are your symptoms? i have both celiac and mc.....was on prednisone for a brief period (15 days) that helped a little, then tried entocort, things were ok but not as i had hoped, now on entocort and asacol at the same time...things possibly a little better...just started the new treatment about 2 weeks ago, so it may be too early to tell....some meds take a while to work, if they are going to.....

Dixiebell Contributor
Dixiebell
Posted

Does Microscopic Colitis heal or go away? I am asking because my G-mom says she had this years ago and said it was awful.

willabec Contributor
willabec
Posted

Does Microscopic Colitis heal or go away? I am asking because my G-mom says she had this years ago and said it was awful.

it does not go away it can go into remission though...can be days, weeks, months or even years but it can come back in the blink of an eye....i still have not had remission, although i just got diagnosed with it in november......

newgfcali Rookie
newgfcali
Posted

Yep, I have gluten intolerance and had it under control with diet for many months. Then I started having symptoms again and my gastro found that I also had microscopic colitis. Went on a regimen of Asacol for one month and that cleared it up. No recurrences since then, and it's been nearly a year. However, mc means no more NSAID's or aspirin products EVER again. So if you're in pain, Tylenol is your only option.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,119
    • Most Online (within 30 mins)
      10,442
    coeliacmamma
    Newest Member
    coeliacmamma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      New diagnosis

      By Russ H · Posted

      Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
    • Ginarwebb
      Test interpretations

      By Ginarwebb · Posted

      thank you so much for this information .. if I'm reading the results correctly I believe the range was  <15.0 Antibody not detected > or = 15.0 Antibody detected
    • coeliacmamma
      New diagnosis

      By coeliacmamma · Posted

      My 16 year old has just been diagnosed with coeliac, she loves food and is now struggling with the diet. She has a variety of different co editions and thos one just tops the list, she is a musical theatre student at college and loves what she does but fatigue gets in way alot of the time, are there any good amd tasty meals I can k make that will help?  Thanks for reading.
    • BelleDeJour
      Dermatitis Herpetiformis - follow up dermatology appointment coming up

      By BelleDeJour · Posted

      Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play it very much on the very safe side with food for the next few days.  My derm appointment is less than a week away. I will update on here because I do feel it important to help others. 
    • Scott Adams
      Skin issues

      By Scott Adams · Posted

      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
×
×
  • Create New...