Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About First Visit With Doctor


Menqet

Recommended Posts

Menqet Newbie

Hi everyone!

I am going to my doctor on Monday to see if I can get tested for celiac (and to have my hearing tested, too). I've been gluten-free for several days, and I feel great now! My husband thinks I'm nuts. My question right now is, should I start eating gluten again before my doctor's appointment? I'm not sure when/if he'll test me. The thought of going back to gluten freaks me out. I'm 36, married and have two amazing daughters. I see some symptoms in my youngest, which has prompted me to find answers.

Here's some of my history:

-symptoms from the past 4-5 years includes: psoriasis on both my index fingers, occasional diarrhea and stomach pain/cramping (not at all consistent, though), horrible memory, lack of concentration, depression, extreme fatigue, hair loss, migraines, weight gain (because I feel like I need to be eating constantly!) - all which is starting to go away with eating gluten-free

-some family history includes: brother that was diagnosed with schizophrenia (so horrible, it was the worst), aunt that was diagnosed with osteoporosis in her early 50's, diabetes. As for myself, I always had anemia (grandma used to dose me up pretty good with her Geritol!), discolored adult teeth, horrible growing pains.

I just don't know when to go back on gluten for testing. Should I wait to talk to him first?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi and welcome!!!

If you have been gluten free for "several days", it should not mess up your result as long as it's done in a timely manner. Yes, the optimum for testing would be a full diet of gluten.

I would request a full Celiac Panel ( I will include that at the end of this post). As well, request a full Metabolic Panel, to check on any deficiencies you may have.

Some PCP do not have the knowledge to interpret the result of the tests they order, so please request the result, so you have it.

*

Serologic Tests

1. EMA (Immunoglobulin A anti-endomysium antibodies)

2. AGA (IgA anti-gliadin antibodies) Some people do not produce IgA antibodies.

3. DGP (Deamidated gliadin peptide antibody)

4. tTGA (IgA anti-tissue transglutaminase)

Menqet Newbie

Thanks so much! I will definitely take that list with me to the visit.

I only started researching celiac this past week, so all of this is very new to me. If that's really what I have, then it certainly explains so much about my life. We'll just have to see what the test results say. Right now, everyone just thinks I'm crazy, and that I was just too bored being snowed in my house for a couple weeks. I really think that things came to a head during the snow storms, because everything we had to eat in the house had so much gluten in it. I felt so horrible! I normally naturally eat gluten free, anyway, so that hasn't been too much of a change for me. A cousin of my husband went through celiac testing, and she helped convince me to get tested.

Again, thanks for the list. I'm very excited that I found this forum!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

    2. - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

    3. - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

    4. - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,333
    • Most Online (within 30 mins)
      7,748

    BeitAryeh
    Newest Member
    BeitAryeh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...