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Newbie Dumb Question

lexusca

By lexusca
in Coping with Celiac Disease

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lexusca Rookie
lexusca
Posted

OK here it is, did anyone else feel worse when the wert gluten free. I was daignosed aweek ago have been gluten free since then. I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?

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eatmeat4good Enthusiast
eatmeat4good
Posted

Some people feel worse before they start to feel better.

Sometimes it is cross contamination you are not aware of.

Sometimes it is eating too many gluten free products that are processed.

Your stomach needs time to heal.

Eat mostly meat, chicken, fish, vegetables, fruits and nuts and see if you feel better.

Do have a separate toaster? Scratched pans? Gluten eaters in your home? Do you kiss someone who eats gluten? Including the dog? These are potential sources of contamination.

I hope you feel better soon. I had terrible nausea before I went gluten free. It cleared up after.

But many others have noticed that too.

Welcome!

I'm sure others here will have some good information for you.

Oh yeah, and secondary intolerances like dairy, soy, nightshades could be surfacing too.

kareng Grand Master
kareng
Posted

For me, maybe not you, but you can decide: I would get nauseous when I started worrying about " is the food gluten-free?". " OMG! Did I check the label?"

This was just psychological and went away, mostly. I still have panic moments but I stop & think. I'm thinking of putting " Don't Panic" in large reassuring letters on the front of my recipe book.

(Any Hitchhiking through the galaxy fans?)

psawyer Proficient
psawyer
Posted

(Any Hitchhiking through the galaxy fans?)

42.

kareng Grand Master
kareng
Posted

42.

I keep a towel with me at all times ( except in the shower).

T.H. Community Regular
T.H.
Posted
I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?

That was me, too. Never had nausea with eating, and then suddenly, I had it after going gluten free, within days.

For me, it turned out to be two things:

1 - I was more sensitive to gluten than average and reacted to many gluten free foods' level of gluten.

2 - Turns out I have food allergies and intolerances. No signs before this, no hives, no nothing. But after going gluten free, I started reacting to some other foods with headaches, or nausea, or a few other things. I had to drop my diet to very unprocessed foods - fruits, veggies, plain meat, etc... - and keep a food journal to get a start on finding these. Finally got allergy tests, but the food journal found the problem foods faster than I got the tests, and the tests actually pretty much confirmed much of what I'd found out with the journal. Some reactions that would include gas or inflammation of the intestines would then flare up every time I consumed something, for a few days following the 'bad' food.

Another problematic issue was that a couple of my allergies were foods that are in much higher concentrations in the processed gluten-free food.

Also...hmmm...have you been eating a lot of dairy or items with xanthan gum? Many celiacs are lactose intolerant until they heal. Also, a number of people are sensitive to xanthan gum and react with gut symptoms. That could be a problem. Again, sometimes those reactions pretty much wax and wane from the time the food goes in your belly until it comes out the other end (to be a bit too graphic).

mushroom Proficient
mushroom
Posted

Yes, many of us get symptoms we never had before after going gluten free. Many of these symptoms are intolerances to other foods that were masked previously by the body being overwhelmed by the gluten. Once the gluten load is relieved we are able to hear the other voices piping up, "What about me?" :)

These foods for me were mainly soy and nightshades, but everyone is different and every reaction is different. My other foods made me itch like crazy with red rashes itching and hives; you may have whatever kind of response your body uses to deal with such problems. (I have always been a skin reaction type person; that is why I have psoriasis :lol: )

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lexusca Rookie
lexusca
Posted
  • Author

tks for all the feedback makes me feel not so narotic. Dumb question 2 what the heckis nightshades I have never heard of it.

psawyer Proficient
psawyer
Posted

Nightshades are a plant family that includes potato, tomato, eggplant, tobacco, sweet pepper, and other plants.

MsCurious Enthusiast
MsCurious
Posted

Speaking of nightshades, if you're allergic to one or two for sure...are you allergic to the rest? Or is that a random thing too?

mushroom Proficient
mushroom
Posted

I don't risk it, except for a little cayenne pepper. and paprika Tomatoes and potatoes were definite positives for me, and I had always kinda avoided green peppers, I guess for a reason.. Lurved eggplant, but I cut them all out until I hope my leaky gut is healed and then I will try them again, starting with eggplant. Since I have RA it is just not worth it to me right now.

lexusca Rookie
lexusca
Posted
  • Author

tks for all the info. It is a steep learning curve which I am sure I am getting slowly but surely. You guys are a great resource and I am glad your out here for all of us newbies. I am sure before long I will be 1 of you all(being able to give good knowledgeable advice that is)

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
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      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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