Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Due To Gluten?


Punky5

Recommended Posts

Punky5 Newbie

Last June, I started taking antibiotics for acne (Solodyn to be specific), after 13 days I had a bad allergic reaction to it. Long story short the antibiotic also affected my stomach and intestinal flora, causing me gluten and lactose intolerance. I went to a naturopathic doctor who decided to put me on a gluten and lactose free diet and to take several supplements. The treatment really helped, but since I felt better I started eating all those "bad" foods again. Now, about 8 months later I started experiencing the same horrible symptoms (weakness, stomach pain, weird feeling on right arm). I decided to start the gluten and lactose free diet again and I've been feeling better.

My question is: could the pins and needles plus weakness sensation be due to a gluten allergy? When can I expect to feel completely ok? I've been only gluten free for a week.

I also went to the "regular" doctor, who ordered some blood tests. They all came back perfectly (liver and pancreatic function, blood sugar). The doctor suggested I should continue with the diet, since that is most likely the cause.

Thanks in advance for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You may want to try taking some sublinual B12 and see if that helps those tingles. We often can not utilize B12 from swallowed supplements and the sublingual will allow it to go right into your bloodstream from your oral mucus membranes. You might want to ask your doctor to check your vitamin and mineral levels to make sure you are not low on any.

It can take a while to heal, read as much as you can here and ask any questions you need to. I hope your feeling better soon.

123bree7797 Newbie

Last June, I started taking antibiotics for acne (Solodyn to be specific), after 13 days I had a bad allergic reaction to it. Long story short the antibiotic also affected my stomach and intestinal flora, causing me gluten and lactose intolerance. I went to a naturopathic doctor who decided to put me on a gluten and lactose free diet and to take several supplements. The treatment really helped, but since I felt better I started eating all those "bad" foods again. Now, about 8 months later I started experiencing the same horrible symptoms (weakness, stomach pain, weird feeling on right arm). I decided to start the gluten and lactose free diet again and I've been feeling better.

My question is: could the pins and needles plus weakness sensation be due to a gluten allergy? When can I expect to feel completely ok? I've been only gluten free for a week.

I also went to the "regular" doctor, who ordered some blood tests. They all came back perfectly (liver and pancreatic function, blood sugar). The doctor suggested I should continue with the diet, since that is most likely the cause.

Thanks in advance for any help!

I been on a gluten free diet for a year. I felt better in a month untell i got acid reflex desease now i dont fellthat grate anymore. it will probley get better for u though

Live Love Twillight Rookie

Last June, I started taking antibiotics for acne (Solodyn to be specific), after 13 days I had a bad allergic reaction to it. Long story short the antibiotic also affected my stomach and intestinal flora, causing me gluten and lactose intolerance. I went to a naturopathic doctor who decided to put me on a gluten and lactose free diet and to take several supplements. The treatment really helped, but since I felt better I started eating all those "bad" foods again. Now, about 8 months later I started experiencing the same horrible symptoms (weakness, stomach pain, weird feeling on right arm). I decided to start the gluten and lactose free diet again and I've been feeling better.

My question is: could the pins and needles plus weakness sensation be due to a gluten allergy? When can I expect to feel completely ok? I've been only gluten free for a week.

I also went to the "regular" doctor, who ordered some blood tests. They all came back perfectly (liver and pancreatic function, blood sugar). The doctor suggested I should continue with the diet, since that is most likely the cause.

Thanks in advance for any help!

You most likely have Celiac disease, and also a dairy-intolarnce. i would probably look up more info on both of the allegery, and also i know on Celiac, it never goes away, its an actual disease, and you cant just stop the diet. i dont know about your arm...there is no cure for Celiac, i know, its sux.....but i would take Docs advice, and continue the diet.

:wub: Love :wub:

  • 4 weeks later...
kellynolan82 Explorer

Most definitely sounds like coeliac disease. I had mouth ulcers and just looked awful. Parents were POISONING me with foods I hated and never liked. NOW I KNOW WHY I NEVER CARED FOR gluten-laden foods. I have never been a bread person and have never really been a food addict myself but accidental exposure is devastating. There needs to be s lot more advice with Doctors and Nurses, and the whole thing is sooo understudied! :angry:

  • 2 weeks later...
Eilidh Newbie

Hey,

All the symptoms you mentioned, including the pins and needles feeling, are symptoms of celiac disease. I suggest you Google celiac and see what other symptoms come up.

Also, the meds you were on couldn't have caused you to have an allergy... If you have the gene than it gets triggered by stressful or traumatic experiences. It sounds like you had the gene already and the antibiotics triggered it into effect.

It does suck, but it is better to follow the diet and feel good, then not and feel crappy all the time.

Hope you feel better soon!

MichaelJacksons#1Fan Newbie

Sounds like Celiac Disease to me. I know that I was constantly feeling that in my arms, then my legs. My doctor had no idea what was causing this though, she refused to test me for vitamin deficiencies, anemia or even Celiac Disease. :angry: I started a gluten-free diet because all doctors refused to test me and all my symptoms went away. I went to a different doctor told me if all my symptoms went away like that I have Celiac Disease. Now I no longer have the pins and needles but it did take close to a month to see a noticeable difference. :)

Hope this Helps!

MichaelJacksons#1Fan =D B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.