Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Little Worried...


Joni63

Recommended Posts

Joni63 Collaborator

Hello,

I started training for a sprint triathlon last year after 3 years being dx'd celiac. I knew I had an issue with dairy and caffiene, but never totally eliminated them. In the last 2 weeks I am having a lot more stomach pain, gas and bloating. I'm currently going through a lot of tests and am getting rescoped. Am starting an elimination diet tomorrow thanks to suggestions on another thread.

I ran my first 5k last Sept., then an 8k in Nov, and am signed up to do an 11k in April and my first sprint tri also in April. I was not able to do anything all week and this threw off my training schedule. I seem to go through good phases and then crashes. Wondering if I got myself in too deep as I'm also signed up for a 1/2 marathon in Oct(I actually won free entry for this one) and have some other races I plan on doing. I did see a nutritionist and had my vitamin levels checked. Everything was good, but still waiting on the serum ferritin result which was just done late thursday and has been low before. Not sure how much I can train if I don't start feeling better.

Anyone else training for events like this? Do you push through your bad times? How do you cope?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tictax707 Apprentice

Hi... I train for half and full ironmans. You definitely want to get a handle on the foods you can and can't have, but if you can train at all I would bet that you could do both races in april. There are bound to be ups and downs, but as long as you are really good about listening to your body (rest when you don't feel like training) I think it will work out. But, if you continue to feel bad you might want to postpone the events in April. When I was first diagnosed I was training for a marathon, and had to postpone that one for sure. The elimination diet should help - and hopefully you can at least improve in the next few weeks and feel up to training.

But bottom line still - if you don't feel up to training because you are tired or your stomach is upset - don't. The races can wait. Why make yourself miserable? Hope this helps...

Joni63 Collaborator

Thx Tictax! I admire you for being able to do full and half marathons - way to go! I'm curious - did you train for them before you were dx'd? How long have you done them?

I had always done some form of exercise, but this is pushing my body past what I have ever done. The longest I ran so far was the 8k. I did run 4 miles last week trying to build up to 7 for the 11k. I know I can't overtrain and increase my running by more than 10% each week (a rule I do abide by) because I will end up wiped out for weeks. I spaced it out so that after the two in April, my races are every other month in case I get wiped out. My goal is just to finish...I know I will never place in anything and I'm doing this just to have a goal to train for ,lol!

I also have a history of low serum ferritin...it was 7 when dx'd with Celiac 3 1/2 yrs ago. I went to a nutritionist and she put me on really high doseages of iron...blood checked and my iron levels were all high. I did feel so good at that time though! Now I have been off all iron supplements for almost a year and have been exercising pretty hard in that year. I just had blood drawn thursday to test it. I kind of think it may have dropped again as I don't absorb D either and have to take 5,000 units a day just to keep my level at 36! This could be another issue if it went low again.

Do you have any issues with vitamins absorption? Do you supplement with iron since your training must be quite intense?

tictax707 Apprentice

Why thank you! :) So, the good news is that I started the endurance distance stuff *after* I was diagnosed. I was diagnosed when I was in training for my first marathon ever. So I had to put that off for a year to focus on the diet, and then I went back and did the marathon. I switched to tris in 2006 and slowly worked my way from sprint/Olympic distance to half/full distance. I did my first ironman in 2009 and did another one last year. So really, not long. I too, do these things just to finish. I am not fast compared to the rest of the world. I love the training - the race is just a cool thing to do at the end. ;) You sound very smart about your training (sticking to the 10% rule) and that will serve you well!!

The funny thing about me is that one of the reasons that it took so long for me to get diagnosed is that although my villi were flat I had no vitamin deficiencies. (yeah, I know. Makes *no* sense). I do have vitamin D deficiency but i am working on that. It's hard to tell if it's from the celiac or the training, or maybe a combo of both. I tried the vit D supplements with tons and tons of vit D and they all gave me really bad gas, so I went back to my old calcium/vit D combo supplement. We'll check my levels in another 6 months or so to see if anything has changed...

Anyway - I think it's fantastic that you are getting into the races and tris. I do hope you like them. :) Which 1/2 marathon are you doing??

Joni63 Collaborator

Your giving me such hope! :) I really want to be able to keep up my training and love it so far. I am not fast either and I'm only 5' 1 1/2" tall so I can't keep up with some of those lean, tall athletes. I'm just happy to be seeing improvement in myself and I joined a wonderful women's group that is so active and supportive.

I know so many Celiacs have other deficiencies, but I only had D and serum ferritin. It's so wierd how everyone is affected so differently. Hopefully your old vitamin will make your levels increase. I know that can be frustrating! And if it works don't stop taking it because it will probably go back down as mine did. Just keep getting it checked periodically.

The 1/2 is the Atlantic City Marathon. I actually won free entry into it so that was my deciding factor to do it. I knew I could handle the 10k and wanted to push a litle harder so the 1/2 was perfect! How could I turn that down? :)

ElseB Contributor

I ran two marathons before I was diagnosed, but post diagnosis have scaled back to half marathons. I just don't have the same energy I had before diagnosis, nor do I feel consistently well enough to get through the training (weird, I know - I should feel better than I did before, but alas I don't!) Halfs are manageable. If I'm having a bad week, I might skip my runs or just go for short slow ones. I figure something is always better than nothing. More than pizza, more than beer, I miss the post race bagels!!!!

tictax707 Apprentice

Your giving me such hope! :) I really want to be able to keep up my training and love it so far. I am not fast either and I'm only 5' 1 1/2" tall so I can't keep up with some of those lean, tall athletes. I'm just happy to be seeing improvement in myself and I joined a wonderful women's group that is so active and supportive.

I know so many Celiacs have other deficiencies, but I only had D and serum ferritin. It's so wierd how everyone is affected so differently. Hopefully your old vitamin will make your levels increase. I know that can be frustrating! And if it works don't stop taking it because it will probably go back down as mine did. Just keep getting it checked periodically.

The 1/2 is the Atlantic City Marathon. I actually won free entry into it so that was my deciding factor to do it. I knew I could handle the 10k and wanted to push a litle harder so the 1/2 was perfect! How could I turn that down? :)

Yes - there is definitely hope! :) I'm 5'4" so I don't have long legs either. I think that is super cool that you joined a women's group for support. Congrats on the free entry! I will say it's fate helping you along. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator

Yes - there is definitely hope! :) I'm 5'4" so I don't have long legs either. I think that is super cool that you joined a women's group for support. Congrats on the free entry! I will say it's fate helping you along. ;)

LOL Helpme - post race bagels! I'd go for the beer right about now! Have you ever had your iron or vitamin levels checked? Low iron can really wipe you out. It's not part of the CBC, they are separate tests your doctor has to order. Just found out I have that problem again.

I also have diverticulitus!

But I'm doing my races if I have to go at a snail's pace! :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.