Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had To Laugh...


Guest imsohungry

Recommended Posts

Guest imsohungry

My hubby and I went to a local restaurant the other night...

I never really think of myself as a person with Celiac, Epilepsy, Lupus, etc. (I just quietly go about my business until one of my problems gets in the way). B)

So here I am last Friday, sitting in this restaurant...when I suddenly realize what it has taken to get my body "comfortable" and "accommodated."

1. I am in a booth with plenty of leg room due to my poor leg circulation and bad knee

2. The booth must be in a warm side of the restaurant or my Raynaud's is bothersome (so I'm sitting in my booth wearing a JACKET in JULY!) :rolleyes:

3. I must avoid cigarette smoke due to Multiple Chemical Sensitivity and have plenty to drink due to the Sjogren's.

4. The lighting in the restaurant and patterns on the table-top were making me "seizury" so my hubby and I had to cover the table with napkins in order to avoid a seizure. (I think our waiter thought I was germ-phobic) :blink:;)

5. The waiter comes to take my order, I reply, "I'll have a hamburger, plain, no bun. A potato, plain. And a side of vegetables with no seasonings. :P

And so, there I sat, sprawled out in my booth, wearing a jacket, sitting over a table covered in neatly folded white napkins, eating food that was special-ordered and self-seasoned. :rolleyes:

I just had to giggle. -Julie ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

I'm laughing now. I was cracking up about this the other day - somehow I still consider myself low maintenance!!! I used to laugh my head off when watching the movie "When Harry Met Sally" and she thought she was low maintenance, but he says she's the worst kind - she thinks she's low maintenance, but really she's high maintenance. Well, that's me, now.

I tell people I can't have gluten. Then they say ok, how about this? Then I have to say, oh wait, I can't have nightshades. Ok, how about this? Oh wait, I forgot to mention, I'm allergic to shellfish. Hmmmm. What else? Oh yeah, I avoid corn, don't eat much sugar, and can I read that label to see if it has MSG or citric acid on it?

By the way, I can't be in the sun too much, mold causes me problems, and caffeine and alcohol are also out. Sorry! Are you sure you still want me to come over? :)

Anyway, even with all that, I think I do pretty well. Of course I'm about 4 days away from finding out if I have a connective tissue disease on top of all this, but heck, that at least won't add any more food restrictions (except maybe alfalfa sprouts!) to my list so I'm ok with that! :D

Thanks for the post... I have been saying for the last week to anyone who rolls their eyes at me that I really hope they broke the mold after they made me...

Stephanie

PS at least I haven't had a migraine in a while! :)

Guest imsohungry
I was cracking up about this the other day - somehow I still consider myself low maintenance!!!

Hee, hee :P

Yeah, I know what you mean. I really don't think of myself as "high maintence" until I stand back and look at it all! I'm just an easy-going kind of person B)

Congrats on no recent migraines...I know from experience that everyday without one is a blessing! ;)

We gotta appreciate the irony of life! :rolleyes:

Merika Contributor
I tell people I can't have gluten. Then they say ok, how about this? Then I have to say, oh wait, I can't have nightshades. Ok, how about this? Oh wait, I forgot to mention, I'm allergic to shellfish. Hmmmm. What else? Oh yeah, I avoid corn, don't eat much sugar, and can I read that label to see if it has MSG or citric acid on it?

Stephanie,

Hahahahahaha, lol :D Same story here!

Merika

lgranott Rookie

Thats so funny, I can completely relate. At first I was just a vegetarian by choice. Never made a fuss and always found something to eat--still low maintenance...

Then I slowly (perhaps b/c I am slow, lol) realized that I couldn't do the dairy thing--ok, I could still consider myself lowish maintanace...

NOW!!!! No gluten???? No one wants me around when it comes to food:)

I just don't understand why--lol. I am still low maintenance, aren't I? I'm easy going about all of it--I just can't eat anything ;)

Talk about there being nothing to do but laugh at yourself...

I had all this energy!!!! So I went on a fast-paced bike ride, then a 5 mile run. Wow!!! Haven't been able to do that in a while. Realized at mile 4 1/2 that I had hardly eaten and was about to pass out:) oops. So I took my very shaky self to Whole Foods and went to the prepared foods (which I never do) and found something that I thought was gluten-free. It had tofu tomato and soy cheese--great! Took it home and shovelled it in my mouth. After swallowing 5 bites w/o even chewing I began to taste what I was eating... I wondered what the chewy thing was--AHHHHH!!!!! Noodles. I read the ingrediants 3 times, I don't know how I missed it:( I guess I was too hungry, I haven't done anything that stupid before... Well I had a little while before I knew I would have a reaction--so after panicking, I just laughed b/c there was nothing else I could do. So now on day two of my punishment--ouch!

Liatt

celiac3270 Collaborator

Ha...that's kind of funny, but in a twisted way :lol:

MySuicidalTurtle Enthusiast

Laughing about it is the best thing to do! It's a lot of things to do but at least you are out there doing them and being happy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

It's nice to be able to laugh at ourselves and also be able to go out and have fun at the same time ;)

jenvan Collaborator

I always say I'm high-maintenance in ways I can't choose--but in the ways that matter--like relationally, I am low maintenance--I don't get into fights, don't like 'drama' in relationships etc. So, at least we're not trying to be a pain in the butt like some people are--we can't help it when we're a pain !! :lol: lol !

Guest imsohungry
...So, at least we're not trying to be a pain in the butt like some people are--we can't help it when we're a pain !! :lol: lol !

HA! Very true. I work with a lady who is never happy with anything...when the office goes out for lunch, she complains about everything from the service and seating to the temperature of the food and the background noise. <_< (Needless to say, she is a pain in the butt...not to mention no fun...to eat with). :ph34r:;)

I may be "high maintenance," but at least I can still laugh about most things!

Just for the record Jen...I've don't get in fights either. :D

Julie (High maintenance; Low drama) B)

watkinson Apprentice

Hi everyone,

Just wanted to say how refeshing this thread is. :) I love how all of you have such great attitudes. Life may be a difficult at times but it's as good as we make it.....Life is great!!!! :D

Wendy

Guest gliX

haha that stories hilarious..

whenever i go out to eat i just say i'm allergic to bread and they seem to understand

it's easier than explaining celiac disease

whenever i get fast food they go crazy, call a manager over, and have no idea what i want, after i say "no bun." :unsure:

mouse Enthusiast

Also love this topic. I just about never get invited to anyone's home to eat as they are just to afraid to feed me. Had one couple invite us over last fall for a cookout and she made me a gluten-free chicken breast and a fantastic tossed salad. I really appreciated the extra effort she went through so that I could be part of the group. Have a sister-in-law who lives about 1 1/2 hours east of us and my husband had had them over last fall and he did the cooking on the grill - burned it all and started over. I was still to weak to do much cooking or entertainting. We all had a good laugh over his cooking skills. In 42 years of marriage he had never had to cook or grill and I have to give him all A's for his efforts. But, the same sister-in-law was suppose to be a fantastic cook and she invited us to their place. She emailed a list of all the ingredients and I felt like a fool, when I had to email her back with no or if OK, what brand she had to use. I was so embarrased by the time the dinner came around. But STUFF my embarrasment - THAT WAS THE BEST MEAL, I have had since my diagnosis in 2/04. Now if I can only get them to move nearer to us. HA HA. We generally meet friends at restaurents, unless I cook the meal. When we do get invited to cookouts (not sit down's) I just bring something I like and cook triple of it - that way everyone can try it and I still get to stuff myself. Also usually bring a gluten-free cake or brownies and chuckle inside when they all rave about the great brownies, etc. I figure if maybe they realize this is not a big deal, maybe I can get invited to actual dinners.

Guest imsohungry

Armetta and Wendy...nice to meet you! :) I don't think I've met ya'll before. Glad you are enjoying the thread... ;) I can't always find the humor in the health issues, but I try to laugh when I can! Keep smiling everyone. :D

Pegster Apprentice

We have to laugh when my family goes to a restaurant together. I, too, just say I'm allergic to bread or to flour so the waiters understand. But daughter #1 is allergic to cashews and pistachios and avoids cheese and creamy sauces. Daughter #2 has the peanut allergy. My husband eats everything so he tells the waiter to bring him MY BREAD, and everyone else's nuts, cheese, etc. on a plate. He doesn't want anything to go to waste! :D

KaitiUSA Enthusiast
We have to laugh when my family goes to a restaurant together.  I, too, just say I'm allergic to bread or to flour so the waiters understand.  But daughter #1 is allergic to cashews and pistachios and avoids cheese and creamy sauces.  Daughter #2 has the peanut allergy.  My husband eats everything so he tells the waiter to bring him MY BREAD, and everyone else's nuts, cheese, etc. on a plate.  He doesn't want anything to go to waste! :D

<{POST_SNAPBACK}>

HAHA thats great :lol::P My family would have probably dont the same thing...hey if your paying for it anyway you might as well get anything you can out of it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748

    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.