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Let them eat cake - Los Angeles Times


Scott Adams

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Los Angeles Times

A lifelong baker and cook, she baked whatever she wanted until 10 years ago, when her husband, Joseph, was diagnosed with celiac disease. Symptoms can range from abdominal pain, bloating and gas to osteoporosis, vitamin deficiencies and weight loss. ...

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    • trents
      There are plenty of people with celiac disease walking around who are largely asymptomatic. I was one of them. We call them "silent celiacs" They don't seem to have GI distress or maybe it's so minor and infrequent it's not really noticeable. They can be in that state for years until the damage to the villi progresses to a critical point or they begin to develop other health issues that they didn't understand were related to celiac disease. With me, I had very little GI distress but my liver enzymes were elevated. Took 13 years to get that run down and connected to celiac disease. Soon as I adopted the gluten free diet, the liver enzymes normalized. I am blessed that no permanent damage...
    • Shining My Light
      Hi @trents!    I feel like relying to a super star with as much of your content I’ve read. Lol.    I definitely don’t disagree with you but I think I’m so chicken about another EDG.  What do you think about the EMA-IgA test?  I’ve read so much at this point I don’t know if I trust anything completely. Even if everything said yes I would still wonder if it was really something else. It really does seem like the possibilities are endless with all of these tests, etc. and then I think I would be extremely frustrated if the EGD came back normal and then I would still struggle whether I should really be eating gluten or not.    i’m also wondering how many people I’ve had the same levels I’ve had and it not be celiac...
    • trents
      Welcome to the forum, @Shining My Light! It's good to be able to engage a secret "friend". I know you don't want to hear this, but with a positive tTG-IGA, a positive tTG-IGG and off and on GI distress, your next logical step would be to get an endoscopy done with a biopsy of the small bowel lining (duodenum and duodenum bulb) to check for villous atrophy, the hallmark of celiac disease. Sounds like you have had upper GIs done in the past but you do not specifically mention having been biopsied for villous atrophy. Without this step, you will not be able to pin things down and it will likely be difficult to stay on the gluten free bandwagon because of the human tendency to...
    • knitty kitty
      It's not rocket science, like @Scott Adams says!   My best advice is not to take Thiamine Mononitrate because the body doesn't absorb it well (only 30% is absorbed, less than that can be utilized).  Thiamine Mononitrate is used in many multivitamin supplements because it's cheap and shelf stable, meaning it won't break down in storage on a store shelf, or when exposed to heat or light.  This stability makes it fairly useless to the body, but lines the pockets of the manufacturer.   Use other forms if Thiamine Vitamin B1 like Thiamine Hydrochloride, or Benfotiamine, or TTFD (tetrahydrofurfuryl disulfide).  Benfotiamine has been scientifically shown to promote intestinal healing.  TTFD is...
    • ehb
      I'm also already struggling to get the motivation to eat because of the anxiety around food, not being able to eat the things that I am craving, and the amount of time and effort that goes into preparing every single meal, so I worry that increasing the restriction will just make it harder and harder to eat.  Thank you all for all the suggestions and listening to my concerns, it's helped me feel like there are more options and feel understood, at a time when I am feeling pretty hopeless and stuck. 
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