Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's The Biopsy Like?


Kailynsmom

Recommended Posts

Kailynsmom Apprentice

Hey, I was just wondering what to expect post biopsy? Recovery? Pain? Diet?

Also, anybody in Atlanta GA use Children's Digestive HEalth Care (at CHOA- scottish rite)- we use Dr. Cohen, but I've heard there is another dr that specialized in toddler celiac disease not far from him. I'm thinking about switching dr.s if she's dx.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

My experience was grogginess for a little while but no pain other than a very slight sore throat.

richard

flagbabyds Collaborator

It is one of the best surgeryies you can have because there is really no pain and really no big recovery. All of mine I have just been a little sleepy afterwards because of the anesthesia but it get better the next day because they surgery is so short they don't need to use much of it. You might have a sore throat for a couple of hours to like 2 days, but it really isn't that bad.

VydorScope Proficient
Hey, I was just wondering what to expect post biopsy? Recovery? Pain? Diet?

Also, anybody in Atlanta GA use Children's Digestive HEalth Care (at CHOA- scottish rite)- we use Dr. Cohen, but I've heard there is another dr that specialized in toddler celiac disease not far from him. I'm thinking about switching dr.s if she's dx.

My toddler son (22 months... I think :) ), and I , have both had the biposy, and its realy nothing to it. He might have a sore throat and be a little groggy afterwards, but thats about it.

celiac3270 Collaborator

No big deal...I've had it done twice. Don't worry about it ;):)

lisabp Newbie

My son (20 months old) had his biopsy one month ago. I was worried too and it indeed was nothing. Since he didn't have any appetite keeping him from eating was not a big task. The worst part was waiting to go into surgery and THEN having the IV in his hand after was driving him crazy. Have whatever clear liquids your daughter likes best ready after and I had a Wiggles movie and DVD player handy too. That settled him right down. Hold off on dairy for a few hours. I ended up giving tylenol right after the procedure and then one more dose. His voice was horse for about a day. A week after (gluten free) his attitude was totally better and now one month after he is eating like crazy and has 2 teeth coming in! The gals at daycare call him "the happiest baby in the world" and he really is. The biospy is the start of something great becauss then you can go gluten free and never look back. :D

JacobsMom Contributor

Jacob was alittle over 2 when he had the biopsy..and I worried for NOTHING...The longest part of the procedure was waiting to get him in....He was groggy afterwards but did just fine...It was alitt funny to be honest...He wanted to get up and was like a DRUNK...

You have nothing to worry about at all!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
momofaceliacdaughter Newbie
Hey, I was just wondering what to expect post biopsy? Recovery? Pain? Diet?

Also, anybody in Atlanta GA use Children's Digestive HEalth Care (at CHOA- scottish rite)- we use Dr. Cohen, but I've heard there is another dr that specialized in toddler celiac disease not far from him. I'm thinking about switching dr.s if she's dx.

<{POST_SNAPBACK}>

hi my daughter just had the biopsy done. i know it is scary but she was asleep and her throat hurt a little after it for a day or so. they put her out through her iv. she was in the recovery room just until she could drink and go to the bathroom. she had no pain and her diet didnt change much just clear liquids for 24 hours

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    731049
    Newest Member
    731049
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.