Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! My Son Got Glutened.

jsmjboertlein

Recommended Posts

jsmjboertlein Rookie
jsmjboertlein
Posted

My 5 year old's Celiac's is very severe. If he gets glutened we know because he has bleeding under his skin and he will vommit blood. So last night we went to a little kid's party. Parents were supposed to drop the kids and leave but I stayed because it's only his second party that I didn't throw since his dx and I wanted to be sure he ate safely. Well, he went to bed with a screaming tummy ache and has been restless all night. I feel like he's some how despite how careful I was, gotten glutened. I brought his own food to the party and his own cup. Then he was given these things which normally I never allow,(we normally just eat organic) but since it was a party and he hears "no" to sweets alllll the time, last night I said yes. This is what he ate, can anyone tell me where I screwed up?:

1 Starburst

1 sweettart

1 pack of smarties

1 mini tootsie roll

2 sandwhich snack bags of Trix cereal. They were the new revamped Trix. I know that's a lot of junk for one little guy, but like I said he hears "no" an awful lot and it was a special occassion.

O and he had a new kind of water from the health food store but it wasn't flavored. Not sure of the name, but it was just some sorta bottled water from France supposedly. It was in a dark blue bottle that my son said reminded him of beer or whine. LOL not sure if that helps. If anyone really needs the brand I can run down and dig it out of my recycle bin. Any help would be so so great!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kimmik95 Rookie
Kimmik95
Posted

I don't think the Trix are gluten-free. I looked quick online and there was something about them changing the ingredients so they are not gluten-free anymore. I know that my mom got Chris some Sweet Tarts for Valentine's Day and they had a label that they were processed in a facility that processes wheat.

I hope your son is feeling better soon. My son is fairly newly diagnosed (November) and has already been glutened once - it's heartbreaking. He's been complaining of leg cramps the last day or so (which was his inital complaint that led to the diagnosis), but I can't think of anything he ate that would have gluten in it, so I'm hoping it's actually growing pains this time!

My 5 year old's Celiac's is very severe. If he gets glutened we know because he has bleeding under his skin and he will vommit blood. So last night we went to a little kid's party. Parents were supposed to drop the kids and leave but I stayed because it's only his second party that I didn't throw since his dx and I wanted to be sure he ate safely. Well, he went to bed with a screaming tummy ache and has been restless all night. I feel like he's some how despite how careful I was, gotten glutened. I brought his own food to the party and his own cup. Then he was given these things which normally I never allow,(we normally just eat organic) but since it was a party and he hears "no" to sweets alllll the time, last night I said yes. This is what he ate, can anyone tell me where I screwed up?:

1 Starburst

1 sweettart

1 pack of smarties

1 mini tootsie roll

2 sandwhich snack bags of Trix cereal. They were the new revamped Trix. I know that's a lot of junk for one little guy, but like I said he hears "no" an awful lot and it was a special occassion.

O and he had a new kind of water from the health food store but it wasn't flavored. Not sure of the name, but it was just some sorta bottled water from France supposedly. It was in a dark blue bottle that my son said reminded him of beer or whine. LOL not sure if that helps. If anyone really needs the brand I can run down and dig it out of my recycle bin. Any help would be so so great!

jsmjboertlein Rookie
jsmjboertlein
Posted
  • Author

From what I've read, Trix are gluten free but not processed in a dedicated facility. I know my son reacts to cross contamination, so I guess this is what did it. He's had them in the past, though, and I don't recall him getting sick from them. I hate when this happens. I feel so guilty.

Roda Rising Star
Roda
Posted

My vote is on the Trix cereal. My youngest son (who is gluten free also) and I eat starburst, tootsie rolls and smarties without any problem. Starburst states gluten free on the lable Open Original Shared Link tootsie has a gluten statement Open Original Shared Link smarties claims they are gluten free Open Original Shared Link and for the sweetarts Wonka has this on their site Open Original Shared Link We have also eaten several wonka candies like nerds, laffy taffy and fun dip without trouble.

Now just because they state gluten free doesn't mean he didn't react to it since everyone's sensitivity varries. My first guess would be the trix since I didn't think it was gluten free, but he had so many new things at one time that would make it hard to pinpoint. As for the candy that is gluten free you could always let him try some at home and not add anything else to see if he reacts to it.

Roda Rising Star
Roda
Posted

From what I've read, Trix are gluten free but not processed in a dedicated facility. I know my son reacts to cross contamination, so I guess this is what did it. He's had them in the past, though, and I don't recall him getting sick from them. I hate when this happens. I feel so guilty.

Were the trix bagged up by someone else?

jsmjboertlein Rookie
jsmjboertlein
Posted
  • Author

No, I actually bagged the TRIX

concernedmamma Explorer
concernedmamma
Posted

Smarties are not gluten free. M&M's are. At least in Canada Smarties have wheat clearly declared in the ingredients.

I have no idea about everything else. Hugs. It hurts to see our kiddos in pain.

I just followed the link above for Smarties. Totally different from what I know is smarties. I was thinking of the 'other' candy coated chocolate.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Smarties are not gluten free. M&M's are. At least in Canada Smarties have wheat clearly declared in the ingredients.

I have no idea about everything else. Hugs. It hurts to see our kiddos in pain.

I just followed the link above for Smarties. Totally different from what I know is smarties. I was thinking of the 'other' candy coated chocolate.

Yep, from what I understand smarties in the US and Canada are two entirely different things. The link above is for smarties in the US and are gluten free.

Roda Rising Star
Roda
Posted

I hope your little man feels better soon. Accidents happen, so don't be so hard on yourself. It sounds like you do a good job!

Kimmik95 Rookie
Kimmik95
Posted

I read they've been reformulated and are no longer considered gluten-free. My son has had them in the past with no issue, but I will stay away from them after what I read.

From what I've read, Trix are gluten free but not processed in a dedicated facility. I know my son reacts to cross contamination, so I guess this is what did it. He's had them in the past, though, and I don't recall him getting sick from them. I hate when this happens. I feel so guilty.

jsmjboertlein Rookie
jsmjboertlein
Posted
  • Author

Thanks everyone. It was the dang Trix. Sigh. He's still recovering and it was well over a week ago. He's bleeding under his skin right now on his legs and super angry which is usually toward the end of his cycle. I feel so bad

psawyer Proficient
psawyer
Posted

In Canada, the candy called Smarties is candy-covered chocolate. They are similar to M&Ms, but unlike M&Ms they contain wheat.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...