Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis Help Please

DaveCZ

Recommended Posts

DaveCZ Newbie
DaveCZ
Posted

Hi all,

Have been visiting this site for a few weeks now and it has been very helpful and you all seem lovely.

Anyway my wife has had her blood tests done and we would like a little clarification / advice if possible. for the best part of 30 years (or should that be worst part?) she has had troubles on and off with her gut and prolonged periods of tiredness which we have repeatedly put down to various bugs, overwork etc..

A couple of years ago after a random conversation with a colleague she went gluten free although not strictly. After several months she had some blood tests and it came back tTG IgG 28U/ml. She was not diagnosed with Celiac but the doctor recommended going to a gastro specialist for further tests. We didn't for a number of reasons and the diet got less and less strict till it went.

We recently decided to re-investigate the gluten thing but a bit more thoroughly this time and she has now been to the gastro guy and had some tests done. These are the results:

Anti-Saccharomyces cerevisiae antibodies

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

imho... her ttg is for sure positive which i would assume and self diagnose her as celiac or AT THE VERY LEAST Gluten Intolerant.

her EMA was negative- but the EMA test is a very difficult one- has to be done by a skilled technician, and they can easily fudge it.

its of course up to you two- how to proceed with your doctor, if you really need the biopsy, etc.. but i think its obvious she has a problem with gluten. maybe she should just go on the diet... good luck.. i know its complicated

divamomma Enthusiast
divamomma
Posted

What CassP said :)

DaveCZ Newbie
DaveCZ
Posted
  • Author

Thanks for the info and opinions.

We figured the ttg was positive enough to need the diet. But I did not know the EmA could be done badly but I guess it probably does not matter.

However, any ideas on the ASCA test would be appreciated. What is it testing? What is normal and what does a result of 11 U/ml indicate?

Dixiebell Contributor
Dixiebell
Posted

ASCA tests for Inflammatory Bowel Disease (IBD)

Open Original Shared Link

Hope this helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748
    melindakathleen
    Newest Member
    melindakathleen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...