Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac disease And Attention Deficit Disorder


Luisa2552

Recommended Posts

Luisa2552 Apprentice

Hello all.

I am a 45 year old woman diagnosed with celiac disease 4 years ago. I have been happily living gluten free (with the occasional accidental glutening). Recently (after many years of struggling) my 11 year old daughter had been diagnosed with Attention Deficit Disorder. She and her older sister were screened for celiac disease but negative. They have never had and GI issues. I have read a lot about the celiac connection to ADD, but can this be her only symptom. Should I have her screened again or just go gluten-free? Because I do all the cooking, our house is mostly gluten-free, but her sandwich bread, cereals and such are not. These would be easy enough to change as there are so many gluten-free options out there now. In fact a local store/bakery is dedicated gluten-free!

Anyone have any experience with this?

Thanks so much,

Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Luisa2552 Apprentice

I see no one has replied but I still want to share my experience in case someone has a child in the same boat (especially with a family history of celiac disease/gluten intolerance). My daughter has been gluten-free for a week now and the difference in her is amazing. She is no longer a grouchy, irritable girl. She is happy and energetic and has not had a headache all week (used to get them fairly regularly....sometimes migraines). She says she's able to focus a bit better in class. She is behind in school so she has some catching up to do, bit being gluten-free and having an IEP at school to help her will get her back on track in no time. I don't need a blood test to tell me that my daughter in gluten intolerant.....

eatmeat4good Enthusiast

I'm sorry I missed your post. I'm so glad you tried the gluten free.

My son was ADD and that was his only symptom besides asthma and I didn't know gluten could do that. Both went away but until he had lived with them from 7 to age 16. If I had only known!

Thank you for posting how she is doing. I think it is wonderful and hope your story helps others too. My son's attention span and mood are both greatly improved and the asthma appears to be gone too.

Oh the things that gluten can do....I wish all parents knew.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.