Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bummed Out Six Year Old

hockeymomofceliacchild

Recommended Posts

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted

Just wanted to talk about something that happened this morning with my little guy. He's been gluten free for just over a month and quite happy and feeling a little "special" because of it. Maybe a little extra attention from mom and lots of new yummy foods. This morning I told him a package came in for him and he was really excited when I told him. But when I showed him the book "Mommy what is celiac?" I think he read the words gluten free on the bottom and threw it across the room saying he didn't like this book. :(

I know he could just be having a moment but I really think it was the whole new diet thing and bumming him out. He went to his room and started to cry. He wouldn't talk to me but he did say it was the book that upset him. I'm hoping tonight he cheers up as we make him his gluten free rice krispies that we are making for his whole class for his p.j day/ snuggle up and read day tomorrow.

I told him it was fine if he didn't like the book I'd just give it to his sister and I'm sure he'll listen in as I read it to her. lol

I'm sure there are others out there who have had to deal with kids who have gotten a bit down and out because of their new diet. Just looking for some ideas and ways to cheer him up and help him out.

He seems to think he is the ONLY one who has to eat this way and I'm sure by tonight he will be fine again but it breaks my heart and the thought of going away this weekend for his hockey tournament is a little worrisome for me. I'm going to pack all sorts of food and snacks just in case we have a hard time finding gluten free at the arena...I can just see it they will give them team pizza or hotdogs. :( oh well someday this will all be second nature to us.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Is that him in the picture ?

Irish warriors are not meant to eat Roman grains. B)

Mizzo Enthusiast
Mizzo
Posted

All new dx kids are sensitive, focus on the positive. After 1 year, 1 other kid my DD's age was recently diagnosed with Celiacs in her school. Now she KNOWS it exists outside our house.

On the really bright side , kuddo's to him for being able to read the words Gluten free at age 6.

eatmeat4good Enthusiast
eatmeat4good
Posted

Takala! You are hilarious!

That is just the sort of thing that will help him get over it!

When my son was 6 he fell and scraped both knees and was horrified that he had ruined his knees for good. I said, "Oh no! The skin grows back, but for now we just give them a name." He named them Rough and Tough. That made him feel good.

Much simpler issue than Celiac, but I like Takala's response. Tell him that and let us know what he says! It is very cute.

I think you handled it right to accept his anger and let him say he doesn't like the book. And brilliant again to say you would give it to his sister!

He is lucky to have such an understanding mom. He sounds like he is doing just great. Even with expressing his frustration with it all. Get it out and deal with it little guy. It sucks sometimes, but other times it is OK.

There will be challenges, but he will be able to navigate them with such an empathic mom!

Good job.

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted
  • Author

Is that him in the picture ?

Irish warriors are not meant to eat Roman grains. B)

Takala that is priceless! Yes that is him and my husband will certainly enjoy that when I tell him. My husband is half Irish and half Scottish :) Although I'm the one who claims the Irish desent and I'm a Heinz 57 lol

His name is Kaden Patrick which means welsh warrior ;)

I will be sure to tell him this. Thanks

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted
  • Author

All new dx kids are sensitive, focus on the positive. After 1 year, 1 other kid my DD's age was recently diagnosed with Celiacs in her school. Now she KNOWS it exists outside our house.

On the really bright side , kuddo's to him for being able to read the words Gluten free at age 6.

His reading has improved immensely this year, I was worried about his then something clicked and now he is way ahead.

He is learning all about gluten and letting everyone know he can't eat it. He still gets confused sometimes he looks at a label and says "that has a "g" on it I can't eat it" and I have to say "no sweetie that means grams..." lol

I am actually planning a gluten free taste testing party and inviting a bunch of people that I know have celiac. I figure this way he will see that he isn't the only one out there. He already thinks it is cool that him and uncle Kev get to be dinner buddies :)

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted
  • Author

Takala! You are hilarious!

That is just the sort of thing that will help him get over it!

When my son was 6 he fell and scraped both knees and was horrified that he had ruined his knees for good. I said, "Oh no! The skin grows back, but for now we just give them a name." He named them Rough and Tough. That made him feel good.

Much simpler issue than Celiac, but I like Takala's response. Tell him that and let us know what he says! It is very cute.

I think you handled it right to accept his anger and let him say he doesn't like the book. And brilliant again to say you would give it to his sister!

He is lucky to have such an understanding mom. He sounds like he is doing just great. Even with expressing his frustration with it all. Get it out and deal with it little guy. It sucks sometimes, but other times it is OK.

There will be challenges, but he will be able to navigate them with such an empathic mom!

Good job.

Thanks so much :) I have to admit that just waiting for my bloodwork is hard for me. Everytime I put something in my mouth I think sniff, sniff this could be the last time I eat this! LOL So I can imagine how hard it is for him and Im NOT on the diet and my not have to be. lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted

My daughter was 6 when she was diagnosed. She has allergies and not celiac. I bought her books about food allergies and she refused to have anything to do with them. I wound up donating them to the school when they were asking for books.

I don't really know why the books upset her so much. She does like it when we find gluten-free products in regular stores like the grocery store or Walmart or Target. I think she feels that these are regular products that anyone might eat. I think she dislikes the focus on "special" foods. But I'm just guessing.

cahill Collaborator
cahill
Posted

Yes that is him and my husband will certainly enjoy that when I tell him. My husband is half Irish and half Scottish :) Although I'm the one who claims the Irish desent and I'm a Heinz 57 lol

His name is Kaden Patrick which means welsh warrior ;)

I will be sure to tell him this. Thanks

I am actually planning a gluten free taste testing party and inviting a bunch of people that I know have celiac. I figure this way he will see that he isn't the only one out there. He already thinks it is cool that him and uncle Kev get to be dinner buddies :)

and a most handsome young lad he is :D

I think the taste testing party and introducing him to others that have celiacs is an excellent idea,,, Feeling as if you are the only one who has to deal with this is an awful ,lonely feeling. Helping him to establish a support system ( in addition to you and dad) is a wonderful thing :D

srall Contributor
srall
Posted

My daughter (7) went to a birthday party at McDonald's the other night, with her own food. Before that the girls had been at the swimming pool, and I think because my daughter was the only one who didn't go to the birthday girl's school, she was already being teased and bullied a little bit at the pool. (I stayed so I was witness to this). And then to have to drive her to McD's with her own "special" food almost made us just go home. But on the way we talked about downplaying it (I am also gluten free so I've learned the fine art of downplaying eating) so she mostly just played in the playhouse and nibbled on a muffin, then ran off to play again. We bought her dad a happy meal so she could also have a toy.

Just from the aspect of knowing that kids might be teased for this just breaks my heart. It's already hard enough to forego all the foods too. But I tell myself and my daughter when she will listen, that by growing up eating only the healthiest foods she will feel better, look better, stay slender, have whiter teeth and bouncier hair. (Although your son already has fantastic hair). I guess like us, kids learn that the trade off for eating this way is feeling great as opposed to feeling awful all the time. I wish you luck with her your son. It's tough.

divamomma Enthusiast
divamomma
Posted

Funny, my daughter did the same thing with the same book! i knew she was feeling sad about having celiac disease and what it entails. I go to a support group and have lots of internet resources that help me, she has nothing. I ordered the book thinking yay, it will be aimed at kids and she can relate. Nope! It came in the mail and she wanted nothing to do with it! My older daughter read it (which is also helpful) but the daughter with celiac hid the book on her shelf and wants nothing to do with it.

I think it is hard for kids as they don't have anything for celiac kids. No support groups, no playgroups etc. It is also tough as kids are different ages and require differnt things. I find what has helped is taking the focus off of food. Letting her have lots of yummy things to eat so she doesn't feel deprived. ALso, focusing on what she CAN still have is helpful. Not only for her but for me as well.

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted
  • Author

Thanks everyone :)

It was a hard weekend for us at a hockey tournament with all his team. We felt like we were being anti-social all the time because we had to go eat at a different restaurant (steak and potatoes at the hotels restaurant downstairs) while the kids were in the pool and then having a pizza party after. It didn't seem to bother my son in the least we went to the pool after ourselves and we had lots of snacks for him for the room and at the arena. I think it was harder on me then him. lol A few times his friends tried to share donuts etc with him because he didn't have any. But he had a ton of other goodies to eat. It is hard for them to understand it but thankfully no one teased him about it.

The book still sits there but at least my husband read some info on the subject! LOL It seems I am the only one doing research so it was nice he had some information to read. lol

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.