Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just When I Thought I Had This Figured Out.


jeannieknits

Recommended Posts

jeannieknits Rookie

I posted a previous thread a while ago regarding bowel issues (link)

and just when I was getting 'regular' I seem to be reacting to foods that I was 'fine' with before.

here's what I ate the past two days that has resulted in massive bowel cramping;

sunday:

brunch--

2 eggs fried in soy butter

hash browns cooked in veg oil

bacon

oj

coffee, black

snack--

smoothie from robeks;

pina koolada flavor

dinner--

two slices gluten free toast with jif extra crunchy peanut butter

(misery)

monday:

breakfast:

cap'n crunch (I usually have no problem, really!)

coffee, black

lunch--

two slices gluten free toast with jam

apple juice

dinner--

bacon, lettuce, tomato, avocado on gluten-free toast with mayo.

(horrible crampy)

*not my normal gluten reaction, though--just really bad, have to lie on the couch, cramping.....

(I know my diet looks kinda sparse there, but I was sleeping a lot having just had phlebotomy on friday, so I'm exhausted.)

Is it possible I'm reacting to the bread in some way--maybe too much of it (now that I look at how much I've eaten I'm thinking of deleting this whole post!) or what? is it possible to have 'relapses'? I'm feeling like I'm probably facing a few days of bad bowel issues ahead, as well.

ugh.

:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Happyw5 Explorer

Have you ever been tested for other food allergies? Is it possible you had a little virus, that was causing the stomach issues? I have an allergy to peanuts, soy, eggs, and mayo... My peanut allergy caused me to react to everything I ate at the time... Do you eat a certain food over and over--other then the gluten-free bread?

jeannieknits Rookie

Have you ever been tested for other food allergies? Is it possible you had a little virus, that was causing the stomach issues? I have an allergy to peanuts, soy, eggs, and mayo... My peanut allergy caused me to react to everything I ate at the time... Do you eat a certain food over and over--other then the gluten-free bread?

I have not been tested for food allergies....and I'm wondering if it might be a little virus, because the bf had a little bout of "D" last week. so it *might* be that,

except that it has happened in previous weeks, like I have these episodes...

I think the only thing I eat over and over would be the bread, the soy butter, eggs, potatoes, rice.

txplowgirl Enthusiast

Well the soy might be bothering you but what jumped out at me was capn crunch. it has malt in it therefore gluten.

kwylee Apprentice

Wow, totally agree with TXPLOWGIRL. You are ingesting gluten if you are eating that cereal.

jeannieknits Rookie

Wow, totally agree with TXPLOWGIRL. You are ingesting gluten if you are eating that cereal.

ok, I'll give up the cap'n crunch--I thought it wasn't bothering me....but maybe it is the issue. I'll see how it goes. I just bought some gluten-free granola (udi's) from whole foods, it's helping me with the cereal craving.

thanks!

GlutenFreeManna Rising Star

I would suspect the cereal and also possibly the smoothie. I don't know anything about Robeks--never heard of this chain, but many smoothie places make stuff with wheat grass or barley grass. Even if your smoothie was gltuen free was the smoothie made in the blender prior to yours gluten-free? What are the cleaning precautions they take (if any)? I worked at a coffee place that served frozen blender drinks and smoothies and we did not comepletely clean the blenders in between drinks. They were just rinsed out with water and used for the next one. It would not have been safe for anyone with allergies or intolerances.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jeannieknits Rookie

I would suspect the cereal and also possibly the smoothie. I don't know anything about Robeks--never heard of this chain, but many smoothie places make stuff with wheat grass or barley grass. Even if your smoothie was gltuen free was the smoothie made in the blender prior to yours gluten-free? What are the cleaning precautions they take (if any)? I worked at a coffee place that served frozen blender drinks and smoothies and we did not comepletely clean the blenders in between drinks. They were just rinsed out with water and used for the next one. It would not have been safe for anyone with allergies or intolerances.

Oh my gosh. Never thought of that either--they use wheat grass.

Ok today--no cereal, and I was fine until after dinner. Then massive D...like having to run to the toilet, twice.

What I ate was;

I made soup of bacon, onion, potato, rice, gluten-free vegetable stock. Topped with a TEASPOON of parmesan cheese. That's it.

Can it be that this is from a gluten exposure (the cereal or smoothie) and now hitting my lower gut today? The past two days was just cramping.

*miserable*

GlutenFreeManna Rising Star

Oh my gosh. Never thought of that either--they use wheat grass.

Ok today--no cereal, and I was fine until after dinner. Then massive D...like having to run to the toilet, twice.

What I ate was;

I made soup of bacon, onion, potato, rice, gluten-free vegetable stock. Topped with a TEASPOON of parmesan cheese. That's it.

Can it be that this is from a gluten exposure (the cereal or smoothie) and now hitting my lower gut today? The past two days was just cramping.

*miserable*

It very well could be from previous days glutening. Everyone is different but for me, my symptoms last at least three days. If you got a double whammy between the smootie cc and cereal then it may just last an extra day for you. Drink lots of water to stay hydrated and flush out your system. Keep eating things you know from past experience are safe for a few days--nothing new. Bland foods are best. A bowl of plain rice. I eat plain rice cakes with peanut butter when my stomach is upset. Banannas are good too if you can have fruit. If you think the bread is a problem drop it for a week (once your symptoms have passed) and then retest with nothing but a piece of bread and something you already know you don't react to. A few people here have trouble with the conditioners used in Udi's bread. It doesn't have anything to do with gluten they just can't eat the bread without having stomach issues. So you could be one of these unlucky few, but the cereal and smoothie are more likely culprits, imo.

jeannieknits Rookie

It very well could be from previous days glutening. Everyone is different but for me, my symptoms last at least three days. If you got a double whammy between the smootie cc and cereal then it may just last an extra day for you. Drink lots of water to stay hydrated and flush out your system. Keep eating things you know from past experience are safe for a few days--nothing new. Bland foods are best. A bowl of plain rice. I eat plain rice cakes with peanut butter when my stomach is upset. Banannas are good too if you can have fruit. If you think the bread is a problem drop it for a week (once your symptoms have passed) and then retest with nothing but a piece of bread and something you already know you don't react to. A few people here have trouble with the conditioners used in Udi's bread. It doesn't have anything to do with gluten they just can't eat the bread without having stomach issues. So you could be one of these unlucky few, but the cereal and smoothie are more likely culprits, imo.

That sounds like a good plan. Thanks so much!

FooGirlsMom Rookie

Hi,

Great responses here and definitely the first place to start - cereal, soy & smoothie. I did want to add that I noticed a lot of gluten-free bread in your diet. I personally find that I react differently to different gluten-free bread. Some of them have a lot of gums & starches & seem to aggravate my digestion & elimination. Generally, I find that the less bread I eat, the better. I even have to watch the rice intake for that reason.

Hope that's not your issue, but I thought I should toss that in for consideration if you find that eliminating the CapnCrunch, soy & smoothie doesn't do it.

Hang in there,

FooGirlsMom

jeannieknits Rookie

Hi,

Great responses here and definitely the first place to start - cereal, soy & smoothie. I did want to add that I noticed a lot of gluten-free bread in your diet. I personally find that I react differently to different gluten-free bread. Some of them have a lot of gums & starches & seem to aggravate my digestion & elimination. Generally, I find that the less bread I eat, the better. I even have to watch the rice intake for that reason.

Hope that's not your issue, but I thought I should toss that in for consideration if you find that eliminating the CapnCrunch, soy & smoothie doesn't do it.

Hang in there,

FooGirlsMom

Yeah, I'm thinking that I really need to break up with the love in my life, Udi's....and see if that helps. (SADFACE) I've been thinking that for a while (the previous "poop" thread)....but, I'm really going to give it a go now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.