Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination?


heather Goble

Recommended Posts

heather Goble Rookie

I recently stopped eating gluten. I have dealt with annoying symptoms all my life that I just brushed off as just annoying stuff that happens. It wasn't until I was finally completely frustrated by them that I looked into what may be causing them. Extreme fatigue (from as far back as I can remember), horrible memory and lack of focus, bad coordination, stomach aches, gas, bloating, small weird things like tingling in my arms, numb fingers and toes and those are the ones I can remember for now. Anyway, upon looking all of these up I kept coming to the same conclusion- that they are all symptoms of gluten intolerance. So I ran all of them by my doctor and he did a basic blood work. I asked him to add a celiac test too, to which he replied, well you most likely don't have that. The blood work all came back fine, leaving me frustrated. A year passed and I am even more tired of being tired all the time, tired of the constant headaches and other symptoms. I found this forum and was surprised at the amount of people who test negative but still have legitimate gluten intolerances, so I decided to eliminate gluten. That was a month ago.

The first week was great. No headaches, no falling asleep on the couch after dinner, or nodding off after lunch, no more tingling in my arms or numb toes. Then I had a small piece of cake, which led to itching all over and shortness of breath. The following week I ate out avoiding obvious foods, but knowing there was most likely cross contamination- miserable with migraine headache. Drank a couple of vodka and tonics the next night (since I read that vodka was ok) ended up puking my brains out the next day, nauseous all day and arm tingling (didn't drink enough to have a hangover as this is not an uncommon drink and they were spaced out over hours). Turns out Grey Goose doesn't claim to be gluten free.... I work at an elementary school and we are doing standardized testing and offer the students those red and white round mints while they are testing, didn't really think about it and popped one in my mouth. Within 30 minutes I was itching all over and and had diarrhea. No one else in my house is gluten free which probably makes it hard to avoid cc. I am guessing this is what is happening? It seems like every reaction I have is worse than the one before.... I am getting so frustrated! I haven't been back to the doctor since going gluten free, but am considering contacting him about further testing or advice. Any advice would be greatly appreciated.

As for last years test results, this is what came back in the report. Am I wrong in thinking that this isn't the full test for celiac?

deamidated Gliadin Abs, IgA, which was 2.2

deamidated Gliadin Abs, IgG, which was 0.7

Thanks for any advice


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



iamsarar Rookie

I was having a problem with CC in my kitchen. I finally made one cupboard for my husband and one for me did they same thing with our freezers one has gluten, one is gluten free. counters too, He uses one, I use the other. Any food I prepare for us is always gluten free. We had 4 friends over for dinner, 6 people total and I fixed a gluten free meal for everyone including dessert. Everyone loved it and were surprised it was gluten free....and vegan! Cook for your health. others will like it too. Also don't forget to check your pills, lipstick/gloss, shampoo and so on. I found gluten in my makeup and lip gloss as well as my shampoo and some of my vitamins. It was also in my generic nasal spray, the very thing I was taking for congestion was making it worse!!

I decided anything that was by my month (makeup) or on my hands (hand soap and lotion) had to be gluten free. After changing my pills, makeup, lip gloss, lip balm and shampoo I feel so much better. Look at everything in your life from head to toe!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,429
    • Most Online (within 30 mins)
      7,748

    Sandra Kardos
    Newest Member
    Sandra Kardos
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.