Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination?


heather Goble

Recommended Posts

heather Goble Rookie

I recently stopped eating gluten. I have dealt with annoying symptoms all my life that I just brushed off as just annoying stuff that happens. It wasn't until I was finally completely frustrated by them that I looked into what may be causing them. Extreme fatigue (from as far back as I can remember), horrible memory and lack of focus, bad coordination, stomach aches, gas, bloating, small weird things like tingling in my arms, numb fingers and toes and those are the ones I can remember for now. Anyway, upon looking all of these up I kept coming to the same conclusion- that they are all symptoms of gluten intolerance. So I ran all of them by my doctor and he did a basic blood work. I asked him to add a celiac test too, to which he replied, well you most likely don't have that. The blood work all came back fine, leaving me frustrated. A year passed and I am even more tired of being tired all the time, tired of the constant headaches and other symptoms. I found this forum and was surprised at the amount of people who test negative but still have legitimate gluten intolerances, so I decided to eliminate gluten. That was a month ago.

The first week was great. No headaches, no falling asleep on the couch after dinner, or nodding off after lunch, no more tingling in my arms or numb toes. Then I had a small piece of cake, which led to itching all over and shortness of breath. The following week I ate out avoiding obvious foods, but knowing there was most likely cross contamination- miserable with migraine headache. Drank a couple of vodka and tonics the next night (since I read that vodka was ok) ended up puking my brains out the next day, nauseous all day and arm tingling (didn't drink enough to have a hangover as this is not an uncommon drink and they were spaced out over hours). Turns out Grey Goose doesn't claim to be gluten free.... I work at an elementary school and we are doing standardized testing and offer the students those red and white round mints while they are testing, didn't really think about it and popped one in my mouth. Within 30 minutes I was itching all over and and had diarrhea. No one else in my house is gluten free which probably makes it hard to avoid cc. I am guessing this is what is happening? It seems like every reaction I have is worse than the one before.... I am getting so frustrated! I haven't been back to the doctor since going gluten free, but am considering contacting him about further testing or advice. Any advice would be greatly appreciated.

As for last years test results, this is what came back in the report. Am I wrong in thinking that this isn't the full test for celiac?

deamidated Gliadin Abs, IgA, which was 2.2

deamidated Gliadin Abs, IgG, which was 0.7

Thanks for any advice


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



iamsarar Rookie

I was having a problem with CC in my kitchen. I finally made one cupboard for my husband and one for me did they same thing with our freezers one has gluten, one is gluten free. counters too, He uses one, I use the other. Any food I prepare for us is always gluten free. We had 4 friends over for dinner, 6 people total and I fixed a gluten free meal for everyone including dessert. Everyone loved it and were surprised it was gluten free....and vegan! Cook for your health. others will like it too. Also don't forget to check your pills, lipstick/gloss, shampoo and so on. I found gluten in my makeup and lip gloss as well as my shampoo and some of my vitamins. It was also in my generic nasal spray, the very thing I was taking for congestion was making it worse!!

I decided anything that was by my month (makeup) or on my hands (hand soap and lotion) had to be gluten free. After changing my pills, makeup, lip gloss, lip balm and shampoo I feel so much better. Look at everything in your life from head to toe!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      3

      Basic metabolic panel results - more flags

    2. - trents replied to Rejoicephd's topic in Related Issues & Disorders
      3

      Basic metabolic panel results - more flags

    3. - trents replied to xxnonamexx's topic in Related Issues & Disorders
      1

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,322
    • Most Online (within 30 mins)
      7,748

    Bonjeans
    Newest Member
    Bonjeans
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Multivitamin - 2 pills daily vitamin D - 1 pills daily  magnesium - 3 pills daily iron - 1 pill daily   
    • knitty kitty
    • trents
      I have many of those same CMP irregularities from time to time, with the exception that my potassium is always normal. What I can tell you is that it is normal for everything not to be normal when you get a CMP done. I used to get a CBC and CMP done annually and there were always some things out of spec. Docs don't get excited about it for the most part. It depends on the particular parameter (some are more important than others) and it depends on how far out of range it is. Docs also look for trends over time as opposed to isolated snapshots of this or that being out of spec at any given time. Our body chemistry is a dynamic entity. 
    • trents
      Not sure what you mean by "soy being like gluten". Soy does not cause a celiac reaction. However, soy is one of the foods that many celiacs don't tolerate well for other reasons. Eggs, corn and dairy are also on that list of foods that many of those with celiac disease seem to be sensitive to. But that doesn't mean that all celiacs are sensitive to any one of them or all of them. It just means it's common. You may not have a problem with soy at all. Celiac disease is not a food allergy. It is an autoimmune response to the ingestion of gluten that creates inflammation in the small bowel lining that, over time, damages that lining.
    • Rejoicephd
      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.