Celiac Profile Confusion

[rebecca10112]

hi everyone:

I just found ur website & am happy to see someone else has my welts & rashes! the test results for celiac disease came back negative, but I notice when I eat anythin with gluten in it, my whole side or sides & thighs & stomach break out. Allergy tests reveal it,s not wheat! should I start a gluten-free diet? Seems pretty hard to do & maybe expensive?

At the end of the test results, it said: CELIAC RISK GENES DETECTED: DQ2.2 (HLA DQA1*0201:DQB1*0202) What doest this mean??

Thanks for whatever help you can give.

[GlutenFreeManna]

Hi, welcome to the board! If I am understanding your post it sounds like you only had a wheat allergy test and a celaic gene test? Celiac's are not "alergic" to wheat (well some of us are but the point is celiac is not an allergy). Celiac is an autoimmune disease in which we have a reaction to the protein in wheat, barley, rye and sometimes oats. Your "positive" genetic test just means that you have the common genes to develop celiac disease. Not everyone with the genes develop the disease but it does increase your risk.

When you say uou have "welts and rashes" did you see a dermotologist and have it biopsied? A proper biopsy to test for Dermatitis herpetiformis (DH), the skin component of celiac will include a biopsy of the skin next to the legion to check for antibodies.

If you did have a full celiac blood panela nd skin biopsy and it was all negative your next step could be to try to diet. Only try the diet once all your testing is done.

[cassP]

hi everyone:

I just found ur website & am happy to see someone else has my welts & rashes! the test results for celiac disease came back negative, but I notice when I eat anythin with gluten in it, my whole side or sides & thighs & stomach break out. Allergy tests reveal it,s not wheat! should I start a gluten-free diet? Seems pretty hard to do & maybe expensive?

At the end of the test results, it said: CELIAC RISK GENES DETECTED: DQ2.2 (HLA DQA1*0201:DQB1*0202) What doest this mean??

Thanks for whatever help you can give.

your rashes could be Dermatitis Herpetiformis- a skin rash associated with Celiac-> and Allergies are seperate from Intolerance & Autoimmune Disease. so you could get these DH rashes and still have ZERO allergies to wheat