Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Like People Are Irritated With Me...


Jenn624

Recommended Posts

Loey Rising Star

I may just be oversensitive, but I feel like people get annoyed by me needing to know ingredients and not going out to eat at certain places.

I have a bridal shower to go to and just messaged the bride to ask about the menu. I can feel her rolling her eyes.

I am overreacting. I know that. I already told my husband I am worried about Easter dinner at my in-laws. He insists it will be okay and I just have to tell them what I can eat. I know differently. She couldn't understand at New Year's why I couldn't have the corn casserole when it only had ONE TABLESPOON on flour. I tried to remind my husband how his mom cooks...it will be things with tons of ingredients and I will end up sick. He naively disagrees.

We are having a luncheon at the school where I teach and it's a covered dish. I looked at the menu and it's going to be slim pickings for me once again.

I never realized how much our world revolves around food...

Jenn

I don't think you're over reacting. This is a really tough diet to follow and even harder for outsiders to understand. Most restaurants and caterers will work with you on a simple menu. I had a restaurant bend over backwards o help me after a funeral.

I'm posting a few links on celiac that you might want to share with the bride and others. I hope that they help. Please feel free to PM me anytime if you need to vent.

Loey

Open Original Shared Link

https://www.celiac.com/gluten-free/

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

"OMG I know why you got sick - I used the mayo!"

We use the squeeze mayo. In fact, if anything comes in a squeeze bottle, that's what we buy. If you are budget conscience, you can buy your own squeeze bottles and transfer condiments into those. Even if I wasn't gluten-free, I'd buy squeeze bottles. It's nasty to see those little crumbs and unidentifiable specks of other food sitting in the margarine or mayo. Blech.

monika Newbie

Try being in college where all of the on campus food easy grab stuff is things you can't have. I was walking past a group that had pizza hut personal pizzas and i was just about ready to die right then and there. I wanted it sooooo bad, but decided it was not worth it, which lead to me thinking i could make my own even better so :)

Yeah it stinks. My grandmother makes homemade bread (the gluteny kind). She was baking a loaf over the weekend and i just about lost it due to the oh so good smell. Again i told myself it wasn't worth it.

One day at a time :)

hahah I usually avoid going near the places with food on campus. It's horrible! the temptation is there but you can't. Oh well, like you said it's not worth it. I'm just glad im out of the dorms. I can finally make my food in my own kitchen!!!! :D

K8ling Enthusiast

I bring all my own food, and tell them ahead of time. I tell them all about the disease and if it is a problem then I eat before I go. I have never had to skip an event because of food before.

I used to worry I was being inconvenient but if it was a peanut allergy people would bend over backwards. So now I just do it, no fuss, and they can deal with it.

taysic Rookie

Folks with gluten intolerance are EXTREMELY sensitive ... forget it if others don't get it.

color-me-confused Explorer

I Thought of this post today when I was at work. I had over heard some women talking about me and my "Fad" diet and how I wanted to just feel special and make it all about me. I couldn't believe it! When it comes to food I have to make it about me. SOoooo frustrating!

Wow. My co-workers on learning about the celiac diagnosis generally say something like: "wow, that's rough. can you still drink beer?" really, I've fielded the beer question about 8 times. I work with scientists and engineers and anything novel tends to bring out the curiosity ;) It's a small company so I'd rather have most people I am routinely in contact with know than not know.

Lima Bean Newbie

I have had surprising good responses.

"Why did you bring your own food? The food at this party is reallly good?"

I tell them I have Celiac and get:

" oh! That's gluten free, right? ". Then they tell me about someone they know who is gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Loey Rising Star

I may just be oversensitive, but I feel like people get annoyed by me needing to know ingredients and not going out to eat at certain places.

I have a bridal shower to go to and just messaged the bride to ask about the menu. I can feel her rolling her eyes.

I am overreacting. I know that. I already told my husband I am worried about Easter dinner at my in-laws. He insists it will be okay and I just have to tell them what I can eat. I know differently. She couldn't understand at New Year's why I couldn't have the corn casserole when it only had ONE TABLESPOON on flour. I tried to remind my husband how his mom cooks...it will be things with tons of ingredients and I will end up sick. He naively disagrees.

We are having a luncheon at the school where I teach and it's a covered dish. I looked at the menu and it's going to be slim pickings for me once again.

I never realized how much our world revolves around food...

Jenn

I'm so sorry you are going through this. I'm posting some links below that explain celiac to those who don't suffer from it. I hope it helps your husband to understand your problem and how important it is to remain gluten-free. Feel free to PM me if you need to vent one-on-one.

Loey

Open Original Shared Link

https://www.celiac.com/gluten-free/

Open Original Shared Link

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    2. - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      1

      Mallorca Guide

    3. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

    5. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,938
    • Most Online (within 30 mins)
      7,748

    K2coffee
    Newest Member
    K2coffee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
    • hjayne19
      Hi @trents thanks so much for the insights this helps alot.    These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.