Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member

TSA

By TSA
in Introduce Yourself / Share Stuff

Recommended Posts

TSA Rookie
TSA
Posted

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

HI Tammy!

I don't know how old your kids are but mine are teens so we don't always eat together. I'm the only gluten-free one at our house. When we do eat together & I am fixing all the food, its usually gluten-free. Last night we had BBQ chicken, corn & salad or carrot sticks. When we do pasta together, I get a helper to keep the gluten-free & the regular pasta separate. One is responsible for the gluteny pasta. Its too easy to get confused & use the spoon from one into the other. When that isn't possible, we all eat the gluten-free pasta and no one cares.

For J's 18th birthday/superbowl party, he wanted me to make gluten-free chocolate cupcakes because they are better than alot of other ones.

I find that teen boys & a hub who isn't picky don't care if there is gluten in it or not. My boys say the main criteria is that Imake it so they don't have to cook.

Karla01 Apprentice
Karla01
Posted

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

Hi, I was diagnosed in August, 2010, and have a husband, and 3 teen age boys, our first meal after getting diagnosed my one son sat the table and said ok how do I eat so you dont get sick what can I touch, we were having hamburgers and there were hamburger buns on the table, we all started laughing. Its gotten easier , spagetti nights are hard have to pay attention, I liked the previous comment on having a helper, and I always drain my noodles first, I also take any left overs I want and put them in containers labeled mom so no one else touches them. It seems like alot at first, but it becomes normal after awhile.

Terri O Rookie
Terri O
Posted

It does get easier in time! I only have been gluten-free for 2 months (almost)and am attempting to get my kitchen to a state that I can feel confident eating out of! (wow--that is a really BAD sentence) I dont know how else to say it though...I have a husband and 3 college age kids that are home on and off...they all think I am crazy. Maybe they think I am trying to push the gluten-free lifestyle on them because I frequently comment on studies that I read and such. I try to just do my "own thing." I will tell you though that it does get easier the longer you read the labels! Terri O

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,682
    • Most Online (within 30 mins)
      7,748
    Amber1rose
    Newest Member
    Amber1rose
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.