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TSA

By TSA
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TSA Rookie
TSA
Posted

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

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kareng Grand Master
kareng
Posted

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

HI Tammy!

I don't know how old your kids are but mine are teens so we don't always eat together. I'm the only gluten-free one at our house. When we do eat together & I am fixing all the food, its usually gluten-free. Last night we had BBQ chicken, corn & salad or carrot sticks. When we do pasta together, I get a helper to keep the gluten-free & the regular pasta separate. One is responsible for the gluteny pasta. Its too easy to get confused & use the spoon from one into the other. When that isn't possible, we all eat the gluten-free pasta and no one cares.

For J's 18th birthday/superbowl party, he wanted me to make gluten-free chocolate cupcakes because they are better than alot of other ones.

I find that teen boys & a hub who isn't picky don't care if there is gluten in it or not. My boys say the main criteria is that Imake it so they don't have to cook.

Karla01 Apprentice
Karla01
Posted

Hello, I'm a newbie from Indiana! I suffered for a year before I was diagnosed with celiac. Its been a stuggle! I'm the only one (at the moment) that has celiac. Being a mother and wife, its difficult to grocery shop and cook for all of us. I am feeling better however other symtoms have surfaced. Not sure what "normal" is anymore! Tammy

Hi, I was diagnosed in August, 2010, and have a husband, and 3 teen age boys, our first meal after getting diagnosed my one son sat the table and said ok how do I eat so you dont get sick what can I touch, we were having hamburgers and there were hamburger buns on the table, we all started laughing. Its gotten easier , spagetti nights are hard have to pay attention, I liked the previous comment on having a helper, and I always drain my noodles first, I also take any left overs I want and put them in containers labeled mom so no one else touches them. It seems like alot at first, but it becomes normal after awhile.

Terri O Rookie
Terri O
Posted

It does get easier in time! I only have been gluten-free for 2 months (almost)and am attempting to get my kitchen to a state that I can feel confident eating out of! (wow--that is a really BAD sentence) I dont know how else to say it though...I have a husband and 3 college age kids that are home on and off...they all think I am crazy. Maybe they think I am trying to push the gluten-free lifestyle on them because I frequently comment on studies that I read and such. I try to just do my "own thing." I will tell you though that it does get easier the longer you read the labels! Terri O

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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