Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Should I Do About My Friend?


Melstar23

Recommended Posts

Melstar23 Apprentice

I invited my friend over for dinner, she told me that she can't eat wheat, dairy or nightshades as she is intolerant to them all (she is also vegetarian). I'm gluten intolerant and my partner is vegetarian, so I'm used to cooking with those constraints and reading labels for ingredients. I spend a fair amount of time searching for recipes that fit her requirements, and searching the supermarket for things like gluten free, nightshade free vegie stock because my normal gluten free stock has capsicum and potato as ingredients.

The thing is that when she came over she tells me that she has been cheating on her diet everyday. She complained that it was really hard to do it properly because she like to eat out most days and no one caters to her diet. She said that she had been really good because she had been buying gluten-free vegan muffins, I asked her if she was sure there was no potato flour in the muffins and she had no idea. She that it doesn't matter if she has a little bit. She's no going to be strict with her diet because she has too many parties coming up and it is too hard to do.

I feel frustrated that she goes on and on about her food intolerances, and I put in care for her food so not to make her sick, but then she's not even following the diet any other time. I could never eat food if she bothered to cook for me because I know that she would not read the labels as a little bit of gluten won't hurt. I would love to be able to just go off my gluten free diet because it's inconvenient for parties, but I can't because I'll pay for it for a week afterwards.

I suggested that if she really thinks she's intolerant to these foods, she should try an elimination diet and keep a journal, but I doubt she will do that. My partner thinks I should just ignore her when she brings up the topic... I don't know...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

It is a terrible struggle internally to come to the realization that you have to follow food restrictions.

Having one is hard, but multiple is harder. No one goes from zero to ten...we all have a learning curve.

I think you are a wonderful friend for cooking carefully for her. She has to come to terms with her food intolerances and she shares them with you in part of that process.

She shares her struggle with you. That is what friends do. You share your struggle with us. That is what you need to do to be a good friend to her.

You should neither ignore her, nor abandon carefully preparing her food if she visits. But you have come to terms with this better than she has for herself. You should share your strength with her and be supportive of her while she tries to abandon and then follow the food restrictions she has. This is not easy for her. She WILL have to do it if she wants to be healthy.

But it isn't exactly like a drug addict or an alcoholic who ends up using you and making you miserable. I mean she isn't getting high or anything...just having a hard time coming to terms with not being able to eat what most people can.

So if you invite her for dinner again, have her help cook. Keep trying to talk to her and help her problem solve if you value her friendship. If it becomes too difficult or you feel used in some way then you can back off. But if you have other areas where she is a true friend to you, then try to understand that she isn't wanting to hurt herself really, she just doesn't have the kind of self-discipline that you do. And sad to say, she will pay for it in the end.

Stay strong and supportive if you can. And you can also say to her that she doesn't make sense when she tells you to cook carefully, but then she eats whatever she wants when she is out anyway. Good friends are a mirror for the other....we can show each other where we need to improve and where we are already doing realy good.

Hang in there. I do know it isn't easy. I have a son who has to come to terms with some of these things too. And some days it is a struggle for me to stay supportive too. But they will both get there with our help. Of course

mushroom Proficient

I know, it is infuriating. My sister was gluten free before I stopped eating gluten, and I threw a gluten free sit-down birthday luncheon for her, with a total of 14 guests (all her friends in my town - she lives elsewhere).. Bought an expensive gluten free birthday cake for that number, and told her that the rolls were for the gluten eaters - they were not gluten free. So during lunch she announces "I am going to be naughty and proceeds to scoff two bread rolls :huh::blink: I could've killed her. If it happened now, I think I would :ph34r: But she doesn't cheat any more (she of the more neuro than gastro symptoms) I think partially because she sees that I do not. :D

Juliebove Rising Star

Oh boy does this sound familiar!

My mom has to avoid wheat and nightshades for her arthritis. And then she has multiple food allergies. She'll order a waffle after announcing that she is avoiding eggs. I won't even mention the wheat in the waffle! I'll remind her that there are eggs in it. She will look surprised! And then try to tell me that it's a waffle. Not eggs!

I think part of the problem is that she hates to cook and for the most part hasn't done it in years. She does make a few things at home. But mostly the same things over and over again. So maybe she really doesn't know what is in a waffle.

I take these things seriously. And if I am eating out and unsure of what is in something or how it is made, I ask! I think most people would assume there is no wheat in French fries but we know better!

It finally got to the point with my mom where she got angry with my daughter and I constantly mentioning her diet. This after constantly witnessing her eating that which she isn't supposed to and then complaining about being sick and she didn't know why. Grrr... She told us to not mention her diet any more. So we don't.

But if I have to cook for her, I have to make sure that I don't use anything she shouldn't have.

In the case of your friend... If I were making a meal for her I would do something simple like beans and rice. Maybe a gluten free apple crisp for dessert, using coconut oil instead of butter or margarine. Or perhaps you could do an egg dish? I can't remember now if you all can do eggs. I can't.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.