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Night Time Sleep


katiekay

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katiekay Explorer

Hi... Did you notice a difference in how your little one sleeps when on or off gluten?? She seems to have nightmares when she's had gluten even though she is only 18 months old. She wakes up crying out or whimpering in her sleep.


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Gracie'sMom Newbie

Before my little girl went gluten-free, she was awake and crying often. After I found out that she had Celiac, I assumed that she was crying from pain in her little GI tract. It would make sense though, that she may have bad dreams because she's not feeling well, and she's not feeling well due to the gluten.

MitziG Enthusiast

Hi, I am new here. My son is 7 and was diagnosed a few weeks ago. he has had terrible insomnia for over a year now, and I am really hoping that being gluten free will soon start to help this as well! he has alot of nightmares too, which I think the constant stomach pain contributed to. i dont have an answer for you, but at least you know you aren't alone! :)

CrunchyChristianMama Newbie

My DD is 2.5 years old.

On gluten she takes forever to get to sleep. She is irrational, can't calm down, very distressed. She will wake up multiple times in the night and take a long time to get back to sleep. Lots of crying no matter what we do.

Off gluten she takes a few minutes to get to sleep. Sleeps all night. Wakes up happy.

T.H. Community Regular

Oh heck yeah.

On gluten, my daughter has a terrible time falling asleep. She has huge panic/anxiety attacks, she sleeps lightly and keeps waking up in the middle of the night and crying for me, being scared of the dark and such. She actually doesn't have nightmares - she says she doesn't remember her dreams at all when she has gluten, only when she doesn't. And she always wakes up with dark circles under her eyes, like she's waking from a drugged sleep, and is exhausted.

She's 12 now, only diagnosed last year. She has been this way for most of her life, and to have it got away when she's off gluten has been such a surprise. I just thought she was a poor sleeper - me too! But we both went gluten free, and we both sleep tremendously better. It's really amazing.

I look back at my daughter's sleep, and when she was around 1-2 years old, she developed night-terrors that were horrendous. When I look at pictures, she started getting those dark circles under her eyes right around that time, too, so I really, really wonder if that was the start of her gluten issues, you know?

katiekay Explorer

My daughter is now gluten free and doing so much better. She used to wake up throughout the night and now goes all night. She seems so much more peaceful and now that you mention it she's been going to sleep so much easier too.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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