Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerant? Ug, I Need Some Help


WinterSong

Recommended Posts

WinterSong Community Regular

So today is day #3 off gluten after being diagnosed via blood test. I was doing pretty well until I had some spaghetti squash today with pecorino romano cheese on it. Then my stomach started to hurt and feel expanded. I also don't feel well after eating yogurt (I don't eat milk, ice cream or butter much). I thought this was weird because aged cheese and yogurt are supposed to be very low in lactose, but still I think that I've developed a temporary intolerance for it, which I've heard is common. My endoscopy is on Friday, and the doctor said he'd be able to determine if I have it from that. Should I continue to eat dairy products until then? If I stop now, could it affect the results?

Also, I've heard that it can take 3-9 months for the body to heal itself enough to try to reintegrate dairy back into the diet. Has anyone here developed a permanent intolerance? Oh, I don't want to give up chocolate :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

No, going off dairy will not affect your biopsy results.

WinterSong Community Regular

Awesome. Then I think I'm just going to go off it....except I do have a small piece of dark chocolate every night....maybe I'll keep that in till I get the test results....I think I may go crazy otherwise.

eatmeat4good Enthusiast

And your dark chocolate just might be dairy free anyway! Isn't that good news! ;)

WinterSong Community Regular

Ah, I checked. I eat Dove dark chocolate, and there's milk in it. Anyone have any favorite brands? (maybe one that won't break my bank account in chocolate alone? ;) )

Newtoitall Enthusiast

well I know I was lactose intolerant, was cool if I took lactose pills, if those don't work for you then, you may have developed Casein intolerance, which means the protein get's you, not the sugar, so lactose pills won't help that =/ I learned that the hard way <_<

  • 3 weeks later...
celiacindiana Newbie

well I know I was lactose intolerant, was cool if I took lactose pills, if those don't work for you then, you may have developed Casein intolerance, which means the protein get's you, not the sugar, so lactose pills won't help that =/ I learned that the hard way <_<

It's amazing to me that you went dairy free so quick after your celiac diagnosis. What prompted you to do it? I have been gluten free since Sept 10 but have not omitted anything else from my diet because I think I want to be in denial that I have other intolerances!!! However after 7 months gluten free, I still am not "regular" like I thought I would be. Bloating gone but still other GI problems. I was worried about dairy and corn just because I hear about so many other celiacs that have issues with them!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,141
    • Most Online (within 30 mins)
      7,748

    smkatin
    Newest Member
    smkatin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.