Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

@#%$!


BeHappy

Recommended Posts

BeHappy Apprentice

ARGHHHHHHHHHHHH!

Sorry, had to let it out.

My daughter (3) woke up covered in diarrhea this morning. I let her stay home from school because I don't know if she will soil herself in school. I don't get it. Why does she soil herself only when she is glutened?? It's usually very constipated when she's been glutened so I think this diarrhea was the last of the reaction this time around.... and it smells! So HORRIBLE!! Poor kid. I try not to freak out on her its not her fault...

But why can't she make it in the toilet? It's a teeny tiny rotten smelling poo like 5 times a day for a week until the reaction passes. funny though, she never wets the bed at night. It's only during the day. The teachers are instructed to send her to the bathroom every hour. and she usually goes- Full bladder!

I'm just so overwhelmed with the constant #1 and #2 accidents I'm not getting what the connection is to gluten but it happens every time. I guess that's just how she reacts. It's just so HARD. I feel so dirty, so irresponsible, so I cant even explain how I'm feeling. I don't even know if I'm making any sense.

*sigh*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I know it frustrating. She is only 3 so her control of bodily functions is new and not perfect yet. The muscles aren't as strong as they will be. My boys had potty problems when they felt sick or allergies kicked in - nothing to do with celiac disease. So feeling bad may make it even harder or lower on her priority list.

Hang in there Mom! She will outgrow the bathroom issues. If she still has problems in a year or two, there are exercises to build up the bladder and pooping muscles. Also, lists of foods to eliminate temporarily.

srall Contributor

Poor Mama and poor baby. Before I went gluten free, there were a couple of times that I wasn't sure I could get myself to a bathroom. It was that sudden. I think I decided to give the diet a go when I was in a store with no public restroom and became so overwhelmed I had to get to a bathroom. I wanted to be in my own bathroom which was a 5 minute drive away. I was so close to losing it I finally just gave myself permission to go in the car. I could just clean it up and no one would know. Luckily I did make it home without any incident, and sorry for TMI here, but I just want to help you understand how violently it can come on. Hopefully she'll get herself to the bathroom. And hopefully being gluten free with clear up some of the D.

weluvgators Explorer

Have you considered setting a little potty next to her bed? We keep our toddler potty on a waterproof mat by the bed, and we find it very helpful for the kids when they are little. Sometimes it is really hard to make it far when that urgent need to go strikes. And she may be more inclined to wake and get out of bed if she knows she doesn't have far to go.

And I would be taking a much harder look at what she is eating. Is there much in the way of processed foods? Is she in a gluten free home? I was horribly shocked at the extents we have had to go to help our child. I thought living "gluten free" would be much easier than it has proved to be! And we have had to advocate hard for proper accomodation in the school setting, or else we were dealing with chronic symptoms.

Good luck, Mama! And you made total sense . . . I think many of us here can relate all too well.

seezee Explorer

Our next door neighbor's daughter had similar troubles at 3. She doesn't have celiac, but they diagnosed her with encopresis which they were able to help her with. I believe she saw a GI doctor for this.

katiekay Explorer

I may be the only one to state this but yes, when a child has allergies to wheat/gluten and they are exposed to wheat/gluten then it makes them have a hard time controlling their bladder. My daughter at 18 months old has not been diagnosed but I noticed when I took her off gluten she could go all night without wetting the bed and stayed dry all day and now that she is back on gluten she can not control her bladder day or night. She can just have finished on the potty and then she is dribbling somewhere else. It is very frustrating but not her fault! Anyway I read the following below and it is what tipped me off to my daughter having allergies to wheat. I can state that it absolutely does make a difference when she is exposed to wheat. I can also state that other mommies have told me the same thing and often reference their own problems with bed wetting and now discovering that they themselves had a problem with wheat/gluten. And 3 years old does not mean that a child can not control their bladder.

I am copying the following from the book Infant Potty Training by Laurie Boucke.

"There is a correlation between food sensitivities/allergies and baby's elimination frequency (both pees and poo), misses, bedwetting and enuresis. Many babies become incontinent, go far more often than usual, lose their elimination awareness and stop signaling in reaction to wheat, gluten, soy, citrus, tomatoes, vinegar, strawberries, cow's milk/dairy, pineapple, tea and other foods. Breastfeeding mothers have found that if they cut out one or more foods from their diet, the elimination problems usually disappear within a few weeks. Some babies have a mild sensitivity to certain foods so that there might not be a problem if a mother has, say, a little wheat, but the more wheat she consumes, the greater the elimination complications. Here are comments from mothers:

* "My baby was dry at night even though she nursed several times throughout the night. Then I had an increase in wheat consumption, and she started waking up completely soaked. When I figured out wheat was making her incontinent at night and we eliminated it from our diets, she resumed her night dryness."

* "My child had tons of accidents from 8-13 months until I discovered she had a food allergy. Then we went from no catches to a near grad almost overnight."

* "I stopped eating wheat; he stopped pooping constantly. It was EC magic. We ditched dipes permanently a month later!"

* "The only time we have damp or wet pants is when my son has soy (and he's a grad)."

One wonders if food sensitivities / allergies might explain why some traditionally toilet trained children have trouble with sphincter control for years (thus supporting the erroneous theory that kids are unaware, don't care and have no control)."

BeHappy Apprentice

Wow, that really puts things in perspective katie! Thank you! I just hope she learns to control it before she starts to get embarrassed about it in school... Never a dull moment!

But I have to say, she does SO BEAUTIFULLY when she is fully gluten-free! Call me crazy, but she looks..Peaceful would be the word I'd say. I like those days ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katiekay Explorer

I know exactly what you mean when you say peaceful. I am currently having a horrible time. :(

dilettantesteph Collaborator

I had to look at your post. Your title was unusual for someone with the username BeHappy!.

When I am glutened, I occasionally can't make it to the bathroom myself. I have soiled my pants plenty, and that is when I am home not far from the bathroom. There is a reason they call it uncontrollable diarrhea. I also have problems with control of #1 when glutened.

She might not ever be able to control it when glutened. I only get control of it when I don't eat gluten.

katiekay Explorer

I have not been diagnosed with anything but I'm pretty sure I at least have an allergy to wheat. We were off wheat and since being back on wheat I have noticed my urgency go way up.

CrunchyChristianMama Newbie

I'm so sorry! My DD has the same type of problem. She has potty accidents (just pee thankfully) all over the place within minutes of being glutened. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748

    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.