Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Behavioral Issues From Gluten Exposure?


charliesmom

Recommended Posts

charliesmom Rookie

We have been having a lot of issues with my 4 year old at school this week. He was diagnosed with celiac and we have been gluten free for a little over 2 months. So far we have assumed stomach pain was his symptom of being "glutened" because a few times he has yelled that his stomach hurt. During our year of fighting for a diagnosis, his only symptom was iron deficiency anemia and sometimes weird or smelly poops.

Last weekend I was worried about gluten exposure at a birthday party. He never yelled that his stomach hurt so I dismissed it. However, now after 4 very challenging days at school I am wondering if perhaps there is a link. Mostly he has been defiant and cranky - resisting transitions, throwing himself on the ground, etc. This is really not like him. But I have also noticed some anxiety symptoms which had gone away the last few months (he has been chewing on his clothes, he used to bite his nails)

Here are my questions:

- what type of behavioral changes do you see in your child from exposure?

- how long does it last?

- could behavioral changes be the only "symptom" of his exposure? I guess he could have other issues and not mention them to me since he is 4 though too....

I am not going to lie - I am hoping this is the result of gluten exposure as opposed to a new challenge in age and personality. However, I should also add that we have noticed a SIGNIFICANT increase in energy since going gluten-free. I didn't know it was possible for him to have this much energy :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

We recently did a gluten challenge on my six year old. It only lasted three days since my husband couldn't tolerate it any longer. Behavior was one of the first things to go plus a stomach ache. He was more fidgety than usual and couldn't keep his hands/fingers out of his mouth (he is a nail biter too). He was very resistant to any requests and then had a complete melt down at bed time. The moodiness got really bad and we called it quits. The thing is it only took around 12 hrs to see a change, but it will probably take a week or two to get back to normal. Hopefully this too will pass for you.

Cara in Boston Enthusiast

Behavior (defient tantrums, meltdowns over the slightest frustration, etc.) is what brought us to the pediatrician in the first place. After he tested positive, I learned he had more symptoms (frequent bloody noses, random joint pain, etc.) that I never really thought were a big deal. My son is 6.

Cara

charliesmom Rookie

Thanks for the info. I am getting more and more convinced this is the cause. I talked to the teacher and she said the only other time he has acted as he did this week was right when we started the diet.

julandjo Explorer

Behavior is the first, most obvious, and longest-lasting symptom for both of my kids. In fact, my 2 y/o daughter played with Play-Doh at daycare on Wednesday (despite my having told them before NOT to let her touch it), and we'd only been home 30 minutes when I had to call daycare and ask what on earth she got into that day - her behavior was horrific! There's the normal 2 y/o and 4 y/o tantrums, meltdowns, etc, and then there's the "food reaction" behavior - two very separate and distinct behaviors for our kids. Sometimes but not always, GI symptoms will follow. The duration of their reaction behavior depends on the level of their exposure. But even that little Play-Doh incident 2 days ago? Yeah, she's still a hot mess today. :( Hang in there!

CeliacMom2008 Enthusiast

Definitely notice behavior/mood here. It's scary, because he becomes so depressed. When your 9 year old tells you he doesn't want to live any more you start to panic. He's such a happy, go lucky, positive kid that we've thankfully been able to help him through it by pointing out that he has probably been glutened. His depression and anxiety are our first indicator that something has happened. He becomes irrational and very emotional. :(

CrunchyChristianMama Newbie

My DD is a disaster on gluten. Her behavior does a complete 180 when she is exposed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BeHappy Apprentice

100%. I can tell when my daughter becomes glutened even before her physical symptoms start to show. She gets extremely cranky, her voice gets hoarse, she throws incredible tantrums, she becomes extremely fatigued, and nervous. She turns into a grump. It is so difficult to watch her go through with it...

It lasts about a week, slowly getting better as the week goes on. But I'll tell you, it's not fun to deal with. On the upside, when she is completely gluten-free, she is an absolutely different child! Happy, upbeat, easygoing. Everything a normal child should be!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    2. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,835
    • Most Online (within 30 mins)
      7,748

    B Burgos
    Newest Member
    B Burgos
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.