Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Days Of Allergic Reactions

JSegura226

Recommended Posts

JSegura226 Apprentice
JSegura226
Posted

For the past 3 days I have been getting a swollen/tight throat after eating. I actually ended up in the ER for the first reaction. CT scan showed some swelling but it went down with a bendryl IV injection..I have only been gluten free 4 days and at first I thought it was my digestive enzyme I was taking giving me this reaction. Well this morning I decided to skip the enzyme and just eat.. sure enough.. swollen throat! Checked my trusty food journal to see what else I have been eating and sure enough I found a common denominator.. AVOCADO! NOO!!!!! I love avocados... Why after going Gluten free do avocados give me this reaction?! Anybody else experience this? My body seems to be reacting strangely to all kinds of things since going gluten-free..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lynnelise Apprentice
lynnelise
Posted

After going gluten free I developed a mild coffee allergy. It's been a year and half and I added coffee back regularly a few weeks ago with no reactions so far. Hopefully these issues will clear up once you heal! Sorry you are going through this. I love avocado too!

hnybny91 Rookie
hnybny91
Posted

It could be that you have always had a slight reaction to avocados before but now that gluten is not screaming it head off the avocado allergy can be heard. Since going gluten free I have realized that I am also sensitive to eggs, dairy, almost all fish, yeast, beans and a hand full of spices. It really is kind of depressing when I stop to think about it.

mercury6 Newbie
mercury6
Posted

For the past 3 days I have been getting a swollen/tight throat after eating. I actually ended up in the ER for the first reaction. CT scan showed some swelling but it went down with a bendryl IV injection..I have only been gluten free 4 days and at first I thought it was my digestive enzyme I was taking giving me this reaction. Well this morning I decided to skip the enzyme and just eat.. sure enough.. swollen throat! Checked my trusty food journal to see what else I have been eating and sure enough I found a common denominator.. AVOCADO! NOO!!!!! I love avocados... Why after going Gluten free do avocados give me this reaction?! Anybody else experience this? My body seems to be reacting strangely to all kinds of things since going gluten-free..

After going gluten free I changed my diet and experienced some difficulty breathing for a while. I had repeated bronchial infections so my doctor prescribed an inhaler for asthma. I'd never had a problem like that in my life. I had to look at everything I was eating, so I started with the eight most common allergens.

Tortilla chips with avocado had become a frequent snack for me. I thought it was the avocado, but avocado never came up on my allergy tests. As it turns out, it was soy in the tortilla chips. i have an intolerance to soy, not a 'true' allergy, but since it affects my breathing, that's enough reason to avoid it.

many gluten free food items use soy, if you've noticed. i was also getting soy from soy lecithin in chocolate, teas, and lip balms. once i removed all that from my diet, my breathing went back to normal.

Lots of folks recommend elimination diets to identify a problem food, but if you've already gone gluten free, you've probably done that to a certain extent. Try looking at the most common allergens for starters. I mentioned the tortilla chips since they seem to go hand in hand with avocado. Hope you're feeling better!

annegirl Explorer
annegirl
Posted

I feel your pain! I've lost several food groups over the last 2 months. It can be depressing. :( (yeah, I should never have said, "they can pry Coke from my cold dead fingers!" dang high fructose corn syrup)

I think some of it is that you probably have other intolerances that just added to the whole "sick" overall feeling. Some could also be that your body is just hyper sensitive to everything. I'm in the process of getting some pro biotics and researching "leaky gut" to see if I can get some relief before I become intolerant of something crazy....like water. :P

mushroom Proficient
mushroom
Posted

I feel your pain! I've lost several food groups over the last 2 months. It can be depressing. :( (yeah, I should never have said, "they can pry Coke from my cold dead fingers!" dang high fructose corn syrup)

I think some of it is that you probably have other intolerances that just added to the whole "sick" overall feeling. Some could also be that your body is just hyper sensitive to everything. I'm in the process of getting some pro biotics and researching "leaky gut" to see if I can get some relief before I become intolerant of something crazy....like water. :P

The water thing is not too crazy. We did a thread on here to see if we could find something that everybody could eat, that everyone tolerated, and I said the same thing, pretty soon we will end up with only water , and I seem to recall someone having a problem with it :blink:

Leaky gut is a key to a lot of these additional reactions that show up. A leaky gut allows food into the blood stream in a partially digested state and the body recognizes it as non-self and therefore foreign, and the immune system mounts an attack. If you can heal your gut (probiotics are the first line of defense) and stop these partially digested foods entering the bloodstream you can prevent further intolerances. That is why it is suggested not to eat the same things all the time, to use a rotational diet of every four days so that the body does not say, oh no, not THAT again and attack it. There are also things that have been there for quite a while but masked by the screaming of the gluten so that their voices could not be heard.

It is amazing what you can learn by trying to understand what your body is telling you. :)

ladymiss Rookie
ladymiss
Posted

hang in there, J! sounds like you've been having a very rough couple of days! i read your other post on benedryl.

i've been dealing with food sensitivities, before and after going gluten free. i still don't have it figured out. seems like it's just going to take time and healing.

just wanted to send positive wishes! feel better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

Much sympathy on losing a food! Yeah, I had the same thing. Started reacting like crazy to some allergies, and then to gluten, until it was crazy trying to tell which was which for a long while!

Just to help you avoid a problem I had, though, you might want to make sure you check what brands you were eating, if possible. Probably don't really want to try it on your own if the throat's swelling, but I've found a couple things that I thought were trouble, but turned out to be a common coating on the outside of a veggie/fruit, that was present in organic and non-organic, so I got it every time until I found a farm that didn't use this.

The water thing is not too crazy. We did a thread on here to see if we could find something that everybody could eat, that everyone tolerated, and I said the same thing, pretty soon we will end up with only water , and I seem to recall someone having a problem with it :blink:

Yes! I have met one lovely gal whose little girl was very sick, and it turned out to be their water. The little one was allergic to coconut, and pretty much all the carbon used in those carbon filters (including filters often installed for the water that is going into the reverse osmosis filters) is coconut based.

Once they avoided carbon filters in the water, the little girl has started to improve significantly.

Just crazy what happens, isn't it?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.