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Newly Diagnosed And So Happy That I'm Not Crazy


Bamberz1977

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Bamberz1977 Newbie

I first heard about Celiac Disease in 2003 while listening to NPR and thought "Hmmm, maybe that's what my problem is" yet I promptly dismissed it because I felt enough like a hypochondriac as is. I have been diabetic since 17, diagnosed with Bipolar Disorder, Major Depressive Disorder, Panic and Anxiety Disorder, Borderline Personality Disorder, ADD (in other words a walking DSM-IV), have had issues with pain since my early twenties, and frankly I was starting to feel as if everything was in my head. After hospitilization a month ago for gastroenteritis I was referred to a GI Dr. who promptly did blood tests and a biopsy and I was diagnosed with Celiac Disease last Tuesday.

After doing my reading I could easily correlate pretty much everything and what a relief to know that I'm not just making everything up. I figure that the extra cost of a gluten free diet will even out with reduced Dr's. visits and I am hoping that it will also help my diabetes be more controlled. In the area in which I live not much is known about Celiac Disease so I will likely be asking a lot of questions. Thanks!


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RiceGuy Collaborator

So glad you've finally gotten some real answers!

Welcome to the board!

IrishHeart Veteran

Welcome!! This forum is amazing and these people have been a major source of help and encouragement for me. You're in the right place! ;)

I am so sorry for your long struggle to get diagnosed properly. I can relate. Many of us went for YEARS-- as you did--trying to figure out what was going wrong inside us. And yes, you are NOT crazy, hon--although at times, most of us felt that way, too.

Hopefully, your other conditions will improve or diminish and your diabetes be more controlled--as you begin the gluten free life!

They are all connected to celiac disease. Read a lot and stick to the diet and you're going to start to feel better....hang in there!!Best wishes!

eatmeat4good Enthusiast

Welcome! It took me a long time to find this place too, but I am feeling way better now that I am on board with gluten free. I hope you find the same relief and fast! You will be surprised at all the little things that clear up or go away when you are strictly gluten free. Glad you are here and look forward to hearing of your progress.

Bamberz1977 Newbie

Thanks everyone! I have been compliant to the diet for a whole week, and hopefully I'm not screwing anything up lol. It really is easier than I thought at first, I thought I was going to have to give up everything that I loved. I have discovered that isn't so, as a matter of fact I made fried chicken with gravy tonight using BRM gluten-free Flour and I couldn't tell a bit of difference.

ravenwoodglass Mentor

Welcome to the board. If you are on any meds at all make sure you check with the maker to be sure they are gluten free. Since celiac can cause depression and anxiety you may eventually find you are able to forgo meds, if you take them. Do not suddenly stop any without the doctors knowledge though.

Some of us find a really happy painfree person hiding behind the gluten, hopefully you will be one also.

Read as much as you can here and ask any questions you need to. There can be ups and downs at first but hang in there.

eatmeat4good Enthusiast

Thanks everyone! I have been compliant to the diet for a whole week, and hopefully I'm not screwing anything up lol. It really is easier than I thought at first, I thought I was going to have to give up everything that I loved. I have discovered that isn't so, as a matter of fact I made fried chicken with gravy tonight using BRM gluten-free Flour and I couldn't tell a bit of difference.

That is brilliant! It took me 6 weeks to figure out there was no reason I couldn't use gluten free flour for frying chicken. Now I make my chicken strips every week! See! You really aren't crazy...your creativity is already back! Nice work. Can you PM me how you make gravy? Silly question and I can google it too, but do you use broth or milk? and what fat? I wanna try it.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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