Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Desperate For An *accesible* Gi Doc In Socal


tictax707

Recommended Posts

tictax707 Apprentice

Many of you may have seen my post in the general forum. I'm still really sick after gluten exposure four weeks ago. I tried to get in to see my GI and was told the first time I could see him was May 16th. MAY!!!! I SLEPT ON THE BATHROOM FLOOR Saturday night for goodness sakes and in desperation to stop the madness I seriously quit eating ANYTHING on Sunday. I told the schduler all this and she was unmoved. :angry:

Thankfully - not eating anything helped. But that is NOT RIGHT!!! NONE of this is! I am desperately seeking a doctor. I need to see someone who knows about celiac AND colitis, but at this point I would almost take a chance on someone I can just SEE when I am at rock effing bottom like this.

SO, I need suggestions for a doctor in southern cali - I am pretty sure some of the people from the LA CDF connections are on here too? I am willing to travel - LA, OC, even SD.

Please, help... :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MrsMonteSS Newbie

Many of you may have seen my post in the general forum. I'm still really sick after gluten exposure four weeks ago. I tried to get in to see my GI and was told the first time I could see him was May 16th. MAY!!!! I SLEPT ON THE BATHROOM FLOOR Saturday night for goodness sakes and in desperation to stop the madness I seriously quit eating ANYTHING on Sunday. I told the schduler all this and she was unmoved. :angry:

Thankfully - not eating anything helped. But that is NOT RIGHT!!! NONE of this is! I am desperately seeking a doctor. I need to see someone who knows about celiac AND colitis, but at this point I would almost take a chance on someone I can just SEE when I am at rock effing bottom like this.

SO, I need suggestions for a doctor in southern cali - I am pretty sure some of the people from the LA CDF connections are on here too? I am willing to travel - LA, OC, even SD.

Please, help... :(

Hi,

Unsure if I can help much with Doctor location, but I can tell you what helped me! Water, remove sugar and carbs. I dropped down to 85lbs because of these idiots. I have no food allergies, except the Gluten. I suggest you seek E.R to expedite the GI process. I was misdiagnosed Diabetic over the sugar. I eat Sausage (Premio is gluten free) It has alot of protein and no carbs, Kool-Aid Mix is Gluten Free, but I drink it weak, and use water as well. Not too much water, but the 8 glass a day rule. I eat lettuce, and strawberries because they are low in sugar. You HAVE to eat. Celiac depletes the body as it is. Chicken was OK for me, but avoid Turkey. Boar's head products are also Gluten Free, but stay low-fat. It has to run it's course, I am getting better every day and was even able to nap today! You have to stay healthy in the meantime, I understand how you feel about not eating, but this can further malnution. No Banana or tropical fruits, no apples, no rice, no sugar, no dressing, butter unsalted only! Low Carb, High Protein, Boil out sausage first to reduce sodium. Eggs maybe, or egg whites every few days. I can feel my head again, ouch! Hope this helps! RoseAnne - NY

ladymiss Rookie

hi- i am so sorry you are feeling so bad! hang in there!

there is a website i've found to be very interesting re: celiac and gluten intolerance. it is put together by a doctor group in CA. they specialize in celiac/NCGS. not sure if this is what you are looking for....but perhaps they would offer another viewpoint and some immediate help. there is info on how to contact/get to their office around SF.

Open Original Shared Link

get well soon.

cap6 Enthusiast

Check out out the Wm K. Warren Medical Research Foundation for Celiac in San Diego at the University of California San Diego. They are wonderful and there is a Celiac GI doctor thaty works through the foundation. Also a top notch nutritionist.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,591
    • Most Online (within 30 mins)
      7,748

    Enafae
    Newest Member
    Enafae
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.