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Delayed Reaction Time - Fustrated!

dube

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dube Contributor
dube
Posted

I'm getting so fustrated lately. Does anyone have a delayed reaction time when eating gluten? How do you know what caused the problem...I had dinner tonight, absolutely NO gluten! (gluten-free Spegetti, Sauce, Salad and Wishbone Ranch)...after dinner I've been in the bathroom three times with the big D! Look back because I've been keeping a food log and I think my reaction time is two days. I think I'm having this problem from something I ate two days ago..this morning I went completely normal...Does this make any sense???

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StephHappens Rookie
StephHappens
Posted

Some people seem to have a reaction RIGHT AWAY. Mine is always the same. I eat and everything is pretty normal, then I go to bed and wake up with a horrible intense headache, heartburn, intestinal cramping, D, and pain in my jaw joints. It lasts about 24 hours and then I feel ok again. But, it's always after I go to sleep and wake up. I never start feeling it right away. That's just me though...everyone is different. It is good you are keeping a journal. I am starting that too. It's only been 4 months since I've been diagnosed and I am averaging getting glutenated about 1-2 times a month. I think it'll get to the point where you'll know exactly how your body will react and what you ate. Hang in there!

iamsarar Rookie
iamsarar
Posted

Some people seem to have a reaction RIGHT AWAY. Mine is always the same. I eat and everything is pretty normal, then I go to bed and wake up with a horrible intense headache, heartburn, intestinal cramping, D, and pain in my jaw joints. It lasts about 24 hours and then I feel ok again. But, it's always after I go to sleep and wake up. I never start feeling it right away. That's just me though...everyone is different. It is good you are keeping a journal. I am starting that too. It's only been 4 months since I've been diagnosed and I am averaging getting glutenated about 1-2 times a month. I think it'll get to the point where you'll know exactly how your body will react and what you ate. Hang in there!

I am the same way when I eat gluten. I go to bed fine and wake up feeling awful. Some times it can be 24 or 48 hours after.

dilettantesteph Collaborator
dilettantesteph
Posted

I feel it the next morning like the two previous posters. It takes my son 2 days to feel it. Boy was that confusing until we figured it out!

GFreeMO Proficient
GFreeMO
Posted

THis wouldn't happen to be Deboles pasta would it? I ate some last night and got really really sick. I emailed them and they don't have ddedicated equipment apart from their whole wheat pasta.

dube Contributor
dube
Posted
  • Author

THis wouldn't happen to be Deboles pasta would it? I ate some last night and got really really sick. I emailed them and they don't have ddedicated equipment apart from their whole wheat pasta.

I eat Tinkyada pasta...which is not the culprit. I've been eating it for six months now. I think I'm having a problem with vinegar...damn...or maybe dairy. I'm going to have to do the process of elimination....this really ticks me off...

Googles Community Regular
Googles
Posted

I also take a long time to react. I think that I react about 24 hours after ingestion of the culprit. But I can't be for sure. But that is my guess.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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    • SilkieFairy
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