Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting To Eat Gluten Free Today

goodnews

Recommended Posts

goodnews Apprentice
goodnews
Posted

So I just had my endoscopy yesterday and am waiting for the results from the biopsy. In the meantime I am starting to eat gluten free to see if I have some relief. I have been researching and excited about starting on this only because I want to feel better! Although I am anxious that I won't feel better for a while because I still have gallbladder problems and lately have been having acid reflux and my esophagus is hurting today (probably from the endoscopy yesterday). So today is my first day gluten free....but I totally forgot to buy gluten free things yet...that was a big mistake. so I have a whole lot of fruit/vegetable/nut snack like items today for lunch (cashews and cranberries with corn chex, cheese stick, banana with peanutbutter, popcorn, and fruit snacks). Will have to grab something at the store for dinner I guess. Hoping to feel better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


goodnews Apprentice
goodnews
Posted
  • Author

Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing).

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

cahill Collaborator
cahill
Posted

Well so far (only day 3) I am definitely irritable, with a little more energy but stomach has been the same and a little worse last night and this morning. Dull headache (nothing major) and I have been going to the bathroom more regularly (was constipated before so this is kind of a good thing).

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

are you planing on staying gluten free even if your biopsy is negative??

MsCurious Enthusiast
MsCurious
Posted

Well so far (only day 3)

Had some brown rice pasta last night and it was actually quite good! I was pleasantly surprised. Should hear back from the dr. about possible Celiac on Monday but in the meantime hoping to feel better soon.

Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! :o Monday is a big day for both of us...hope you have good news, goodnews! ;) I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 2000 miles away! Yikes! :blink:

Let us know how you do on Monday... I'm eager to hear how your test went.

goodnews Apprentice
goodnews
Posted
  • Author

are you planing on staying gluten free even if your biopsy is negative??

Yes, for a while at least. I am still feeling sick and want to know if it will help. Plus according to my genes I am at high risk of developing it and am going to have a gallbladder surgery coming up.....so with my luck even if I don't have it now it will kick in then :huh: I am thinking that other things are bothering me too because I had some icecream today and that made me feel more sick. If the biopsy is negative I will probably reintroduce gluten later in a few months. But if I start feeling great and eating gluten makes me feel sick again...well then it's a no brainer and I will stay off it.

goodnews Apprentice
goodnews
Posted
  • Author

Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! :o Monday is a big day for both of us...hope you have good news, goodnews! ;) I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 2000 miles away! Yikes! :blink:

Let us know how you do on Monday... I'm eager to hear how your test went.

Yes, it was Tinkyada brown rice pasta. Quite good actually. I am baking some bread now from a mix so I can use it for sandwiches this next week. I haven't been eating a lot of the other flours and stuff and trying to eat more basic things....but I would just love a piece of toast in the morning. I tried Grits and I liked those. Of course I am a cereal or toast girl in the morning and I can't find a great cereal yet.

Hope Monday goes well for you! I am less irritable this afternoon. It is a beautiful day and I got out in the sun and made me feel better. I live in the northeast and we have been cooped up for like 6 months. Today is high 50's and it's T-shirt weather!!

Have fun visiting your family! Will let you know what my results are. I am kind of hoping it is negative for Celiac in all honesty. I would rather have some gluten sensitivity and maybe be able to reintroduce it...but whatever happens happens. It will work out. :)

cahill Collaborator
cahill
Posted

It is a beautiful day and I got out in the sun and made me feel better. I live in the northeast and we have been cooped up for like 6 months. Today is high 50's and it's T-shirt weather!!

sounds like you live in my neighborhood :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

If dairy is bothering you or you think it may be bothering you, there is no reason not to try stopping it for a while. It shouldn't affect the celiac testing if you are planning an endoscopy and biopsy.

goodnews Apprentice
goodnews
Posted
  • Author

If dairy is bothering you or you think it may be bothering you, there is no reason not to try stopping it for a while. It shouldn't affect the celiac testing if you are planning an endoscopy and biopsy.

I may consider it. I shouldn't be getting any more endoscopies...have had 2 within a 30 day period since they didn't do enough biopsies the first time. Hopefully I am done with that for a while. I am not at all feeling any better yet...but today is only day 4. Of course I am confused though because maybe I shouldn't have started it yet since my gallbladder is all screwed up. I am not sure if it is possible for my stomach to feel better because maybe it is the gallbladder causing those problems. It's hard to tell.

mushroom Proficient
mushroom
Posted

Now that you are done with testing there is no reason to keep eating anything that is bothering you. Anything further that they do will not require the consumption of gluten (or dairy). By getting rid of those you may actually help your gallbladder pain (if that's what it is). The first way to start defining your pain is to get rid of the foods that are bothering you. You may not notice any difference at all for a couple of weeks, or you may experience some withdrawal from gluten that could make you feel even worse (if that is possible) for a week or two (being a little joy germ here :D ) before you actually start feeling the benefits of your dietary change.

goodnews Apprentice
goodnews
Posted
  • Author

Now that you are done with testing there is no reason to keep eating anything that is bothering you. Anything further that they do will not require the consumption of gluten (or dairy). By getting rid of those you may actually help your gallbladder pain (if that's what it is). The first way to start defining your pain is to get rid of the foods that are bothering you. You may not notice any difference at all for a couple of weeks, or you may experience some withdrawal from gluten that could make you feel even worse (if that is possible) for a week or two (being a little joy germ here :D ) before you actually start feeling the benefits of your dietary change.

The problem at this point is that I am not aware of which foods bother me. I have constant stomach pain and constant pain/pressure under my right rib (that part is definitely my gallbladder because it hurt in the same spot and way when they did the scan). But also when they did the scan my whole stomach hurts like it does now too. So I am just not sure if it is gallbladder and gluten...or just gallbladder. I am still determined to try gluten free for a month or 2 though. Just not sure if I can try all the other stuff now too. I work full time, married, have 2 younger kids that I cook for. I have been cooking mainly gluten free dinners the last couple days....but don't know if I can handle making them dairy free and everything else free too. It is just SOOOOO time consuming, energy draining, and expensive. Like I said, I can do the one for a while...but when I am grasping at straws I am just not sure. Of course, who knows. I will get my results tomorrow and maybe they will tell me that I have to go on that diet forever. Only time will tell I guess. I do want to feel better but there only so many hours in the day!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    2. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    3. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    4. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    5. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748
    Aron2
    Newest Member
    Aron2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.