Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Allergy Testing Yesterday And Now I'm Itching Everywhere!


GlutenFreeManna

Recommended Posts

GlutenFreeManna Rising Star

I went to the allergist yesterday to be tested for food allergies since I recently started having anaphalactic-type reactions to dairy. They did the skin prick test and also ordered blood tests for me. Well the skin prick tests were underwhelmingly negative. I didn't have any puffy circles except for the control. However, less than 24 hours later now and I'm itching like crazy on my upper arms, all across my back and on my neck (testing was done on my lower left arm). They tested me for wheat, barely, rye and oats (along with other foods) because I have had a skin reaction of hives when using lotion with wheat germ oil in it. In addition to the itching I'm having the start of my normal neurological reactions to gluten. Could they have glutened me with the skin prick tests? This rash feels just like the rash I used to have pre-gluten free. Now I'm also left wondering if I'm sensitive to something other than gluten. I have to go in for the blood tests today and I don't think I can take anything for the itching until after my tests...so I'm just currious if anyone else had this happen after food allergy testing. Is this typical?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

They tested me for wheat, barely, rye and oats (along with other foods)

Could they have glutened me with the skin prick tests?

Somebody puts the proteins you react to in direct contact with your blood supply and you wonder if they could have glutened you......? :blink:

uh.....yes....

cassP Contributor

This rash feels just like the rash I used to have pre-gluten free.

is this rash perhaps DH??.. if that's the case, then u probably were glutened from the testing

Evangeline Explorer

Sounds like you are having a delayed allergic reaction. Did any one of the bumps where they scratched you become inflamed, red or itchy?

GlutenFreeManna Rising Star

Somebody puts the proteins you react to in direct contact with your blood supply and you wonder if they could have glutened you......? :blink:

uh.....yes....

I know...I feel so dumb. They didn't really even explain the testing to me. I should have asked if it went into the blood supply. I was just really hoping I could get a positive allergy result since I have broken out in hives from wheat germ oil in the past. My main thing I'm concerned about is dairy but I figured sinc ei was having it done I might as well have all my suspoect foods done at once. None of the skin pricks popped up. Even the control was really small according to doctor. I'm still holding out hope that my blood allergy tests reveal something different. :(

GlutenFreeManna Rising Star

is this rash perhaps DH??.. if that's the case, then u probably were glutened from the testing

I don't know if I have DH because I never got any testing. I did see a dermotologist years ago (prior to suspecting gluten issues) about the rash and she didn't know what it was! She didn't take biopsies or suggest DH or anything. She just gave me creams and antibiotics that didn't do a darn thing. I know I probably should try to get into see a new dermotologist and have the skin next to the rash biopsied but it was so hard to get into see the one I saw a few years ago. My doctor had to call around and basically beg them to move me up because I was really sick with a bunch of other symptoms and the rash was getitng worse/looked infected. How I wish I had had a doctor that would have put two and two together and realized all my symptoms (including the rash) were connected!

Jestgar Rising Star

Even the control was really small according to doctor. I

If the control barely reacted, then the rest of the results may not be accurate. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Sounds like you are having a delayed allergic reaction. Did any one of the bumps where they scratched you become inflamed, red or itchy?

Nope, not a single one puffed up except the control. They did itch like crazy though! It was torture sitting there waiting for somehting to happen. Now I have little red bumps all over my upper arms, back and neck. I'm sure this is some type of allergic reaction. I called the allegist's office and all they told me is to take some Benedryl. :huh:

GlutenFreeManna Rising Star

If the control barely reacted, then the rest of the results may not be accurate. :(

That's what I'm afraid of, but WHY? I did not take any anti-histamines for over a week just as they directed me. The doctor said that the skin prick test had a high rate of false positives and very few false negatives. After I left I realized that was the reverse of gluten testing which has a lot of false negative and few false positves. Was he correct or did he misspeak when he told me that about the allergy tests?

Jestgar Rising Star

food allergy testing is very inaccurate. If you think about it, food goes into your stomach, not onto your skin, so it's really unclear what the results actually mean.

Evangeline Explorer

Food allergy testing is a bit of a medical scam. They fail to mention that only 3% of the population has allergic reactions, while up to 20% has a food intolerance or sensitivity. I paid $700 for the allergy test and when they found nothing, the doctor told me that "Sometimes the tests aren't accurate." I was CLEARLY very sick. A year later, I decided to pay $500 for NowLEAP's sensitivity test (150 foods I think). 2 weeks later, they said I was very reactive to carrots, kale, broccoli, cauliflower, the list went on and on. They also said I was reactive to corn. When I did remove these foods from my diet, my health did improve. I have now learned that because I was gluten intolerant, I had severe leaky gut syndrome which was causing me to become sensitized to all sorts of healthy greens. Eating broccoli, kale, cauliflower, etc. was causing me to fall asleep. NowLEAP asks that the patient do an elimination diet and only add one food back into the diet every 1-2 days. I did find A LOT of food triggers this way.

But NowLEAP does NOT catch intolerances (like soy, dairy, yeast, corn, rice, gluten). You would want to use EnteroLab for that or Cyrex Labs (which tests for sesame seeds, chocolate, potato, etc.)

jerseyangel Proficient

I'm thinking maybe a delayed reaction? I don't know, but isn't food intolerance a delayed allergic reaction--as opposed to an immediate one resulting in anaphylaxis?

I underwent allergy skin testing that included foods (all negative), but my allergist suggested an elimination diet to figure it out.

GlutenFreeManna Rising Star

Food allergy testing is a bit of a medical scam. They fail to mention that only 3% of the population has allergic reactions, while up to 20% has a food intolerance or sensitivity. I paid $700 for the allergy test and when they found nothing, the doctor told me that "Sometimes the tests aren't accurate." I was CLEARLY very sick. A year later, I decided to pay $500 for NowLEAP's sensitivity test (150 foods I think). 2 weeks later, they said I was very reactive to carrots, kale, broccoli, cauliflower, the list went on and on. They also said I was reactive to corn. When I did remove these foods from my diet, my health did improve. I have now learned that because I was gluten intolerant, I had severe leaky gut syndrome which was causing me to become sensitized to all sorts of healthy greens. Eating broccoli, kale, cauliflower, etc. was causing me to fall asleep. NowLEAP asks that the patient do an elimination diet and only add one food back into the diet every 1-2 days. I did find A LOT of food triggers this way.

But NowLEAP does NOT catch intolerances (like soy, dairy, yeast, corn, rice, gluten). You would want to use EnteroLab for that or Cyrex Labs (which tests for sesame seeds, chocolate, potato, etc.)

Thanks, but I already did an elimination diet in January 2010--that's how I figured out gluten was a problem for me. I was not getting these tests because of suspected intolerances, but because of sudden severe reactions to foods I have always eaten without much trouble. I ate some yogurt one day back in february of this year and my tongue swelled up and I couldn't breath. I had some butter a couple weeks later by accident and my lips tingled from the butter just touchign them. even thoguh I spit the butter out right awya my tongue got puffy within 20-30 minutes of tasting the butter. At that point my doctor got me an epipen and an appoint with the allergist.

GlutenFreeManna Rising Star

I'm thinking maybe a delayed reaction? I don't know, but isn't food intolerance a delayed allergic reaction--as opposed to an immediate one resulting in anaphylaxis?

I underwent allergy skin testing that included foods (all negative), but my allergist suggested an elimination diet to figure it out.

Patti were any of your intolerance reactions that make your throat close up or gives you hives within 20 minutes? Those are the symptoms I was having when I ate my suspected allergy foods (shellfish, pork, mushrooms, milk).

jerseyangel Proficient

Patti were any of your intolerance reactions that make your throat close up or gives you hives within 20 minutes? Those are the symptoms I was having when I ate my suspected allergy foods (shellfish, pork, mushrooms, milk).

Most of my symptoms were digestive, but I did have a lot of itching with no visible rash.

What does you doctor think about the delayed reactions?

GlutenFreeManna Rising Star

Most of my symptoms were digestive, but I did have a lot of itching with no visible rash.

What does you doctor think about the delayed reactions?

He said an anaphylactic or hives reaction within 20-30 minutes is consistent with an allergy (specifically IgE reaction) not an intolerance. I still have not gotten the blood test results so maybe they will show somehting the skin prick did not pick up...

As far as the delayed reaction to the skin prick (feeling itchy) I did not speak with the doctor just the nurse. I called to tell them about my itching (which started about an hour after leaving the drs office). She put me on hold to confer with the other nurse there, then she came back and told me to just take some Benedryl for the itching.

cassP Contributor

I don't know if I have DH because I never got any testing. I did see a dermotologist years ago (prior to suspecting gluten issues) about the rash and she didn't know what it was! She didn't take biopsies or suggest DH or anything. She just gave me creams and antibiotics that didn't do a darn thing. I know I probably should try to get into see a new dermotologist and have the skin next to the rash biopsied but it was so hard to get into see the one I saw a few years ago. My doctor had to call around and basically beg them to move me up because I was really sick with a bunch of other symptoms and the rash was getitng worse/looked infected. How I wish I had had a doctor that would have put two and two together and realized all my symptoms (including the rash) were connected!

i read an article once about a dermatologist who, before she got diagnosed with Celiac, had DH, but DID NOT know what it was- because she never learned about it in school!!

cahill Collaborator

i read an article once about a dermatologist who, before she got diagnosed with Celiac, had DH, but DID NOT know what it was- because she never learned about it in school!!

can I just say how sad this makes me :(

cahill Collaborator

I saw an allergist for the first time on the 31st of march.

He told me that skin testing is not accurate for food allgerys.Skin testing should be use for environmental allgerys (pollen,dust ect,.) He drew blood to test for food allergys. I am STILL waiting for the results <_< .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.