Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now For My Son's Results... I Think These Are Good


Debbie B in MD

Recommended Posts

Debbie B in MD Explorer

After receiving my daughter's test reults which were over the top positve for ttg and gliadin ab, I had my son tested. These are his results and I believe these are all good. Please let me know if I am wrong.

Iga serum 227 Reference Range: 57-300

Gliadin AB IGA 5: Reference Range <11 negative, <17 equivocal, >17 positive

TTG AB (IGA) 3: Reference Range: <5 Negative, 5-8 Equivocal, and >8 Positive.

My daughter's gliadin and ttg were both >100. Her GI visit is next week. I believe these results for my son are the kind we want, but I just need so reassurance.

Thanks bunches and have a great day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Debbie B in MD Explorer

Okay, since there haven't been any posts to the contrary, I am going with..... he is fine. Right?

MsCurious Enthusiast

Okay, since there haven't been any posts to the contrary, I am going with..... he is fine. Right?

It looks like he's fine, but I'm not a doctor. ;) Just ask your doc to confirm that he's a-okay. Another thing you can do, just for peace of mind, is do the genetic test. Less (just about zero) chance of him ever having celiac, if he's out of the genetic pool. He may develop gluten sensitivity, but at least you wouldn't have to worry about the celiac part so much.

sb2178 Enthusiast

Right, so just keep an eye on him for symptoms. If he get them, you can do follow-up testing and if that is negative, seriously try putting him on a gluten-free diet with your daughter.

Some docs recommend follow-up testing every so often (I've heard everything from annual to 5 years) in case he develops silent celiac.

GlutenFreeManna Rising Star

Since about 20% of blood test results are false negatives it wouldn't hurt to put him on a trial gluten free diet and see if any of his symptoms resolve while gluten free. Also, I have read false negatives are higher in children. If you decide to keep him on gluten, just be aware that he can develop a gluten intolerance or celaic at anytime in his life based on his genes (your daughter got it from somewhere). This one test result does not mean he is in the clear for life. You will want to keep an eye on him for symptoms and retest as needed.

T.H. Community Regular

My son had a negative blood test, but we ended up putting him on a gluten free diet anyway. In part, because it was easier to cook that way (we have two diagnosed celiacs in the house anyway). And he had symptoms I didn't even know WERE symptoms that went away on the diet. We did a short gluten trial at 1 year gluten free, and the symptoms came back, so now he's on the diet permanently.

And definitely keep testing as he is getting older, if you don't keep him gluten free. It can trigger at any age, and when the celiac disease is silent, which many times it is now, it can do some major damage before there are any symptoms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.