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Probiotics Causing Yeast Die Off? Feel Awful!


IrishHeart

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IrishHeart Veteran

I was shy about asking this, but I am desperate.

Anyone have ugly yeast die off from probiotics?

My GYN doctor has me using some that are ahem...insertable....and I also take them orally every day. I do not see any yeast, but a microscopic eval of tissue shows there is some and there's major inflammation---tissues are greatly affected by the celiac/gluten. She said all leaky guts have yeast, whether you see it or not. I know, I said...I asked the doctor about this but it did not show on digestive stool samples, so HE said there wasn't any....so, what gives??

Another friend of mine said she felt like dying when she went through this...um, yeah, that might be kinder :unsure:

It's ugly and I feel pretty rotten and besides drinking a lot of water and soaking in a tub (which tailbone pain prevents me from doing) or sitting in a sauna, getting a massage....

Are there any other suggestions?? I would be very grateful.

Thanks! as you can imagine, I' m not very hungry and all my symptoms--the bowel ones and even the anxiety/depression that was subsiding--are turned up to a million right now...I have read this can happen. The Herxheimer effect--and that you just have to tough it out until it passes.

Man, I feel like hell.... :huh:


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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