Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disney Vacation And Celiacs


PKay

Recommended Posts

PKay Newbie

Has anyone traveled to Disney on the Meal plan and utilized the "Gluten Free" assistance at on site restaurants? I completed their questionnaire, but am skeptical. Any advice from EXPERIENCED travelers welcome!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

There have been several threads on here about Disney World & Land. I didn't do a meal plan so I'm not sure how that works. They are extremely good about gluten-free and allergy food. They have a list of what you can get at various food places in the Town Hall as you come in to the park.

Darissa Contributor

We had season passes to Disneyland for a year after finding out about Celiac. We never did the meal plan, but we purchased our food at the park and hotels. Disney did a great job. They have a list you pick up when you first walk into the park at Disneyland that has all the resturants and what they have that is gluten free. Every dining experience we had was great. We even had the Character breakfast at Goofy's Kitchen and had waffles and bacon and fruit. It was wonderful. The motels also have gluten free food at their resturants. Have fun and enjoy Disney!

mamaw Community Regular

We always use the meal plan .. It is the best buy & also for gluten-free.We were never charged more for gluten-free like most places... I think now the tip is not included ... We did plan out what restaurants & lunches we would eat each day... We also called the restaurant a month before going for reservations & each morning we called to tell them we were still coming that evening & needed four gluten-free meals...we would eat at each day....

We had a bunch of quick lunches left over & snacks soon our last day we went & used them up by buying gluten-free goodies to take home with us. So no money for the meal plan was wasted...

If I were to recommend a gluten-free vacation I would say Disney for sure. They are very knowledgeable about gluten-free. some places even gave us the leftover gluten-free dessert to take with us.

I would call ahead & make reservations because they need to have timeto prepare.. Since there were two gluten-free kids & two gluten-free adults & 2 regular eaters ...

Another tip is when you go for quick lunches do not wait in the long lines , go directly to an open space at the counter & ask to speak to the manager. Tell the manager you are gluten-free & what do they suggest . The manager prepares the gluten-free food in a different area . So our gluten eaters got in the food line & we placed our gluten-free through the manager & told them our gluten eaters were in line to place their orders. So when all was said & done our gluten-free food came at the same time the gluten eaters food so we wasn't wasting time waiting on gluten-free that always takes a bit longer to cook... It was a wonderful experience at Disney.We were there for seven full days & never got ill or had any problems...

The evening meals were always very large &several times people at other tables would ask how we got that meal, the waiter would say oh that's a special food order. Many wanted our meals...&the two gluten eaters often said ours was better because they take extra care making gluten-free special.

I felt like a celebrity at meal time......

If you do your homework first & plan ahead it is a wonderful experience. some wait till they get there & have to find out where they can safely dine & it becomes a hassle esp. when your tired & hungry. And you also lose precious time when you could be enjoying Disney. Many of the shows also has gluten-free.

Sorry if some of my words are running together , my space bar is not working.

blessings

mamaw

cassP Contributor

There have been several threads on here about Disney World & Land. I didn't do a meal plan so I'm not sure how that works. They are extremely good about gluten-free and allergy food. They have a list of what you can get at various food places in the Town Hall as you come in to the park.

what if you're going to Epcot, MGM, or Animal Kingdom?? or do u need to go to the town hall at magic kingdom first- and get lists for all the parks???

  • 4 weeks later...
smc Rookie

what if you're going to Epcot, MGM, or Animal Kingdom?? or do u need to go to the town hall at magic kingdom first- and get lists for all the parks???

Disney is one of the best places a celiac can travel to. We have done it twice since I was diagnosed almost 2 years ago. We get the dining plan . If you plan to eat at the sit down places -When you contact Disney dining to make your reservations you just tell them you are celiac-I think they even ask if anyone has dietary restrictions. They will e mail you a list of snack foods you can eat in each park along with a special diet form to fill out and return to them before your arrival. All the restuarants you choose will be notified ahead a time of your arrival and disney will either call or e mail to tell you this. When you arrive to eat the server will tell you that a chef will come to your table and you will be taken care of . They are WONDERFUL! I have even had special deserts made for me . They act like it is no big deal because they do it all the time. You will be treated like a Disney princess. Every one of the quick service restuarants that we have gone to have been great as well. When you order the manager will come out and show you a book of gluten-free options and the ingredient list-the manager then prepares your food in a seperate area , fyrer, they change gloves etc. If you eat at a buffet the chef will walk it with you and give you your safe options and i have had chefs ask me if i feel safe eating from a buffet because if not they can prepare something in the kitchen . I know the hotels we have stayed at can prepare a gluten-free breakfeast but I did not take advantage of this . They do have gluten-free yogurt and a few fruit options but I usually bring my own breakfeast. I think I did however get a small amount of gluten at a buffet once but that is not their fault . Something i picked must have been cross contaminated. Every Celiac has to watch out for themselves but as far as Disney taking care of you when you are there. You can go with no worries! Cant wait to go again!

Kelleybean Enthusiast

We live in Orlando so we go to Disney fairly often. We mostly go to Magic Kingdom b/c my son is 3 and that's his favorite. They have a lot of gluten free options. They sell gluten-free cookies in the bakery on Main Street (can't remember the name!) and several of the counter service places had things like Amy's mac and cheese and gluten-free pizza options. We don't usually do the restaurants so I can't comment there but I've heard they are really accommodating. There is also a Babycakes bakery in Downtown Disney that is absolutely wonderful, albeit a little expensive. Everything there is gluten free and casein free. Their toasties (kind of like cranberry bread) is amazing. We talked to the manager at the cafeteria type place in the same space as Babycakes and even though we haven't eaten there yet, I was really impressed with how helpful they were. They have a printout of everything gluten free. It was nice to go somewhere and have the staff already knowledgeable about gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

No need to be skeptical. They are great.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.