Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Days Ago I Glutened Myself


adab8ca

Recommended Posts

adab8ca Enthusiast

10 days.

I am still a mess. I cannot believe that I can be so derailed after almost 8 months gluten free to have almost two weeks of this CRAP. (and I do mean crap. literally and figuritively). SO tired. Joint, bone and nerve pain. Feet and hands are killing me, mouth is burning. Canker sores. Stomach issues-well, you don't even want to know. Yesterday I thought I may be feeling a bit better but that was a lie apparently. I am so shocked that the affects are so far reaching and lasting so long. It was less than crumbs. The crushing insomnia has started up again as well. There is nothing else that I can attribute this to. I have been so careful eating, vitamins etc...

I am just venting, this is so demoralizing!

It does prove to me that I should never eat out if I can have this happen in my 99% gluten-free home!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I am so sorry you are still having these symptoms. :( That IS a long time to feel bad after only a few crumbs. I am always hearing that CC happens, even if you are careful --in a home that is not 100% gluten-free.

I wish I knew what to say to help.

Your symptoms are so much like mine (from the nerve and joint pain right down to the burning mouth) so I empathize. (((hugs)))

The only thing I know to do is drink A LOT of water. Eat plainly, things like cream of buckwheat cereal. Pamper your tummy. I have read that if you do not use probiotics, you might want to as they repopulate the good bacteria and move things along (balancing out the D and C) and reduce the effects of gluten.

Some people use Pepto?

I sometimes ice my back( spine.) It helps knock down inflammation in the nerves.

Can you take hot baths?--soak out the toxins-- especially before bed to calm you down.

Do you like chamomile tea?

Don't try peppermint tea or ginger or any of those things--they will just burn your mouth and tummy more. Avoid citrus, coffee or regular tea.

Rest. These are just a few things that have worked for me.

Unfortunately, riding it out is all we can do.

I am sending healing thoughts your way.

adab8ca Enthusiast

Oh yeah, our symptoms are SO similar...Soul sister in hell?

I just don't believe it is a flu because of all of my typical "nerve" and insomnia symptoms...

I am just trying to take it easy, but I am SO mad!!!

ok, stepping off my pity pot :)

hugs back

ada

tictax707 Apprentice

I know this won't actually take away any of the pain, but you are definitely not alone!! I understand that this is totally frustrating. Sadly, I think the rollercoaster of better-not better-better-not better is just part of the process. It's a bummer that improvements are not linear like the common cold. I can finally say I am 99.9% recovered from being exposed to gluten on March 9th. (5 weeks - I am not even kidding). The getting better and then getting worse rollercoaster was pretty tough. I got exposed was from a lone crouton I found at the bottom of my salad at a restaurant (I didn't even eat the crouton of course!!). However, my problem was more that the gluten triggered my lymphocytic colitis and *that* took forever to resolve. If you don't have colitis, then I would predict that you are just about due for recovery and the sun is just about to shine for you. Here is sending positive healing vibes your way!!!

IrishHeart Veteran

Oh yeah, our symptoms are SO similar...Soul sister in hell?

I just don't believe it is a flu because of all of my typical "nerve" and insomnia symptoms...

I am just trying to take it easy, but I am SO mad!!!

ok, stepping off my pity pot :)

hugs back

ada

soul sisters indeed B)

hang in there, ada.

You're going to be okay.

um...Nothing else in the house with hidden gluten, right???

((hugs))

bonespsyd Newbie

I totally get you! I was just looking around at posts today, as I accidentally glutened myself 3 days ago (a fun-sized candy bar...thought it was gluten free...NOT!).

I have extreme fatigue, wrist and foot pain, dry eyes, headache, constipation and bloating (feels like I have a flaming brillo pad working its way through my GI track (gross, sorry) and feel like crying. I know (from experience) that this will last about a week.

I've been gluten free for almost 18 months and I am AMAZED at how long it takes to recover from a tiny amount of gluten.

Hang in there, you are not alone!

IrishHeart Veteran

I totally get you! I was just looking around at posts today, as I accidentally glutened myself 3 days ago (a fun-sized candy bar...thought it was gluten free...NOT!).

I have extreme fatigue, wrist and foot pain, dry eyes, headache, constipation and bloating (feels like I have a flaming brillo pad working its way through my GI track (gross, sorry) and feel like crying. I know (from experience) that this will last about a week.

I've been gluten free for almost 18 months and I am AMAZED at how long it takes to recover from a tiny amount of gluten.

Hang in there, you are not alone!

Bummer....was it a "fun size" snickers bar by any chance? Not that I eat them, but someone else was wondering about those...

Hope you feel better soon!! And wow!...To go so long without an accidental glutening is remarkable!! Good for you. You'll be back on track in no time, no doubt.

I am familiar with that "flaming brillo pad" working its way through...and OUT.......excellent description! :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      5

      Manitol and mri

    4. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    5. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.