Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthroid?


kaitlyn77

Recommended Posts

kaitlyn77 Rookie

I have been taking Synthroid and I called the company and they said they can not confirm the gluten free status. What is your opinion? Does anyone know of a good gluten free alternative?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

My insurance took me off Synthyroid& put me on the generic version.For 2 1/2 months I've had swollen mouth , lips & glands. Plus a lot more problems. I just got back on synthyroid & now I can't take it because of reactions. Horrible reactions.

I don't know what is considered gluten-free because mainstream docs will only give synthyroid or another name brand that is synthetic. I haven't found a doc in my area who will give whole glanduar, which is what the body needs. No kick back for them when they give whole glanular. Many are having issues with synthyroid these days-- not just celiac people...

I joined a group "the thyroid group" at Yahoo.com. I've learned so much from this group. It is very active. I'm ready to treat myself with whole glanduar... I'm thyroidless do to RAI three years ago.

I wish you luck..blessings

mamaw

burdee Enthusiast

When I was diagnosed with hypothyroidism, my doc suggested Synthroid. However, I 'googled' Synthroid's inert ingredients and found it contained the following: "(Inactive Ingredients) acacia, confectioner's sugar (contains corn starch), lactose monohydrate, magnesium stearate, povidone, and talc."

Many celiacs do not tolerate lactose ingredients. I have a diagnosed allergy to casein and don't tolerate any dairy products. Another popular T4 supplement (can't remember the name now) contained one of my other allergens. So I suggested 'Levoxyl', a T4 supplement which contains: "microcrystalline cellulose, croscarmellose sodium and magnesium stearate". Some of the doses contain food coloring, but I take the 50 mcg dose, which contains no food coloring.

If you're worried about reacting to inert ingredients from T4 thyroid supplements, Levoxyl may be your best choice, as it was for me.

Roda Rising Star

I take generic levothyroxine also. The brand I take is Mylan. I take 112 mcg of it in addition to 10 mcg of generic liothyronine which is manufactured by Mylan also.

Tigercat17 Enthusiast

I have been taking Synthroid and I called the company and they said they can not confirm the gluten free status. What is your opinion? Does anyone know of a good gluten free alternative?

I was having a lot of problems from synthriod last year and I do think they were gluten related.

I changed to Levoxyl made from the Pfizer company. I just called them again today to confrim that they are gltuen free. The rep. said yes!

Here's the link:

Open Original Shared Link

cassP Contributor

i called the company who makes synthroid months ago, when i was still on it. the official reply they gave me was that NONE of the ingredients were gluten BUT they could not guarantee 100% that the raw ingredients they get to make it were not cross contaminated.

i did NOT react well at all to being on Synthroid alone. but once they added Cytomel, i was fine. im assuming now, that i did not feel well because of the Grave's. i DID had some STRANGE burning episodes with my forearms while on synthetics. about 3 or 4 to be exact. i DO have some DH bumps- but these episodes only burned and my skin got red and dry like leather. very very STRANGE. im assuming a very strange synthetic/iodine/grave's side effect.

im now on Armour and have not had any burning rashes.

i always took brand name synthroid. i took GENERIC Cytomel the second go around- and it was AWFUL. both the generic and brand name Armour were fine.

one of my clients is a medical researcher- and he explained that GENERIC drugs can work anywhere from 80-120% of what the Brand name does- that's a HUGE discrepancy. so, you might find a generic that works better- or you might be suffering with one that's barely 80% working. just make sure you call the companies about the gluten.

if you're feeling bad from the Synthroid- there are MANY reasons for that besides a possible cc. MOST female patients need a T3/T4 combo. i also think it's a good idea to get ALL your antibodies tested- so you have a good picture of what's goin on in your thyroid.

good luck!

oh, but ya- if you're having stomach issues- like Sue said above- the sugar & lactose could be bothering you.

DesertDogs Rookie

Just adding my experience. I take Synthroid. 75 mcg per day. I'm VERY sensitive to gluten, but not to lactose. The Synthroid gives me no problems that I've noticed. I would tend to think it's a lactose thing rather than a gluten thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.