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Dermatitis Herpetiformis Testing

DenaCP

By DenaCP
in Dermatitis Herpetiformis

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DenaCP Newbie
DenaCP
Posted

I have asked my dermatologist for DH testing. Previously I've been diagnosed with eczema by one Dr. and Psoriasis by 2 others. Have been treated with many topicals by prescription. Then 6 months of Enbrel injections which didn't work and have now had 5 Stelara injections with no improvement.

I have been gluten free for 10 days and the biopsy is not until next week, will the test work correctly if I am not eating gluten?

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dilettantesteph Collaborator
dilettantesteph
Posted

My son's dermatologist said that you need an active lesion. We have an order for a drop in appointment for when he gets one.

eatmeat4good Enthusiast
eatmeat4good
Posted

You have to be eating gluten...just like the intestinal biopsy. If you have been off of gluten you could test negative and it could still be DH. This is according to Dr. Peter Green in his book Celiac, The Hidden Epidemic. The biopsy also needs to be taken from clear skin directly adjacent to the lesion. If the lesion itself is biopsied you will not test positive. The IgA antibodies are in the clear skin surrounding the lesion.

Might want to start eating gluten again to have an accurate test. Sorry.

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  • Posts

    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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