Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Medication Are You On To Help You Cope With You Coeliac Disease (And Related) Symptoms?


Kim69

Recommended Posts

Kim69 Apprentice

I had undiagnosed depression for about 10 years. And I have been diagnosed with celiac disease for 1 year. I have been on an antidepressant (citalopram) for 2 1/2 years - it really helped me feel normal again.

Since getting diagnosed with celiac disease I have been slowly getting better (ie abdominal pain lessening, no more diarhoea) but I mentioned headaches and neck/shoulder pain to my dr. She suggested I switch to a different AD since it could possibly assist with reducing the pain. So I am on cymbalta

and it really helps me with depression which has been linked to celiac disease. I have been on it 4 weeks now and haven't really noticed much change in pain but it is supposed to help with bone pain, fibromyalgia and lots of other problems. I am interested to see how I go.

As a side note - I think that some people are scared to try an antidepressant because they are afraid of stigma or are afraid it will change their personality or make them dopey. I have had good results and because I believe that my depression is caused by chemical imbalance I am really grateful for the medication.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Loritabs and Zofran for reactions. Lexapro but I have Generalized Anxiety Disorder.

GlutenFreeJess Newbie

I also have Hashimotos and Fibromyalgia, and am on Synthroid (for the Hashis) and Neurontin & Naproxen for the fibro. OTC, I take TUMS and Liquid Antacid. I used to be on Prevacid though. I am on some other meds as well b/c I have bipolar disorder and generalized anxiety disorder, but those are the meds I am on to help deal with the associated autoimmune issues that I have with Celiac. And they work wonders :)

T.H. Community Regular

Not on any at the moment, and I'm very grateful. I managed to cut my gluten down to much lower than 20ppm a day, and that took care of the aches and pains issue, as well as my depression. Mine looks like it's all gluten related, thankfully.

But I'll be honest, I'm really worried about medication in the future. My thyroid was getting worse the last I tested, and thyroid problems run in my family. But the last 4-5 times I tried medication, they all made me very ill. The only prescription meds I took made me so sick I ended up in the ER.

Kind of worried that I"ll need meds in the future and have to make the decision over which will make me sicker: medication or no medication. :(

GFinDC Veteran

Not on any at the moment, and I'm very grateful. I managed to cut my gluten down to much lower than 20ppm a day, and that took care of the aches and pains issue, as well as my depression. Mine looks like it's all gluten related, thankfully.

But I'll be honest, I'm really worried about medication in the future. My thyroid was getting worse the last I tested, and thyroid problems run in my family. But the last 4-5 times I tried medication, they all made me very ill. The only prescription meds I took made me so sick I ended up in the ER.

Kind of worried that I"ll need meds in the future and have to make the decision over which will make me sicker: medication or no medication. :(

Hmm. that's why I haven't had my thyroid removed yet. I am concerned about the meds for it not being gluten-free. There is not guarantee they will make gluten-free thyroid meds available.

I know I feel better when I use iodized salt, so my thyroid is still working at least.

sandrad Newbie

Ive been on nadalol for over a year for my headaches. I take gravol for nausea and liquid antacid for the burning pain i get and ive also been on plenty ppi...right now its been nexium for a couple years

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.