Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ideas Of Other Things I Need To Do...


RangersFan

Recommended Posts

RangersFan Newbie

I've been dealing with GI issues for about 3 years. I had a colonoscopy at age 29 and nothing remarkable was found. It took me 3 weeks to 'recover' from the prep they gave me. The doc also did a blood work up and other tests. I did not have a positive blood test for celiac disease. However, it was discovered I have hypothyroidism and I've been on medication for it for almost 2 years. My previous GI doc wrote me off as having IBS but I kept getting worse. My New Year's resolution to eat healthier, i.e. whole grains, backfired tremendously and I was sicker than ever. I went to a new GI doc who said the only thing left to be done was an endoscopy. It was scheduled, but then cancelled due to snow (we're in Texas so any snow is a major event here). I couldn't clear my calendar to get back in for a month, and I just couldn't bear the thought of another 30 miserable days. So I went gluten-free around Valentine's Day 2011.

Most of my symptoms improved quickly. I then noticed dairy was a problem, so I cut that out. I added it back slowly with the addition of Lactaid tablets. Then I stopped the tablets, and now dairy is a problem again, even with the tablets. I've cut it out entirely this past week but I'm still having issues. Because I've not received an official diagnosis of celiac disease, I don't have a doc to go to get help. I don't want to have a $1,500 medical test if I can avoid it.

I have two young (ages 6 and 3) kids and a husband who are not gluten-free. They support me and encourage me, but we have a "divided pantry" with my stuff on two shelves and their stuff everywhere else. After reading a lot on here, I now know I have to get rid of my wooden utensils and buy new cutting boards for myself. What other tips do y'all have for a "mixed" gluten-free/non-gluten-free house? I do have my own toaster, I learned that early on. Any ideas or little tips will be greatly appreciated!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Rangersfan, BIIGGGGG Welcome!

Well, first off if hubbie's not going gluten free with you, he needs to brush his teeth after eating gluten before he can kiss you. MAJOR Contamination. Need new collander, separate containers as in butter, peanut butter, jellies, mayo, mustard. Check your meds, lotions, shampoos, household pets, either need to take them gluten free or have someone else feed them and if you pet them make sure you wash your hands immiediately after. Wipe the refrigerator handles down, doorhandles, all surfaces. In my opinion with the little ones I would use latex surgical gloves when I fixed their sandwiches. Because with all the gluten flying around i'm sure in the midst of confusion you would forget that you had gluten on your hands and eat something of yours and you would gluten yourself.

That's just a few things I can think of at the moment. Hang in there and hugs to you. I'm sure others will jump on here and give you other suggestions that I havn't thought of.

Txplowgirl

eatmeat4good Enthusiast

If you must have a gluten mixed kitchen, just really try to ban wheat flour. It hangs in the air and the dust lands on everything. It can make you sick by breathing it in and you will be sick cause it sticks to the mucous membranes and you then swallow it. and then the fun begins. If there is any way to ban flour you may be able to manage a mixed kitchen.

sa1937 Community Regular

Welcome, RangersFan! Personally, I'd try to start making a lot of naturally gluten-free meals (fresh meats, fruits, rice and veggies for example). A lot of the things I ate before my diagnosis are things I still eat today. I think I'd totally freak having a mixed kitchen so everything you can do to minimize your risk will be so well worth it.

I agree with eatmeat4good. I'd try everything in my power to ban wheat flour. As far as cereals are concerned, Chex has several varieties that are gluten-free and Post came out with gluten-free Cocoa Pebbles, Fruity Pebbles and I think Cupcake Pebbles (boxes are marked gluten-free). For pancakes, gluten-free Bisquick works well. Merely choosing one brand of chips, for example, over another would be helpful so you could gradually have more things on hand that the whole family could eat.

I am able to use Lactaid milk without a problem. Lactaid tablets never did anything for me. For the past few months I've started adding more cheeses (cheddar, Mozzarella, etc). Breyers makes a lactose-free ice cream, which is the same price as their other ice cream.

You might want to check the Recipe section as there are a lot of good ideas there. And ask a lot of questions you might have...someone is sure to come up with more ideas for you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,982
    • Most Online (within 30 mins)
      7,748

    Jean MacDonald
    Newest Member
    Jean MacDonald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.