Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Doctor In Southeastern Ct For Self And Son

hikermom4

By hikermom4
in Doctors

Recommended Posts

hikermom4 Newbie
hikermom4
Posted

Hi all,

I am seeking a doctor who will assess us for food intolerances/celiac. My PCP diagnosed me with acid reflux and is content with that. Son has been to GI specialists at a children's hospital; treated with Pdeiasure to gain weight from age 2-4 then discharged, saying they didn't know what was wrong. I had asked for allergy testing and they looked at me as if I'm a hypochondriac. Son is pale, distended belly, often has diarhhea, history of projectile vomiting several times per day (this part now resolved) just made it to the normal growth level on chart. I have an appt with GI specialist in 2 weeks and am hoping he will assess me but I've been gluten free for 3 weeks and don't want to go back to it! I have had GI problems all my life, and was always told I had a "nervous stomach." My sister was treated for IBS for years until she began bleeding and vomiting at work; now she is diagnosed with severe gluten intolerance (in another state, or I'd go to her doc)! There is an extensive family history, which the allergist who saw my son this week showed no interest in. Frustrating!!!

Anyway, does anyone know of doctors in this area who treat celiac and are willing to assess food intolerances?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Cara in Boston Enthusiast
Cara in Boston
Posted

Can you come to Boston? We had a wonderful experience at Children's Hospital with my 6 year old son. His doctor (Dr. Weir) works p/t with patients and is a Celiac researcher the other time. He did not have typical symptoms and she figured it out. They follow up with a support group and nutrition classes too. When it looked like he might test negative, she was open to other, less accepted diagnosis (non celiac gluten intolerance, etc.)

The doctor we started with (MGH) was all about the numbers . . . "only some blood work was positive, so he doesn't have it" and that was very frustrating. He didn't even want to hear what I had to say ("you've read too many magazine articles . . ."

He ended up testing positive. Had we stayed with the first doctor, we would have never known.

Check out their web page - they have a celiac department at Children's.

Right around the corner is Beth Isreal - they have an adult Celiac department . . .

Cara

frieze Community Regular
frieze
Posted

Open Original Shared Link

don't know this place personally, but would be closer than boston....even boston wouldnt be a bad trip on 395/90

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748
    Stacy W
    Newest Member
    Stacy W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.