Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One Week Gluten Free, Feeling So Much Better, Then Saturday Night... I Think I Got Glutened...


MsCurious

Recommended Posts

MsCurious Enthusiast

Actually its been ten days now, gluten free and dairy free...and its been surprisingly much easier than I thought it would be...so far. Things have been going very well, and I feel SO MUCH better! No "D" no rumbling tummy, so much more energy, no headaches, fog feels lifted. YAY! And then Friday I had a salad for dinner... rumbling started... felt bloated... gassy... no "D"... felt really fatigued, just wanted to curl up in a ball. Saturday was worse, felt so nauseated... almost had to run to the bathroom, but managed to live through the waves of nausea, and they subsided after a couple of hours. Later in the day ... "D" ... which I have not suffered from since going gluten free (thank GOD!). Feeling a bit better this morning. Tummy has calmed down, and I don't feel "sick" ... don't feel like curling up in a ball. Starting to feel better again.

Does this sound like I got glutened? Or just ate something bad? That doesn't make sense though, because my husband ate the same things I did, and he was fine. I think the only things we ate differently were: I had green peppers (no black olives) and raspberry walnut dressing, he had no peppers, but instead black olives, and some dressing with dairy in it, and he had cheese which I did not. I read the dressing bottle,and didn't see anything that looked offensive for dairy or gluten, so I'm not sure where the contamination would have come from (although, it could have happened, since the kitchen is not gluten free yet unfortunately... we're still working on that). So any thoughts? Does that sound like a "glutened" episode? Thanks, in advance for your comments. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

It could have been a glutening but soy AND the nightshade vegetables (green peppers) will also affect me that way also. Nightshade vegetables are potatoes, tomatoes, all peppers (including Cayenne), eggplant, okra, tomatillas, pimentos, etc

MsCurious Enthusiast

It could have been a glutening but soy AND the nightshade vegetables (green peppers) will also affect me that way also. Nightshade vegetables are potatoes, tomatoes, all peppers (including Cayenne), eggplant, okra, tomatillas, pimentos, etc

Yikes! I LOVE tomatoes... That would be harder to give up than wheat for me, I think! I've never really researched "nightshades" mostly because I don't what to know if that's an issue! LOL :P I have enough on my plate... errrr off my plate with wheat, rye, barley, shellfish, and dairy. I'm sure there "should" be more, but for now I'm HOPING it was just something else. Thanks very much for the info though, tx... I will watch for future episodes, in case that might be a cause. Time will tell, I guess. I'm much more aware of what goes into my mouth, now than I ever have been in the past, so I should be able to figure it out eventually. :blink: I don't think I have issues with soy. I'll have to monitor and see how things go in the next few weeks. Maybe it was the green peppers! :o

Igg postive Rookie

Hi MsCurious. Glad you are feeling better on the diet. Sorry to hear you had a set back. I went to a dietitian recently for gluten intolerance and she showed me the FODMAP diet since I mentioned I was better but still bloated. The FODMAP diet takes in the gluten free diet plus other food triggers that can cause symptoms. I have been on the diet for a few days and I feel even better. The diet originated from Australia and information is hard to come by in the states. There is one dietitian (Open Original Shared Link) in the states who wrote a book on it. There is a web site that is run by Australians and US mentors for the diet on

Open Original Shared Link which requires one to sign up. The diet was founded by Sue Shepherd (Open Original Shared Link) and she works with Celiacs also. Believe it or not celiacs can have fructose malabsorption in addition gluten intolerance. The diet is very limited to begin with. Then the FODMAP diet has a elimination process to figure exactly which foods (such as lactose, fructans, polyols, galactans, fructose) we individually have a malabsorption to.

Hope you feel better soon.

GlutenFreeManna Rising Star

What brand salad dressing was it? Did you chop your veggies on a wooden or plastic cutting board previously used for gluten? Also it may not be a gltuen thing, it may just be that you need to avoid raw veggies for a while. My stomach could not handle raw veggies and beans for about the first 6 months I was gluten free, but now I eat them all the time.

MsCurious Enthusiast

Hi MsCurious. Glad you are feeling better on the diet. Sorry to hear you had a set back. I went to a dietitian recently for gluten intolerance and she showed me the FODMAP diet since I mentioned I was better but still bloated. The FODMAP diet takes in the gluten free diet plus other food triggers that can cause symptoms. I have been on the diet for a few days and I feel even better. The diet originated from Australia and information is hard to come by in the states. There is one dietitian (Open Original Shared Link) in the states who wrote a book on it. There is a web site that is run by Australians and US mentors for the diet on

Open Original Shared Link which requires one to sign up. The diet was founded by Sue Shepherd (Open Original Shared Link) and she works with Celiacs also. Believe it or not celiacs can have fructose malabsorption in addition gluten intolerance. The diet is very limited to begin with. Then the FODMAP diet has a elimination process to figure exactly which foods (such as lactose, fructans, polyols, galactans, fructose) we individually have a malabsorption to.

Hope you feel better soon.

Ohhhh, interesting! I have wondered about fructose myself. Limited is good for me, since I seem to have so many other no-no's besides gluten. I will take a look. Thanks SO MUCH for the links, Igg! B)

MsCurious Enthusiast

What brand salad dressing was it? Did you chop your veggies on a wooden or plastic cutting board previously used for gluten? Also it may not be a gltuen thing, it may just be that you need to avoid raw veggies for a while. My stomach could not handle raw veggies and beans for about the first 6 months I was gluten free, but now I eat them all the time.

Hi GFM, It was Paul Newman's Raspberry and Walnut. And yes... I did use a wooden cutting board... previously used for gluten... :o I forgot. :( It's not the raw veggies... I love salads and eat them all the time. It was probably the cutting board. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kim69 Apprentice

Just a little bit more info on the low FODMAP diet. I went to shepherd works in Australia and had the fructose and lactose breath test. I came up as positive for both fructose malabsorption and lactose intolerance. Lactose is easy to solve with a lacteese tablet but with the fructose diet onehas to avoid foods which don't have an approximately 1:1 ratio of fructose to glucose such as pears, apples, peas , onions, asparagus and more.

GlutenFreeManna Rising Star

Hi GFM, It was Paul Newman's Raspberry and Walnut. And yes... I did use a wooden cutting board... previously used for gluten... :o I forgot. :( It's not the raw veggies... I love salads and eat them all the time. It was probably the cutting board. :blink:

Sounds like it was the cutting board. If you don't get a new cutting board right away, next time just put some parchment paper or a piece of paper towel down to cut you veggies. I ate salads a lot prior to going gluten free too...but sometimes while your gut is healing you become temporaily more sensitive to things that are hard to digest.

Igg postive Rookie

Just a little bit more info on the low FODMAP diet. I went to shepherd works in Australia and had the fructose and lactose breath test. I came up as positive for both fructose malabsorption and lactose intolerance. Lactose is easy to solve with a lacteese tablet but with the fructose diet onehas to avoid foods which don't have an approximately 1:1 ratio of fructose to glucose such as pears, apples, peas , onions, asparagus and more.

Kim69, Wow you went to shepherd works. Did you see Sue Shepherd? I understand she is a Celiac too. How long does it take for the fructose and Lactose breath test? Is it a particularly hard procedure? Did you get sick afterward? My dietician mentioned going to a doctor for the procedures. Just wondering.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,954
    • Most Online (within 30 mins)
      7,748

    ramonaja
    Newest Member
    ramonaja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.