Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suggestions For A Complicated Diet


num1habsfan

Recommended Posts

num1habsfan Rising Star

I think I need advice from some of you, as I know I have heard from some of you that you have multiple allergies.

I am of course gluten-free, and mainly lactose-free (I can tolerate some forms of dairy again).

Since then I have developed the following complications:

- some form of Inflammatory Bowel Disease (still undiagnosed after 5 1/2 years almost), can't tolerate red meat or most veggies

- allergies to all food but beans (as of July 2009)

- high blood pressure

So, I am trying to manage 6 separate diets: gluten-free, mainly lactose-free, red meat-free, veggie-free, low-sodium, AND am on a rotation diet which I have modified to what works for me (this means I eat something for a few days in a row, then not again for a few weeks, rather than once every 4 days)

Is anyone else here just as in bad shape for food?? I'm just puzzled how to rotate it all, while being 100% gluten-free, and stop packing on the pounds...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Are you eating any gluten free packaged foods? Are you eating anything with soy? Do you have a totally gluten free home or is there gluten still in your house.

Just some questions I was wondering about. Soy will keep your system messed up. You could still be getting glutened from trace amounts of gluten in the gluten free foods which are higher in sugars and carbs. Also you could be being glutened from the gluten eaters in your household. If you have a mixed household do you have your own cooking pans, collander, toaster, cutting board, etc, or do you share? That could be your problem. Do you have pets? They may need to be gluten free. Your lotions, shampoos. Have you checked your meds and vitamins. I would kick all the dairy out not just some.

Anyway, just a few thoughts. I hope you get to feeling better.

Txplowgirl

Nor-TX Enthusiast

I also have several issues to deal with. I need to eat foods that are gluten free, totally dairy free, no fresh vegetables or fruit, low in acid (no tomato, citrus), easy to digest (no beef), as low in fat as possible.

It is absolutely overwhelming to say the least. At 61 I was trying to prepare the foods I had grown up eating and loved. It just wasn't happening for me.

The way I cope now is that I have my "safe" list of foods. The list sometimes expands and sometimes gets smaller if I run into something that just isn't working.

From that "master" list I put my creativity into play. For instance I can eat salmon and I love hamburgers. I made salmon patties and used corn meal as a binder. I bought the new Udi hamburger buns and added pickles and mayo and was in heaven.

I was devastated at the beginning of this diet. The looming idea that I could never eat my favorite foods was almost too much to handle. Now, 2 years later, I am settled into knowing what I can eat and being creative in meal planning.

Take each day and work on your "master" list. Add, subtract and read recipes. Make the food you like to eat from that list. You will be happier and healthier.

GlutenFreeManna Rising Star

I have multiple food allergies as well that are severe (see my signature). I have to pretty much cook everything at home from scratch as much as possible. I agree with NorTx. Make a list of the foods CAN have and then figure out the best way to prepare them so they are yummy for you. You should also try new foods that you don't currently eat, even if you tried them a long time ago and didn't like the taste. You may find you now like things you didn't like before or you might find a new way to prepare the food that makes it your new favorite. As for not packign on the pounds and managing the rotation diet you might want to start logging your meals on an online food diary which will calculate the nutrtion (calories, fat, carbs, etc) and also let you keep track of what you are eating and how you are feeling. One website I have used in the past is livestrong.com

Another thing--since you keep developing new food intolerances you might want to get on probiotics and look into Leaky Gut theory (I don't know much about it yet--I'm still reading up on it myself, just putting it out there).

mommida Enthusiast

When my daughter was diagnosed with Eosinophilic Esophagitus (now they lump all of the Eosinophilic GI track disorders together) we had to keep her gluten free (for the Celiac) and go all top 8 allergens, peas, and to be really safe we were seriously watching dyes and preservatives.

We had to find "non-food" items because it was possible that she would end up on a feeding tube. Non-food items are dum-dum suckers and cotton candy for example to keep some muscle memory of eating. You can find some of these lists on children's food allergy sites.

I found a great cookbook, The Allergen-Free Baker's Handbook How to Bake without Gluten, Wheat, Dairy, Eggs, Soy, Peanuts, Tree nuts, and Sesame. by Cybele Pascal

Other than that, tell us what you can eat for more suggestions. (tell us if there are any more allergens too)

  • 4 weeks later...
num1habsfan Rising Star

I rarely eat red meat due to its habit of causing IBD flares. For vegetables I can eat peas, lettuce, asparagus, cucumbers, and coloured bell peppers. I seem to tolerate pork well. Kinnikinnick white rice bread is my staple food. I avoid corn as much as possible, also due to IBD flares. Everything else for food I only eat once in awhile...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.