Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free, But Now Have Tingling In Feet


xxkristin

Recommended Posts

xxkristin Apprentice

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?

In my gluten-eating days, the tingling wandered and might have been found anywhere. It wasn't just confined to the feet. Sometimes my head, sometimes my chest right over my heart. (As I thought the problem was poor circulation, this was particularly alarming.) Speaking only for myself, I find that tingling in hands and feet is more likely a result of allergies and incipient asthma. I amped up my squash and apple consumption with good results. It might be worth a try.

AgainstTheGrainIdaho Rookie

Also make sure your B12 is a kind that dissolves in the mouth because the stomach acids will kill the B12 and you'll keep taking huge doses without it ever absorbing into your body. Just found that out from the Dr.

xxkristin Apprentice

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

ravenwoodglass Mentor

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

Look for B12 tablets that are sublingual. They dissolve under the tongue or between the cheek and gums and go directly into the bloodstream.

You can find Sublingual B12 in most pharmacey or grocery stores. There are a lot of gluten free vitamins out there but do be sure to read the entire label as barley and wheat grass can be in some but they will still be able to put a gluten free label on them.

lynnelise Apprentice

I had terrible trouble with tingly spots in my legs and feet. I took B12 shots for awhile and then switched to the sublinguals. I have no issues now that my levels are high! Good luck!

chrissygirl0668 Rookie

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.

Have you eliminated iodine from your supplements and foods? If you have DH that is important to do until the lesions have been gone for a while. Since you have DH make sure to eliminate gluten from toiletries as well. Since celiac can effect the nervous system do try some sublingual B12 to help the nerves heal.

OneStarTattoo Newbie

Thank you for this information. I had the tingling really bad, hands, feet, chest, face etc. I went to the ER one night thinking I was having a heart atack at 30! That was 4 years ago and I was just diagnosed. I wish more doctors knew to check for celiac disease when a patient presents tingling hands and feet. Years of needless suffering could be eliminated. I was sent home with a "We have no idea what's wrong with you, good luck."

I'm going to have my B12 checked, thank you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.