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Rumbly Grumbly


Greentealady

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Greentealady Rookie

Hi, do any of you still get the grumbly rumbly noise after you eat? I still do almost every single time after I eat. I can't figure it out. Is one month enough time to be gluten-free and see results? I def. feel better but I still get occasional "C" and this annoying intestinal noise :-(


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proud-armywife Rookie

I just wanted to add that I have this issue as well. It is very loud grumbling and sometimes it is so loud it wakes me up......it doesn't hurt it is just annoying.. Oh the joys of celiac...LOL

mushroom Proficient

Yes, I still have it because I am still a bit gassy. :D

Greentealady Rookie

That is annoying!!! Mine rarely hurts, it has at times though but that was mostly pro to gluten-free Diet. Now it happens almost every time after I eat but doesn't last long but geesh why does it happen?

Greentealady Rookie

How long have you been gluten-free? I am trying not to get frustrated but I am :-( I have been doing this for a month and felt some relief for sure but I keep waiting for that burst of energy and non constipated/bloaty days. I never got officially tested because I went gluten-free before (had I seen this board first I would not have made that dingy move) BUT I did do my research and I know my history and it seems like a dead ringer. I still second guess myself all the time.

ked85 Newbie

I just started the diet about a week and a half ago and second guess that it's actually working. What I've started to do is create a Google document table (like Excel) and keep track of what I eat every day. I highlight foods that give me moderate stomach issues in yellow and then scale up to orange and red (I was having "red" at least 2-3 times a week). The first 3 days I had a "yellow" or mild issue each day, but after that I've had nothing for about 5 days. I've eliminated all gluten and also milk (I switched to soy but I might some other alternative as I hate the taste and hear conflicting things about it).

I'm still gassy though, and when I lay on my back my stomach makes LOUD noises, like my hubby will glance over at me and give me a "what the heck" face. I can feel it when it happens, and it can be very uncomfortable, especially when I sleep (I can only sleep on my side due to this). Also coffee in the morning really makes me uncomfortable I'm realizing, so I've considered switching to herbal coffee (Teeccino).

My celiac test came back negative but I have a very close family history of it, so I thought gluten intolerance might be an issue (so I know what you're saying about second guessing not having a doctor reaffirm that this is actually what you have).

Mari Enthusiast

Imbalances and overgrowths of microorganisms in the intestine feed on the food eaten and produce the gas. This is referred to as Dysbiosis and can be caused by bacteria, yeasts and even parasites. Some celiacs seem to be able to normalize the bowel flora and this gets better over time. But many of us need to either work with Drs to correct this problem or use self treatment with supplements and cleanses. A normal person will have no bacteria or yeasts in the stomach or upper small intestine because their strong stomach acids kill them off as does the bile and some of the digestive enzymes in saliva or from the pancreatic secretions. Having volumes of gas soon after eating means that these organisms are living in the upper intestine. Choosing foods that do not encourage the growth of these organisms helps a lot. I use the legal food list from a gluten free diet, take stomach acids in the form of Betaine-HCl and use probiotic, capsules and sheeps milk yogurt. Kefir is good and for people with milk allergies can be made with water.


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rgarton Contributor

I get a hugely loud grumbly rumbly tummy, rarely aches, just occasionally. I've found it's when i eat vegetables in the evening and if i go to bed shortly after or if im sprawled out on the sofa relaxing my tummy is often as loud as the t.v. My partner thinks its hilarious. My mum has the same reaction to eating veggies in the evening. (shes coeliac too)

  • 2 weeks later...
Kim69 Apprentice

I am gluten-free Coeliac for 1 year. I still have lots of gas and pain. I am on a limited diet - gluten-free and FODMAP - it's really annoying! I just had my blood work done and it's all normal so at least I am avoiding gluten well.

Greentealady Rookie

It is so frustrating isn't it? Do you ever think it is something else and that you are barking up the wrong tree? I am trying to stay positive but sometimes I want to give in. I know I feel better on the diet but yet when I have bouts of constipation and rumbles still I go crazy. It isn't controlling my life like before but I guess I just was hopeful it would cease. Prob stupid on my part.

mushroom Proficient

Frustrating? Yes. Stupid to be hopeful? No. I still have hopes my rumbles will stop grumbling. :D

kltyler57 Newbie

Hi, I'm new to the group. I found out 1 1/2 years ago that I have Celiac with a biopsy. My blood test didn't show anything, but I had already stopped eating gluten a month before because I suspected that I may have it. I'm 53 years old, and feel very alone most of the time! My husband, and two adult kids have not been tested yet. I think my husband may have it too, and possibly our 33 year old son, but they are in denial! I have fibromyalgia, numbness & tingling in my arms, hands, legs and feet. I also have bad night sweats, depression, anxiety, and even though I have been gluten free for over a year I still feel crappy most days. I'm also lactose intolerant. It seems like after I eat my first meal of the day about an hour later I get a lower belly ache, feel kinda nauseous until after I have a few bowel movements! I feel like a prisoner in my body and my home! Most days I don't feel like going anywhere because I feel so yucky, and I don't want to have to run to the bathroom some where, and have an "attack" out in public some where! Does anyone else experience this, or am I alone? :( Sometimes I'll start sweating really bad before an "attack", and during my bathroom visit. Oh and I forgot to say, I'm also morbidly obese, and have been most of my life. I have tried several diets only to lose weight and gain it back. I wanted to try gastric bypass until I found out that I can't because I have Celiac! :( I feel so hopeless, and misunderstood, and like NO one knows what it feels like to be me. Oh, I also get fluid retention in my inside upper thighs, and feet if I stand for very long. Does anybody else get this? Thanks for listening.....

rgarton Contributor

Hi, I'm new to the group. I found out 1 1/2 years ago that I have Celiac with a biopsy. My blood test didn't show anything, but I had already stopped eating gluten a month before because I suspected that I may have it. I'm 53 years old, and feel very alone most of the time! My husband, and two adult kids have not been tested yet. I think my husband may have it too, and possibly our 33 year old son, but they are in denial! I have fibromyalgia, numbness & tingling in my arms, hands, legs and feet. I also have bad night sweats, depression, anxiety, and even though I have been gluten free for over a year I still feel crappy most days. I'm also lactose intolerant. It seems like after I eat my first meal of the day about an hour later I get a lower belly ache, feel kinda nauseous until after I have a few bowel movements! I feel like a prisoner in my body and my home! Most days I don't feel like going anywhere because I feel so yucky, and I don't want to have to run to the bathroom some where, and have an "attack" out in public some where! Does anyone else experience this, or am I alone? :( Sometimes I'll start sweating really bad before an "attack", and during my bathroom visit. Oh and I forgot to say, I'm also morbidly obese, and have been most of my life. I have tried several diets only to lose weight and gain it back. I wanted to try gastric bypass until I found out that I can't because I have Celiac! :( I feel so hopeless, and misunderstood, and like NO one knows what it feels like to be me. Oh, I also get fluid retention in my inside upper thighs, and feet if I stand for very long. Does anybody else get this? Thanks for listening.....

Aw i feel for you i really do. It will take a while and you do have to be super careful (cross contamination is hell!), i do get the sweats before needing a bathroom visit, also feeling faint! I'm underweight so i don't think its to do with your size. I also don't go anywhere at the moment because i feel so 'yucky'. You may find going for a short walk around the block helps, i know i do, and i know how much energy it takes! I think you need to focus on yourself mainly at the moment, if your husband and son are in denial leave them to it, im sure you've said all you can! I went right back to basics and thats how i ended up losing weight but it was the only way i could eat at the time. I ate plain boiled rice and veg, bananas and sipped plain black tea to stop any nausea. Maybe try it for a while i know its bland but it helps stop the emergency runs! (literally!) good luck

Judy3 Contributor

I've been gluten free for 6 months now and I'm feeling better than ever BUT I still get the rumbly grumbly stomach noise after I eat sometime. No pain just a lot of noise...

kltyler57 Newbie

Aw i feel for you i really do. It will take a while and you do have to be super careful (cross contamination is hell!), i do get the sweats before needing a bathroom visit, also feeling faint! I'm underweight so i don't think its to do with your size. I also don't go anywhere at the moment because i feel so 'yucky'. You may find going for a short walk around the block helps, i know i do, and i know how much energy it takes! I think you need to focus on yourself mainly at the moment, if your husband and son are in denial leave them to it, im sure you've said all you can! I went right back to basics and thats how i ended up losing weight but it was the only way i could eat at the time. I ate plain boiled rice and veg, bananas and sipped plain black tea to stop any nausea. Maybe try it for a while i know its bland but it helps stop the emergency runs! (literally!) good luck

Thank you for answering my post. I don't feel so alone now. :) It's nice to know that someone cares. :wub:

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    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
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    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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