Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

These Seem Gluten Free- Why Are They Bothering Me?


HS7474

Recommended Posts

HS7474 Apprentice

I love these 4C Totally Light to Go water flavoring packets. However, I'm pretty sure that they upset my stomach and give me "gluteny" symptoms. I can't figure out what the offending ingredient might be. There is also a variety that are energy ones, and those ones are even worse and cause nausea. Could anyone help me try to determine if there is anything specific that may be bothering me? I'd love to know so I could try to pinpoint and avoid it in other foods. I'm getting super sick of my seemingly daily symptoms, water packets or not.

Flavoring Packet flavors and ingredients:

Wildberry Pomegranate: Citric Acid, Ascorbic Acid (Vitamin C), Natural & Artificial Pomegranate and Wild (Mixed) Berry Flavors, Potassium & Sodium Citrate (Control Acidity), Acesulfame Potassium, Purified Polyphenols (Antioxidants) (One Serving Contains Approximately 20 mg of Antioxidants), Sucralose, Magnesium Oxide (Prevents Caking), Cellulose Gum, Xanthan Gum, FD&C Red 40, Tricalcium Phosphate (Prevents Caking), FD&C Blue 1.

Cranberry Pomegranate: Citric Acid, Ascorbic Acid (Vitamin C), Artificial Cranberry Flavor, Potassium and Sodium Citrate (Control Acidity), Acesulfame Potassium, Purified Polyphenols (Antioxidants) (One Serving Contains Approximately 25 mg of Antioxidants), Natural and Artificial Pomegranate Flavor, Sucralose, Gum Arabic, Magnesium Oxide (Prevents Caking), FD&C Red 40, Tricalcium Phosphate (Prevents Caking), FD&C Blue 1.

Fruit Punch: Citric Acid, Natural and Artificial Flavors, Ascorbic Acid (Vitamin C), Potassium and Sodium Citrate (Control Acidity), Acesulfame Potassium, Artificial Color FD&C Red 40, Sucralose, Gum Arabic, Magnesium Oxide & Tricalcium Phosphate (Prevent Caking), Titanium Dioxide, Artificial Color FD&C Blue 1.

Lemonade: Citric Acid, Natural Lemon Flavor, Sodium and Calcium Citrate (Control Acidity), Ascorbic Acid (Vitamin C), Cellulose Gum, Acesulfame Potassium, Partially Hydrogenated Soybean Oil, Natural Lemon Juice Solids, Sucralose, Magnesium Oxide (Prevents Caking), Artificial Color FD&C Yellow 5.

Energy Flavoring Packets:

Berry Ingredients: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Acesulfame Potassium, Natural (Mixed) Berry Flavors, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Red 40 & Blue 1, Folic Acid (B9), Cyanocobalamine (B12).

Citrus: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Natural Citrus Flavors, Acesulfame Potassium, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Yellow 5, Folic Acid (B9), Cyanocobalamin (B12).

Orange: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Natural Orange Flavor, Caffeine, Acesulfame Potassium Sucralose (Splenda Brand), Niacinamide (B3), Silicon Dioxide, Calcium Pantothenate (B5), FD&C Yellow 5, Pyridoxine HCl (B6), FD&C Red 40, Folic Acid (B9), Cyanocobalamine (B12).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

Sucralose, maybe?

Magnesium can also affect GI function...

You could also get some juice or something to dilute in water.

Looking for answers Contributor

They seem to be full of chemicals and additives. I think my stomach would be upset too...I know the gums in it would make my stomach hurt.

cassP Contributor

it might be the cheaper quality vitamins... i know if i take vitamins from the grocery store- i get incredibly nauseus.. also, zinc makes me nauseas. and ascorbic acid gives me gerd. or it could be the corn byproducts ??? caramel color sometimes makes me nauseaus and i think it's from corn ??

T.H. Community Regular

Might not be the ingredients, either. It could simply be that it's contaminated somehow. They say they are gluten free - did you ask if they tested for gluten? Do they test every batch, or periodically? If they test, what is their gluten ppm detection cutoff?

If they say they don't test because it 'has no gluten ingredients so it's gluten free,' then they're, well, very ignorant. Because if that was all it took, then we could all go to restaurants and there'd never be an issue with cc, ya know?

shauna

mushroom Proficient

And then again, there are all those dyes :huh:

GFinDC Veteran

I am pretty sure those water thingies are what turned the Toxic Avenger. Looks like a chemical factory product list not a food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HS7474 Apprentice

Ok, ok, I know they aren't healthy but they are delicious!

Thanks for all of the replies :) I'll, obviously, stay away from them now.

I don't seem to have a problem with corn but I'll keep an eye out for the gums, vitamins, and caramel color.

The gums and vitamins hadn't occurred to me before.

I have sucralose regularly in one of my hot chocolates and don't seem to have an issue with that so I'm pretty sure that's not the issue.

I'll see if I can find the contact info for the company. They themselves didn't actually declare it gluten free, it was just me going by the igedients :ph34r:

Thank you again!

  • 1 month later...
momof2peanutz Newbie

Citric acid!

It's found in most diet drinks and it gives me a major reaction too. It's in diet Snapple and was in my diet cherry soda and diet root beer.

Also, this site was helpful to me re: additives. Open Original Shared Link

This one looked very good, too: https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

momof2peanutz Newbie

This safe list looks really good too:https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

Actually sodium lauryl sulfate is on the "good list" and I know a lot of people can't use soaps with this in it if they're celiac, so .. I don't know if this list is great or not..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.