Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Symptom Or Not?


rmmadden

Recommended Posts

rmmadden Contributor

I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice
I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>

I can definitely relate. I had pain in my neck and shoulder area for years. A physical therapist said they felt like "grape clusters" only harder. No one could explain why I had them, an MD called them muscle spasms and I took a lot of muscle relaxants which helped. When I went gluten-free they went away and so far haven't returned (YAY)! :D

kvogt Rookie

Sounds like fibromyalgia.

dmullen Newbie

I totally agree with your feelings. When I have a a problem the first thing that bothers me after the intestinal bloating and constipation is pains all through my neck and jowels. If I keep to a very strict diet is seems to go away after a couple days; but if I keep bothering it, it ends up with severe pains and swelling.

It's never forgiving of a bit of a slip-up.

mangogirl Newbie
I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>

drjmarkusic Newbie

<{POST_SNAPBACK}>

It doesn't sound like fibromyalgia as that disease is significantly more pervasive toward the muscles in the back and around the ribs. Celiac Disease has many different symptoms and myalgia is not one of them; however, if you are on a cholesterol medication it can cause myalgia and would check that if those meds are administered. People who have celiac disease are people who become stressed with negative stressors. I don't know if this is what has caused celiac disease to surface or it is a part of the disease. People experience stress in many ways and one of those which is most common is a tightening in the shoulders, neck and jowels. However, what I have found is that there is stress reduction while gluten-free. I find it important to remain gluten-free with no cheating.

malka Newbie
I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



malka Newbie

:rolleyes: HELLO, YES I DO, BUT DID NO REALISE THIS WAS CAUSED BY GLUTEN, THOUGHT IT WAS FROM SITTING TOO LONG AT THE COMPUTOR. THE ONLY THING I COULD PUT IT DOWN TO OTHER THAN SITTING, IS I HAVE RYE BREAD 100% FROM TIME TO TIME, AND SOMETIMES GET A HEADACHE, WOULD YOU KNOW HOW MUCH GLUTEN CONTENT THERE IS IN RYE FLOUR?

HAVE A GREAT DAY,

MALKA

I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode?

When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling.

Can anyone relate?

Thanks!

Cleveland Bob  B)

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.