Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitiligo


thefreespirit

Recommended Posts

thefreespirit Rookie

Hi people

I have mentioned that I am currently seeking diagnosis, so I am very interested in listing my huge ;) array of symptoms for my doctor.

I have a patch of vitiligo on my torso, close to my right hip bone. It has grown somewhat over the last year, and is now approx 30 cms sq.

I have never done anything about this, its not bothering me and causes me no problem, but I have read that there is some thoughts of a link between vitiligo and celiac disease. Does anyone have any thoughts about this, please?

Thanks - FS xx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Whatnext? Rookie

Hi people

I have mentioned that I am currently seeking diagnosis, so I am very interested in listing my huge ;) array of symptoms for my doctor.

I have a patch of vitiligo on my torso, close to my right hip bone. It has grown somewhat over the last year, and is now approx 30 cms sq.

I have never done anything about this, its not bothering me and causes me no problem, but I have read that there is some thoughts of a link between vitiligo and celiac disease. Does anyone have any thoughts about this, please?

Thanks - FS xx

First let me say, that I am totally new to all this. But I also have questions regarding vitiligo. However I don't have it. I was recently told that I have celiac (due to a positive blood test) although I have an endoscopy scheduled for tuesday to confirm. I'm really starting to think my parents have it. I'd like them to get tested. My mom has had vitiligo since at least her teens. She has it all over her body and face and it has always bothered her. Her hair also started turning gray early.

I would definitely mention it to the doctor, but you may find they dismiss it. In my experience (which again is not much) the doctors only paid attention to the digestion problem I told them about.

Mari Enthusiast

I found this comment on a search for 'vitiligo celiac"

Is Vitiligo hereditary? Or genetic? - Yahoo! Answers

Resolved

thefreespirit Rookie

Hi

Thanks for the responses.

Don't have much, just this one patch. I'm definitely not African American, very very pale skin. Dont ever sun bathe, don't ever use UV lights.

Whatnext, I pretty much relate to what you are saying. My extensive list of other symptoms was completely ignored. I know they are gluten related (because of experience) but they get largely dismissed.

I have been told by my doctor that unlikely to have celiac disease although my mind and body is telling me something quite different. ;) Awaiting a consultation with Gastro specialist. I live in the UK so we wait and wait for appointments.

FS xx

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.