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Gluten Free And Hives?

atb913

By atb913
in Coping with Celiac Disease

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atb913 Newbie
atb913
Posted

I have been gluten free for 10 days now and initially the results were startling. I felt a thousand times better! I still feel better than I previously did, but some of my angioedema is trying to rear it's ugly head and I feel like the fatigue is creeping back up.

I haven't accidentally glutened, so I'm wondering if this is a result of the gluten leaving my gut tissues. Is this possible? Has anybody else dealt with this? Is there a way to detox quickly so that my villi can start to heal?

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shadowicewolf Proficient
shadowicewolf
Posted

Can you absolutely rule out CCing?

I think you got into something that caused you to have that reaction. :(

atb913 Newbie
atb913
Posted
  • Author

I don't believe I have. I'm a bit of a label freak since my son has a soy intolerance. I cook from scratch for the most part, but the few commercially prepped foods I purchased I went online to doublecheck (ingredients such as modified food starch and the like). All were listed as gluten free. I don't eat gluten free bread, so the toaster isn't a culprit, and I use a glass cutting board.

If it isn't a release reaction, my main concern is nightshades. I'm already aware of a salicylate reaction, so I avoid those.

I was planning on being completely gluten free for a month before I went casein free too, but maybe I should bump that up.

jenngolightly Contributor
jenngolightly
Posted

I have been gluten free for 10 days now and initially the results were startling. I felt a thousand times better! I still feel better than I previously did, but some of my angioedema is trying to rear it's ugly head and I feel like the fatigue is creeping back up.

I haven't accidentally glutened, so I'm wondering if this is a result of the gluten leaving my gut tissues. Is this possible? Has anybody else dealt with this? Is there a way to detox quickly so that my villi can start to heal?

I don't know what you exact diagnosis is, but hives are an allergic reaction. If you have Celiac, then you have an autoimmune disorder and is not an allergy. If you have a wheat allergy, then hives are something to be expected.

If you have Celiac and are getting allergic reactions, then you need to find out what food is giving you those symptoms so you can avoid that in addition to gluten. Do you keep a food journal? This is a great time to start. Keep track of all the food you eat and your symptoms. You will soon see patterns with your food intake and external symptoms. Hopefully you can track down what food is causing the hives.

Good luck!

srall Contributor
srall
Posted

One thing I noticed with both myself and my little girl, is that once we went gluten free (6 months apart from each other), all of the sudden other foods that our bodies were somehow coping with (tolerating) made us react. Corn gave us both hives, dairy gave my daughter a rash and me the big D. I also recommend a food journal. We pinpointed things pretty quickly over the course of a few weeks.

mamaw Community Regular
mamaw
Posted

atb913

I just sent you a private post...

mamaw

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
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      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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